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A Lament for Heidi

January 8, 2018 by Cindy DeBoer 91 Comments

IMG_4338After a long 24 hour bedside vigil, I was finally able to come home, change my clothes and shower. But it’s not over. I’ll go back to her bedside shortly, and breathe in her precious smell until she smells like heaven.

I know how this goes. My youngest sister will be the fourth beloved, precious family member we will lose in just over a year.

Oh, Lord, I just don’t understand. What is going on here???

Last year, on Christmas morning no less, we first learned Heidi had a brain tumor. Later that same week we were informed it was glioblastoma – the fastest growing, most deadly and ruthless form of brain cancer with an average prognosis of 12 – 14 months Screaming into Nothingness (when God disappears). Here we are, in month 13 and she is days (maybe hours?) away from dying. Heidi is anything but average, but in death, her numbers will align fairly well with the statistics.

She will leave behind a husband, Chad, who has been her best friend since forever. They were married 23 years. Chad and Heidi have two children – Ashley, 17, a high school senior, and Nate, 14, an eighth grader. Don’t tell me they’ll be okay. They won’t – at least not yet. Their momma is about to die.

Oh, Lord, I just don’t understand.

It’s NOT okay to lose your momma when you’re a teenager. I have analyzed this situation from every angle and I can find nothing that makes sense or eases the pain. And I think I could punch someone in the face right now who tries to tell any of us how God works all things together for the good.

There is no way this can be good. No way.

Unless, perhaps…. Unless I don’t understand what “good” really is….

As a family we have all wrestled with mortality and God and His plan throughout Heidi’s illness. But one night, while in a long nighttime wrestling match with God, I suddenly wondered if His idea of good is simply not the same as ours. Maybe He doesn’t have a Webster’s. Maybe when He Google’s “good”, He doesn’t read of the things we typically think of (health, wealth, prosperity, fitting into your size 6 jeans, sipping wine along the Cour Mirabeau in Aix-en-Provence, France…)

If God is good, and I have NO DOUBT He is, then His definition of good CANNOT be the same as ours.

Because, Oh, Lord, I just don’t understand you otherwise.

It’s interesting, but in my experience, the things that we typically think of as “good” and as our “blessings” are often the things that create a separation between God and us. They are things that, often unintentionally and often subversively, lead us to believe we don’t need a God. Things like enough money (or too much), enough food (or too much), enough vacation (or too much), enough or too much of everything, as well as the absence of disease and absence of trials.

Conversely, it is the sufferings of this life that bring us to our knees and to the place where we find our desperate need of a Savior.  And I believe that more than anything God longs to draw us closer to Him. He wants nothing more for all to come to know him and accept the saving knowledge of Jesus Christ as Savior.

So what if maybe, just MAYBE…., in God’s dictionary, “health” is not the absence of disease, but, instead, one who knows he/she is nothing apart from Christ, and that we live and breathe and have our being in Him alone.  Since God IS good, and longs to give us good things, MAYBE, “health” has nothing to do with our physical bodies.

Maybe, in God’s dictionary, “wealthy” does not refer to one who has a hefty savings and retirement account, drives a fancy car, and owns all manner of material possessions. Maybe being wealthy actually means to understand that friends, family and a purpose in life are some of the richest gifts offered to us. Maybe we’re rich when we realize how little we actually need “things” and start living more simply – when we have more time for people instead of accumulating and maintaining our “things”.

Maybe wealth is the opposite of what we always thought.

Maybe, in God’s dictionary, a “blessing” isn’t a concept we can actually get our heads around. Maybe, saying we’re “blessed” when referring to health, wealth, jobs, children and good fortune causes great pain to those struggling with cancer, infertility, unemployment, a prodigal son/daughter, rape, poverty, oppression, rejection, loneliness, etc. because it implies God has withheld His blessings from those people.

ESPECIALLY – oh especially – when we Christians suggest it is the LACK of faith that produces suffering in this life are we guilty of serious theological malpractice!

Are suffering people NOT blessed???  Are we able to escape all trouble and heartache if our faith is simply strong enough??? When people suffer from the evils in this world is it a reflection of their lack of faith???

Hell no.

It just can’t be. Or God is not good. God must have a different definition of “blessed” then we do.

Otherwise, God, I just don’t understand.

