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Suffering

Ode To A Lumpy Body

February 18, 2022 by Cindy DeBoer 16 Comments


Hairy legs and sun-burnt nose
When at the beach, anything goes.
Unbrushed teeth and happy-hour drinks
This much I know: my breath stinks.
Fish for dinner plus a fruity potion
Diet be damned, I'm at the ocean.
Sand in my bed, and in my salt-fried hair,
Sir, what is the time? Wait. Why do I care??
It's here that I feel no virus, pain, or LAM -
Must be the thick presence, of the great I AM.

.

Just a couple of days ago I slipped into my new bikini and Brenda and I headed out for a walk along the Gulf of Mexico in Puerto Vallarta. We felt so important – staying at a swanky resort where budding American accountants and their wives went to feel more successful than they actually were.

We turned the heads of both the locals and tourists. We heard the comments – the catcalls – and laughed at the power of the female anatomy. Perhaps we did stick out – both young, fresh blondes in our little bikinis. And Brenda is tall – really tall – and her long, lean legs stop somewhere around her neck. I’m not tall, nor would anyone ever describe me as “lean,” but I don’t think people gouge their eyes out when they see me either. Some of our admirers even followed us into the bars at night and tried to dance with us. Our husbands just laughed – knowing they alone held our hearts.

Then a few days passed.

Today I slipped on my Grandma-style black bathing skirt and floppy top – a two-piece ensemble designed to masquerade the wrinkles, bumps and lumps of old ladies. When I finally put down my reading glasses and book on racial reconciliation and headed out for my daily beach walk, I had an indescribable sense of peace. There was no need to “suck it in,” apply lip gloss, or make sure my skin was shiny with tanning oil because nothing I do at this point improves the situation anyway. I don’t turn heads anymore and I’m not mad about it. It’s so much easier and freer these days. But as I watch all the bikini-girls walk on by, I think to myself, “Oh I remember those days. That was just a couple of days ago for me.”

And in between those couple of days this body did a couple of things. It grew five babies in its womb. Three of them made it out alive, two went directly to heaven and we never even knew their gender.

And both the joy and the sadness of each of those babies resulted in wrinkles and a little less “perk” to this body.

This body wiped about a million butts. Between my own babys’ butts, butts at the nursing home, and butts at the hospital, a million could be a bit of an exaggeration, but it’s a ridiculously high number.

And all those many, many nights of getting up with babies coupled with the graveyard shifts at the hospital working in the ICU and caring for precious souls whose actual LIFE hung in the balance just piled on the wrinkles, the eye-bags and overall “sagging.” Some days it was as if I could physically FEEL my body sagging as I drove home from the hospital, bearing the burdens of deep sadness experienced in the ICU.

This body packed up four children and an entire household 11 times. Four of those times were to and from far away countries. This body has slept in tents, in negative five-star hotels, under the stars and on the floor of the Sahara Desert.

And all those achy muscles and bones from asking this body to go above and beyond its normal strain left this body a little more worn and limping. More bumps, more bruises, more sagging.

This body has cried alongside Syrian refugees and widowed Guatemalan women. It’s heard the stories of Jews living in a kibbutz and Moroccans living in shantytowns. It’s befriended the homeless and the helpless, those that have much and those that will never have any. It’s worked tirelessly to bring peace and comfort to the psychologically challenged. And currently, it grieves for Afghanistan and her people, those picking up pieces of their lives after a natural disaster, those affected and infected by COVID, and those who have misplaced their peace because of internet lies. But this body has never given up hope that the shalom of Christ is possible here on earth.

With each new discovery of the world’s many crises, its needs and its sorrows, this body sagged a little further. It sagged even as it considered all the possible ways to help make a difference. Believing change can happen and working hard to BE that change, no doubt, is exhausting.

This body has held the hands of many people as they took their final breaths – patients, close friends, and dear, precious family members. This body – specifically the heart and soul – has suffered more grief and loss than I thought a body could bear.

And I’m quite certain the most wrinkles, the most wear and tear on both the inside and the outside of this body have come from the sorrow. Sorrow, I believe, ages us the most.

Then a new shock sliced me open. This body somehow developed all kinds of holes in its lungs and now this body doesn’t breathe very well anymore. This body sometimes tells me it’s wearing out (like on the hot, humid, Michigan summer days, or when faced with more than 20 stairs) and it doesn’t feel like putting up a fight anymore.

And with each labored breath, I feel the work of this entire body doing its thing. Pumping its limited supply of oxygen where it’s needed the most. The work, the strain, the fatigue = more wrinkles, more sagging, more bumps and lumps as I sometimes eat my way out of the despair.

This body has served me well and I sure hope it doesn’t sound like I’m complaining. None of these bodies we inhabit were made to last forever and perhaps my temple expiration date is just a little sooner than others. This body has also lasted much longer than forecasted and the reality of that miracle is not lost on me.

Today, THIS body has earned its wrinkles, its sags and lumps and bumps and proudly walks the beach in the Grandma bathing suit because – OH WOW! – I’m alive!!! I would never want to go back to the woman who wore the bikini. My life is testimony to the beauty of the hard work done by my body.

Let’s celebrate these masterfully made bodies, friends. These are miraculous gifts that – in spite of things like cancer and cerebral palsy and limb difference and high cholesterol – house our heart and soul and allow us to breathe and love and care and serve. We may not have been given the body we wanted, or the body that’s as healthy as we’d like; but if we’re alive, then at least we HAVE a body and whatever it looks like, it’s a freakin’ miracle!

Let’s give God glory for these glorious bodies today, shall we???

Filed Under: Aging, Body Image, CANCER, COVID-19, Depression, Guatemala, Lymphangioleiomyomatosis, Suffering, Terminal Illness, Trusting God Tagged With: BEACH, BODY IMAGE, JOY, LAM, Suffering

How To Find Purpose For Your Pain

September 12, 2019 by Cindy DeBoer 8 Comments

This is what the road in front of my house looks like. It’s dirty, disgusting, loud and annoying. And it’s been going on all summer. But I couldn’t be more relieved to have the road crew here.

They are saving my life.

HOW FLINT SAVED GRAND RAPIDS

Before 2014, American’s never concerned themselves with clean water. That’s an African problem, we believed. It took the Flint crisis of 2014 to wake us up to the devastation caused by unclean water. It took the death of 12 people and another 84 people contracting a waterborne illness for us to realize the severity of this issue and finally speak up.

Because the brave people of Flint chose to speak up and fight this atrocity against a system stacked against them, cities across the nation had a wake-up call.

GRAND RAPIDS, TOO?

At the beginning of the summer we were notified our street would be ripped up and under construction for five months due to lead pipes that needed to be changed out. We had zero clue that our drinking water might have been compromised. But Grand Rapids chose to preemptively address a potentially hazardous situation so we wouldn’t become the next FLINT.

The good people of FLINT have suffered for 5 years as they’ve battled for the basic human right of clean water. But BECAUSE OF THEIR SUFFERING, I didn’t have to. Growing children in our neighborhood won’t suffer debilitating effects from lead exposure. Unborn babies on our street won’t have preventable birth defects due to lead their mommas unknowingly ingested. I can’t explain the gratitude I feel toward the whole city of FLINT.

Quite often, our pain and suffering, can be used to bring good to others.

Because maybe sometimes we have to suffer so others don’t have to.

AND HERE’S THE THING: IT’S TRUE FOR ALL OUR SUFFERING!

I was promiscuous in college. It was the darkest, most painful season of my life. But I made it even worse by keeping it a secret for 12 years. It wasn’t until I shared my past with my husband that we were able to work through the pain and suffering and find wholeness and redemption on the other side.

Now, I tell everyone who will listen about that worst season of my life.

WHY? Because it’s the ONLY WAY my pain gets redeemed! If I can help to prevent just one young person from taking the same dangerous path I took, it gives my pain purpose.

No one wants to suffer. And Christians are notorious for trying to convince us we don’t have to. (You know, “Just-follow-Jesus-and-you-will-never-suffer-again). But it’s a lie. Jesus was very clear on the subject: “In this world you will have trouble and suffering, but have courage, because I have overcome the world.” John 16:33

We will suffer. But the story does NOT have to end there.

LESSONS FROM A WOUND

As a nurse, I’ve learned the only way a deep wound can heal is with debridements – frequent and consistent cleanings with removal of infectious tissue. Deep wounds require light, air, and debridements. If you cover them up and leave an infectious deep wound alone, the infection will spread and kill you.

The same is true for the painful, dark parts of our lives.

We can always choose to cover those parts up – refusing to expose them to light and cleansing – but that’s how they’ll slowly kill us.

THANK-YOU FLINT PEOPLE!