So, I decided to start reading God’s dictionary. I cannot make sense of Heidi’s passing any other way. I need a God who IS GOOD. One whom I can trust even when I’m angry at Him. One who IS PRESENT everywhere. One who doesn’t pick and choose favorites and grant the rich, the beautiful, and those born into first-world countries more “blessings” than the rest.

This is what I found in God’s dictionary:
“Blessed are the poor in spirit – for theirs is the kingdom of heaven.
Blessed are those who mourn – for they shall be comforted.
Blessed are the meek – for they shall inherit the earth.
Blessed are those who hunger and thirst for righteousness – for they shall be filled.
Blessed are the merciful – for they shall be shown mercy.
Blessed are the pure in heart – for they shall see God.
Blessed are the peacemakers – for they shall be called children of God.
Blessed are those who are persecuted because of righteousness – for theirs is the kingdom of heaven.” Matthew 5: 3 – 10

So as I resume this bedside vigil there are TWO things I can know for sure: Chad and family will be comforted. And Heidi, well, she shall soon see God, for she is truly pure in heart.

This precious family does not have the “blessings” that most people think of – they are in the valley of the shadow of death and this is an impossibly sad and difficult place. But, I’ve just GOT to believe that according to God’s dictionary, they are blessed indeed.

Otherwise, Lord, I just don’t understand. You just don’t make any sense to me.

And then the Lord said to me:
“Trust in the Lord with all your heart, and lean not on your own understanding.” Proverbs 3:5

Filed Under: CANCER, Glioblastoma, Popular, Prayer, Suffering, Terminal Illness, Uncategorized Tagged With: CANCER, DYING, HEIDI, Suffering

I Took A Bath With 10 Naked Ladies and I Loved It.

November 3, 2017 by Cindy DeBoer 13 Comments

IMG_4306I just returned from a visit to my second homeland, Casablanca, Morocco. I lived in that beautiful country for four years and never went to the hammam – the Moroccan version of a communal Turkish bathhouse where women and men (in separate quarters) go for weekly bathing rituals in a somewhat spa-like setting.

The experience always sounded terrifying to me because I was only aware of two facts: women walk around naked and an attendant scrubs you down from head to toe. No part of that sounded “fun” in the least. I don’t walk around my husband naked, let alone strange Muslim women.

On this particular visit, however, my friend Khadija tried to convince me into going to the hammam together. “It’ll be fun!” she said.

While still skeptical, I acquiesced to Khadija’s cajoling – mostly because she threw out the word “brave” when referring to westerners who try the hammam – and I SO want that word to define me…

Bring it!

After paying around eight dollars each, we entered the locker area and stripped down – leaving only our underwear on. Khadija explained that this was necessary because Islam forbids total nudity. I didn’t exactly feel “less nude” just because I had my little black bikini Target underwear on.

Khadija told me to just relax and “enjoy” the experience.

“Uh-huh. Okay, Khadija”

The bathing area consists of four connected rooms – each one large, bright, and cavernous with white and marble-y grey tile walls and ceiling, and white and grey swirled marble sinks, fountains and slab tables. Loud echoes bounced around the rooms from rushing water, splashing children, laughing women. This was most definitely a place to let your guard down and engage. I tried to let my guard down but couldn’t quite get past all the boobs. Every size, color and shape. Boobs for days.

One thing I know for certain about our God: He IS a creative.

We walked through a large room that had at least a dozen marble sinks around the perimeter, each with hot and cold faucets – many of them running freely without anyone nearby. They do not worry about wasting water at the hammam. There were several naked women sitting on little stools at some of these sinks. They each held a small, brightly colored children’s sand bucket in their hands and were either soaping up their bodies or dumping water over their heads with their buckets. Water was overflowing the marble sinks and flowing loudly into a drain in the center of the room.

A couple of little girls were splashing around in the water streams. No one seemed to really notice us. Everyone was just so matter-of-fact going about their cleansing business. Still – I couldn’t help but feel like a white sheep who had just walked into the black-sheep pen.

Khadija and I walked through the sink room and entered the sauna room. Its purpose was to sweat-open our pores so the scrubbing we were about to receive would be the most effective.

In the sauna, we also personally scrubbed down our bodies with this soft, pasty brown soap that every Moroccan uses every time they visit the hammam. I don’t know why they do it, they just do. Sometimes it’s best not to ask too many questions. As I was soon to discover…

After the sauna, my “attendant”, Souad, came to greet me. She was thrilled to have an American as a client! She said, “Me. I speak English!” I said, “Wonderful! I’m so relieved! I don’t speak Arabic!” And she said, “Nice you speak Arabic.” I said, “No, I said I DON’T. I only speak French. We used to live here and I was able to get by using only French.” And she said, “Nice you live here someday.”