Can you imagine if the crisis in FLINT was covered up and never exposed? As someone on immunosupressants, it wouldn’t be long before lead ingestion would have made me terribly sick. And probably all across America people would be unknowingly drinking dirty water.

Likewise, if I never shared with my kids the pain and suffering I caused in our marriage because of the terrible choices I made in college, my own kids might have suffered the same fate. How tragic!!! I refused to let that happen!!! So I put the fear of God in my kids regarding premarital sex – hoping and praying they could hold off until marriage. I may have carried it wee bit too far when my daughter recently confided, “Mom, You were so anti-boys and dating, I was honestly terrified of my first kiss!”

Anyway, my point is this: Do NOT hide your pain and suffering. Share it at the appropriate times, in the appropriate places, and with the appropriate people so that others may learn from your pain and, if possible, avoid it themselves.

It’s such a tangible way to spread LOVE to our brothers and sisters on this planet.

“Suffering ceases to be suffering when we find meaning for it” Viktor Frankl

Filed Under: City Life, Suffering, Uncategorized Tagged With: Clean Water, Flint, Sex, Suffering

Six Critical Life Lessons Learned from a Hacker

May 9, 2019 by Cindy DeBoer 5 Comments

I was furiously typing away – hoping to complete another chapter of my book in the two hours I’d managed to wrangle free. Suddenly, a warning popped up on my screen, “CAUTION! You have a virus attacking your computer! Stop immediately and call Apple: 555-5555” (the title of this blog should let you know why I’m not sharing the actual number…)

I’ve heard of these scams. I wasn’t born yesterday or over fifty years ago (okay – a tiny white lie with that one…). But I did know enough to be skeptical. I tried to exit out of the pop-up. No luck – it wouldn’t close. I tried to close all my windows and the Apple wheel of death appeared refusing to budge. So I decided to just shut my computer down (my go-to solution for techy issues). But the computer had totally froze and when I hit the off key it started screaming at me – an unearthly, loud and high-pitched alarm. I frantically tried to stop it by pushing every key on the keypad. Nothing. Totally frozen keyboard and a shrieking computer that hurt my ears.

It felt like satan himself was communicating to me from my computer. (Hmmm…. Now there’s a thought!)

I asked my daughter to quickly access her own device and ask Google if this was a legitimate warning and if I should call the “Rescue” number flashing across my screen. Google isn’t so smart after all: the first thing to appear in her search was an affirmative – Yes, indeed, sometimes Apple will alert you to viruses that are attacking in real time.
So I hurriedly called the number and talked to Rashid. (I know, I know. I know what you’re thinking… the fact that Rashid could barely speak English should have, possibly, been my first clue….) But at first, Rashid was super sweet and helpful. He calmly walked me through the steps necessary to stop the screaming alarm. Then he explained a few more steps that would allow him to interface with my computer, which, he said, was necessary to diagnose the problem. I watched, helplessly, as he navigated the cursor on my screen and moved quickly in and out of windows and in and out of my settings. Then he confirmed my computer had, indeed, been attacked by a wicked virus. The very worst, he said. He pulled up graphs on my screen depicting the damage and just how much of my data had been infiltrated. He said to remove all the infectious material would take about 24 hours and all I had to do was pay $79 and he would fix the whole darn thing.

What a doll, that Rachid.

I may look old and stupid, but I tell you what, once in a while, when the thing is wretchedly stinky, I’m able to smell a rat.

I hung up on Rachid as fast as you can say “India” and slammed my computer shut. I set it in the corner like a bad child and didn’t open it again for 24 hours. The truly honest and genius boy-child at my local computer store fixed everything the next morning in mere minutes. He felt pity for such an old, helpless lady like me to be taken so badly by a hacker that he didn’t even charge me for his services.

Once I calmed down from the debacle, I realized I was actually thankful for everything I learned from Rachid:

1.  We are not in control of squat. As I watched Rachid guiding my cursor all over the screen and clicking away to “convince” me of my desperate need of his services, I felt incredibly helpless. I didn’t know if I should trust him or not – all I knew is this: “I have no control anymore.” It reminded me of how often that is true in life. We want to believe we can control things – but when our child rebels and runs away from home, or our best friend betrays our trust, or we lose our job, or we get the “cancer” call, or we lay our parents down for their eternal rest, or we find out we have a stupid lung disease that’s robbing us of steady breathing and a long life – well, all those moments serve to remind us that we don’t control SQUAT. We are wasting our time and energy trying to control that which we were never meant to have reign over.

2.  Satan is real. A while ago a well-meaning friend told me I look for satan under every bush. She was suggesting that perhaps I give the enemy of our souls more credence than I should. I don’t know, maybe I do. Sometimes I think I just watched too many horror movies in junior high…

But what I know for sure is this: That old Liar roams to and fro looking for ways to steal our joy and wreck our faith in Christ – but the sooner we recognize his schemes the sooner we can put a stop to it! Don’t be afraid to ascribe evil to he who authors it!

3.  We never make good decisions when in the midst of a crisis. When we find ourselves in a crisis, we need to, if possible, BACK AWAY! Give the thing time to simmer down. We need to give ourselves some space to slow our breathing, gain composure, pray, and THEN process the crisis thoughtfully. Only then can we gingerly step forward into finding a solution.

4.  Real, authentic, caring help truly does exist in this world. Go seek it.

5.  Never think too highly of yourself. I was devastated thinking that while Rachid had access to my computer for those 24 hours he was probably reading and stealing all of my information on my computer. My wise, gentle hubby had to (carefully) remind me that I’m not THAT special. We don’t work for the government, we’re not made of millions, and we’re not famous – so what could a hacker really “steal” from my computer that would matter? A blog on how we renovated a crack house??? The little circular I wrote on how to deal with menopause??? The poem I wrote for my dying dad??? Did I really think some hacker from India would steal my Christian memoir book and somehow get publishers to do what I have been unable to do and publish my book under his pseudonym??? Rachid becomes Rachelle and suddenly he is the next Anne Lamott???

 I had to admit, Paul had a point…

6.  If you have nothing to hide, it doesn’t matter who looks at your stuff. Without a single incriminating photo, without essays bashing high-profile people, without massive wealth, and without anything to share except the gospel of Jesus Christ, I should have had NO FEAR of someone stealing my content. In fact, I should have HOPED they would!

My prayer for us today is to not fear the hacker – or anything or anyone set on destroying us. May we be a people unafraid or unashamed of someone looking at our computer content or our browsing history. May we recognize those who are bent on causing pain, hurt and chaos in our lives and STEP AWAY from them whenever possible. And may we not think so much of ourselves or our work that our computer carries more importance than it should.

And may we never forget that when a TRUE crisis arises (and they will, brothers and sisters, they ALWAYS do….) help is only a shout away:
“Hear my cry, O God, listen to my prayer; from the end of the earth I call to you when my heart is faint. Lead me to the rock that is higher than I, for you have been my refuge, a strong tower against the enemy.” Psalm 61:1-8
 

Filed Under: Glioblastoma, Joy in the Journey, Lymphangioleiomyomatosis, Suffering, Terminal Illness, Uncategorized Tagged With: CANCER, DYING, JESUS, JOY, LAM, Suffering, TERMINAL ILLNESS

A Lament for Heidi

January 8, 2018 by Cindy DeBoer 91 Comments

IMG_4338After a long 24 hour bedside vigil, I was finally able to come home, change my clothes and shower. But it’s not over. I’ll go back to her bedside shortly, and breathe in her precious smell until she smells like heaven.

I know how this goes. My youngest sister will be the fourth beloved, precious family member we will lose in just over a year.

Oh, Lord, I just don’t understand. What is going on here???

Last year, on Christmas morning no less, we first learned Heidi had a brain tumor. Later that same week we were informed it was glioblastoma – the fastest growing, most deadly and ruthless form of brain cancer with an average prognosis of 12 – 14 months Screaming into Nothingness (when God disappears). Here we are, in month 13 and she is days (maybe hours?) away from dying. Heidi is anything but average, but in death, her numbers will align fairly well with the statistics.

She will leave behind a husband, Chad, who has been her best friend since forever. They were married 23 years. Chad and Heidi have two children – Ashley, 17, a high school senior, and Nate, 14, an eighth grader. Don’t tell me they’ll be okay. They won’t – at least not yet. Their momma is about to die.

Oh, Lord, I just don’t understand.

It’s NOT okay to lose your momma when you’re a teenager. I have analyzed this situation from every angle and I can find nothing that makes sense or eases the pain. And I think I could punch someone in the face right now who tries to tell any of us how God works all things together for the good.

There is no way this can be good. No way.

Unless, perhaps…. Unless I don’t understand what “good” really is….