I held back, but so wanted to say, “You. You no speak English.”

But, as it turned out, it entirely didn’t matter and it in no way affected my experience.
Souad brought me to yet another room where there were six or so marble slab tables. At the head of each table was a hand bar. I never read the book or saw the movie of the same name, “50 Shades of Grey” – but it was, honest to goodness, my first thought of use for that bar…   I looked at the other women being scrubbed down on their marble slabs – and sure enough, their arms were up over their heads holding onto that bar for dear life just to keep from slip-sliding off the wet tables as they were vigorously scrubbed down.

I had to dig deep to find my bravery at this point.

Souad had to clean the marble table first from the previous bather. So she hosed it down and took her arm and swept away any excess water on the table. Third world living had definitely taught me how to do “mind-over-matter”, so I quickly deleted from my mental hard drive all that I had learned in nursing school about sanitizing equipment and everything I knew about proliferating germs from working two years in Infection Control at Spectrum Health. I did not want to be hindered from “enjoying” this experience due to unnecessary knowledge…

There. Gone from memory. Brave again! Let’s proceed!

Souad wore a harsh, gritty scrubbing glove on her powerful right hand. It was only slightly less abrasive then the SANDPAPER I had used on the plastered walls of our Fixer-Upper! Souad squirted some warm oily soap over one small area at a time and with hands more muscular than most men, she scrubbed me down. At first, I felt the scrubbing to be a wee bit painful and I was searching my vocabulary for some Arabic words to tell her to “chill out a little, would ya?” – but after a few minutes of more mind-over-matter and mentally replaying Khadija’s words of advice, “Just enjoy yourself”, I began to relax. Soon, I forgot I was naked and that a stranger was scrubbing every nook, cranny and crevice of my body. She yanked my underwear up and down to be sure to reach every hidden part – (except, of course, the unmentionables because of that part of Islam….). She yanked so hard on my underwear that the elastic burst and I had to hold them up the rest of the time.

She scrubbed my front side. She held my legs high in the air, she steadied them one at a time in her armpit to wash the interior side, she held them off to the side, jerking me into positions I didn’t know I could do – all to access every square inch of my body. She rolled me over and scrubbed my backside. She went back over my legs and arms several times – even seeming, I think, a bit frustrated as she increased force.

It wasn’t until I sat up that I realized what exactly had transformed for the past half hour. I was surrounded by a pool of grimy, dirty piles of skin. MY grimy skin! What the @#%*!? Have I never washed myself??? Do I not shower every day??? What the heck AM I doing in the shower if I actually have this much grimy residue left behind?

I wanted to gag. I also wanted to run away from embarrassment. I didn’t even want to make eye-contact with Souad for fear that she was gagging, too. I tried to think of a quick lie that might explain why I was so dirty, like, “Well, you know, I just returned from a month-long camel trek in the desert with no water available for bathing…” But I realized Ms. Souad the “English speaker” wouldn’t understand me anyway.

It wasn’t until at least an hour later when I finally found a mirror that I realized what had happened. I was at least two-shades lighter. Whiter. Souad had simply scrubbed off the tan that I had spent all summer trying to acquire. I said a quick prayer hoping the body scrub also removed the negative carcinogenic effects of the sun…

After the scrub down, Souad took me to yet another room, where, instead of marble slabs, there were padded massage beds. Again, she “cleaned” the bed by hosing it down and wiping off the water with her arm. I clenched my saggy underwear with one hand and climbed on the bed. With one strong shove, Souad rolled me to my stomach and stretched my arms above my head. She then proceeded to apply some kind of grey mud that smelled like lavender to my entire body. And she massaged me – from freaking tip of my head to freaking tip of my toes. And here, here is where I nearly fell asleep and entered some kind of nirvana. I forgot where I was and I didn’t care that I was naked with nothing but stretched out underwear on. I didn’t care that Souad and I couldn’t communicate or that she had probably seen more terrain of my body than my husband. I didn’t care about anything anymore.

This was bliss.

From the massage table we went to the sink room and washed our hair and dumped water all over ourselves with those colorful little plastic buckets. It was kind of tricky as I had to hold up my underwear with one hand, but it was like a bunch of grown women playing in a splash pad/water park. I loved it. I stopped noticing boobs.