As a family we have all wrestled with mortality and God and His plan throughout Heidi’s illness. But one night, while in a long nighttime wrestling match with God, I suddenly wondered if His idea of good is simply not the same as ours. Maybe He doesn’t have a Webster’s. Maybe when He Google’s “good”, He doesn’t read of the things we typically think of (health, wealth, prosperity, fitting into your size 6 jeans, sipping wine along the Cour Mirabeau in Aix-en-Provence, France…)

If God is good, and I have NO DOUBT He is, then His definition of good CANNOT be the same as ours.

Because, Oh, Lord, I just don’t understand you otherwise.

It’s interesting, but in my experience, the things that we typically think of as “good” and as our “blessings” are often the things that create a separation between God and us. They are things that, often unintentionally and often subversively, lead us to believe we don’t need a God. Things like enough money (or too much), enough food (or too much), enough vacation (or too much), enough or too much of everything, as well as the absence of disease and absence of trials.

Conversely, it is the sufferings of this life that bring us to our knees and to the place where we find our desperate need of a Savior.  And I believe that more than anything God longs to draw us closer to Him. He wants nothing more for all to come to know him and accept the saving knowledge of Jesus Christ as Savior.

So what if maybe, just MAYBE…., in God’s dictionary, “health” is not the absence of disease, but, instead, one who knows he/she is nothing apart from Christ, and that we live and breathe and have our being in Him alone.  Since God IS good, and longs to give us good things, MAYBE, “health” has nothing to do with our physical bodies.

Maybe, in God’s dictionary, “wealthy” does not refer to one who has a hefty savings and retirement account, drives a fancy car, and owns all manner of material possessions. Maybe being wealthy actually means to understand that friends, family and a purpose in life are some of the richest gifts offered to us. Maybe we’re rich when we realize how little we actually need “things” and start living more simply – when we have more time for people instead of accumulating and maintaining our “things”.

Maybe wealth is the opposite of what we always thought.

Maybe, in God’s dictionary, a “blessing” isn’t a concept we can actually get our heads around. Maybe, saying we’re “blessed” when referring to health, wealth, jobs, children and good fortune causes great pain to those struggling with cancer, infertility, unemployment, a prodigal son/daughter, rape, poverty, oppression, rejection, loneliness, etc. because it implies God has withheld His blessings from those people.

ESPECIALLY – oh especially – when we Christians suggest it is the LACK of faith that produces suffering in this life are we guilty of serious theological malpractice!

Are suffering people NOT blessed???  Are we able to escape all trouble and heartache if our faith is simply strong enough??? When people suffer from the evils in this world is it a reflection of their lack of faith???

Hell no.

It just can’t be. Or God is not good. God must have a different definition of “blessed” then we do.

Otherwise, God, I just don’t understand.

So, I decided to start reading God’s dictionary. I cannot make sense of Heidi’s passing any other way. I need a God who IS GOOD. One whom I can trust even when I’m angry at Him. One who IS PRESENT everywhere. One who doesn’t pick and choose favorites and grant the rich, the beautiful, and those born into first-world countries more “blessings” than the rest.

This is what I found in God’s dictionary:
“Blessed are the poor in spirit – for theirs is the kingdom of heaven.
Blessed are those who mourn – for they shall be comforted.
Blessed are the meek – for they shall inherit the earth.
Blessed are those who hunger and thirst for righteousness – for they shall be filled.
Blessed are the merciful – for they shall be shown mercy.
Blessed are the pure in heart – for they shall see God.
Blessed are the peacemakers – for they shall be called children of God.
Blessed are those who are persecuted because of righteousness – for theirs is the kingdom of heaven.” Matthew 5: 3 – 10

So as I resume this bedside vigil there are TWO things I can know for sure: Chad and family will be comforted. And Heidi, well, she shall soon see God, for she is truly pure in heart.

This precious family does not have the “blessings” that most people think of – they are in the valley of the shadow of death and this is an impossibly sad and difficult place. But, I’ve just GOT to believe that according to God’s dictionary, they are blessed indeed.

Otherwise, Lord, I just don’t understand. You just don’t make any sense to me.

And then the Lord said to me:
“Trust in the Lord with all your heart, and lean not on your own understanding.” Proverbs 3:5

Filed Under: CANCER, Glioblastoma, Popular, Prayer, Suffering, Terminal Illness, Uncategorized Tagged With: CANCER, DYING, HEIDI, Suffering

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