After the splash pad, we showered in traditional showers. To my memory, this made the fifth full-body washing of the day. We ended the experience by wrapping up in towels, grabbing a cold drink from the desk attendant and sitting in lounge chairs while watching Arabic MTV for about half an hour. My body a calm, contented, noodle – I could have easily fallen asleep. I couldn’t remember the last time I had been so relaxed.  We sipped our drinks and laughed about our aging bodies, confessed how we sometimes screen phone calls and ignore texts, and talked seriously about Middle Eastern politics for a while.

I ended up tipping Souad about the equivalent of her day’s wage. Again, I didn’t care.

Souad is some kind of soul-sister to me now.

Lastly, Khadija reassured me that everyone leaves behind piles of grimy skin – even when they are visiting the hammam weekly and that’s how you know the attendant did her job well! She also hypothesized that Moroccan women have less issue with body shame and striving for unattainable goals of body perfection because they grow up in the hammam observing the real female form. They develop a solid sense of self from seeing “normal” female bodies far more than observing those airbrushed models on the lying covers of magazines. I had to agree. She also told me to feel my skin and said, “Feels like a baby’s bottom, doesn’t it?” She also said we should go to the hammam together more often.

I couldn’t agree more, Khadija. I couldn’t agree more.

And here’s the thing: I think Moroccans are on to something with this whole hammam-gig. In addition to the “reality-check” it serves women with body image, I think the whole experience is also far more about bonding with girlfriends, getting real with one another and eliminating relationship inhibition than it is about bathing.

And we see this in other cultures, too:

Our oldest daughter is in her first year at university. She lives in the dorms and they have community bathrooms. She says the best bonding moments come in the bathroom – sometimes with tunes blaring, dancing in their bath towels and singing into toothbrush microphones; other times it is serious conversation with shared tears and prayers – but somehow, beautifully, these college girls develop intimate lifelong friendships in those bathrooms.

There’s something about being naked literally that makes one dare, but also want, to bare their souls as well. And it seems to me that sharing of our souls with a couple of our safe, bestie girlfriends is essential to becoming whole.

Hammam anyone???

Filed Under: Joy in the Journey, Life Overseas, Morocco, Muslims, Uncategorized

13 Reasons Why I'm posting dog poop and not prom pics

May 30, 2017 by Cindy DeBoer 7 Comments

grace pics 095The Netflix hit series, 13 Reasons Why, has created a maelstrom within the media, parental circles, and my mind. The show is essentially about teenage suicide but largely focuses on bullying and teenage angst. Because of my profession as a psychiatric nurse, I wrestle with these things often. Out of curiosity, I watched the show and lost a lot of sleep mulling it over. The best review I’ve read and the one I most resonate with is from Jamie Tworkowski from “To Write Love on Her Arms”. You can read his summary here.

To help sort things out, I consulted my 16 year old and asked her, “What makes kids bully others?”

She said, “They think they’re ‘all that’ – they’re usually the popular kids.”

So I asked her, “What makes kids popular?”

She said, “Bullying others.” (She’s one part smart and two parts cocky.)

“But why?” I asked, “Why do they think they need to do that?”

She said, “It’s classic psychology, mom. Weak people feel they need to put others down in order to elevate themselves. Strong people are secure in who they are and don’t have any need to adjust other people’s perceptions.”

Ahhh – so once in a while she DOES listen to what we’re telling her…

But her choice of words continued to haunt me: “Strong people are secure in who they are and don’t have any need to adjust other people’s perceptions…..”

And I’ve been vexed ever since about what to do with my own social media – the KING of all perception adjustment. I long to be strong and secure, but, at the same time, I had been accumulating all kinds of clever and envy-worthy pics and posts this spring – just waiting for the exact right time to unload them on all my “friends” and “followers.”

I started to wonder if my “friends” and “followers” were more my “victims.” I started asking: How might my social media posts potentially cause harm to others? And when I answered myself honestly (I’m really good at lying when it comes to myself), I realized many of my posts could be considered bullying – making others feel bad about themselves or their situation. It depends who’s looking at it and from what perspective.

But still.  I decided to desist from social media for a while.

That is, until my dog pooped on our rug.

Here are the 13 reasons why (in David Letterman fashion) I felt POOP was worthy of my social media feed:

  1. My friend’s daughter, a senior, did not go to her Junior/Senior prom. Not only did she not have a date, she didn’t even feel she had any girlfriends with whom she could attend. She told her mom that prom night was one of the saddest nights of her life. Hearing this, I knew I could no longer post my daughter’s prom pictures. I know we all want to believe that our “friends” and “followers” want to share in the joy of ALL our good news. Yet, studies consistently find that, for most people, a steady diet of viewing all the things other people are doing will actually INDUCE isolation – the exact OPPOSITE of a “social” media. Sometimes, when we think we’re sharing happy news, it’s really throwing daggers.
  1. One of our kids had their heart shattered this past year – a wound so deep, that many months have passed with very little healing. And when the heartbreaker posts pics and captions revealing a life of joy and new love, my child’s wounds reopen. We simply were NOT meant to see and know everything – and all this access to information that we’d be better off without is making us miserable. I don’t have the answer. Parents, should we cut our kids off from social media? Do we throw their phones away? How do we give them nerves of steel to deal with the barrage of images that are undoubtedly way more information than the human psyche can handle? How do I get those nerves of steel? I don’t know – but this cruel media world is why shows like 13 Reasons Why exist. I wish I had a better answer – but I just think sharing a lot more pictures of doggie defecation wouldn’t hurt.  Life is poopy sometimes.
  1. I have never once posted a photo of a family vacation or shared some terrific news and received the response of “Ah! So glad you shared this! Now I know I’m not alone with my incredible life! I feel so much better knowing your life is as perfect as mine!”  When life is going swimmingly, people aren’t generally lonely.
  1. Vulnerability precedes intimacy. We cannot REALLY get to know and understand one another until we know each other’s pain. I realize social media is not the venue to find REAL friends, but, when we share glimpses of reality, photos of hard times, and stories of suffering, our “friends” will see we are REAL and maybe, just maybe, we’d start feeling less alone. Maybe that would put the SOCIAL back in the media…
  1. I cannot take a decent photo to save my life. Social media makes those of us who stink at photography appear headless, washed-out, wrinkly, or red-devil-eyed.   Dang – I hope I’m not all those things…. but it feels like just because we sucky photographers don’t have a $1000 camera and a creative eye, we appear “less than.” I say we need SOCIAL MEDIA REFORM – where sucky photographers get Disney passes or something.
  1. Commonly heard among the young today, “Need a pic or it didn’t happen!” This is our culture – everything must be recorded and shared for verification. So, logic says, most people never have anything bad happen to them. No pics of hardship must mean no hardships have happened. But we all know better. So what will it take to get real with one another? Is it possible to put HONESTY into social media???
  1. I sat by a mom I had never met before at my daughter’s recent graduation ceremony. With tears in her eyes, she shared how she never imagined her son would make it to graduation. He has both a learning disability and social cue deficits – but no one would know this by looking at him. When her son walked across the stage, I cried. When my own daughter walked across the stage, I just smiled – because she was always expected to graduate and to do well. Why do we insist on sharing photos and stories of life-things that are totally EXPECTED?

When we learn of one another’s burdens and hardships, we get to experience in the joy of being overcomers – one of the greatest gifts Christ’s death on the cross affords us.

  1. When I wrote about our piece-of-crap house and the trials of fixing-up a fixer-upper (here), I received responses from thousands of people all over the world. They were all experiencing the same thing – DISILLUSIONMENT from HGTV, home magazines, Pinterest, AND social media pics of everyone’s beautiful homes. This has become a huge area where we are (often unknowingly) inflicting inferiority on one another. By constantly posting our beautiful, clean, and perpetually updated homes, we seem to be conveying the message, “I have it all together – and you, OH LOWLY YOU, with an unfinished basement, with weeds in your landscaping, with mounds of laundry in your hallway, with cobwebs in your corners, and with the PVC piping still spanning your sunroom ceiling which the previous tenants had used for stringing cannabis (or wait – that one MAY be just me….), you are such a mess, YOU LOWLY YOU.”

I actually want to see your laundry room on laundry day. I want to see your daughter’s room after six weeks of simultaneous soccer and musical practice. I want to see your kitchen after making a mother’s day meal. I want to see your bathroom after a full week at work. I want to see your garage the day after a garage sale. I want to see your basement storage rooms.

Because I desperately want to feel less lonely.

  1. At work at the psych hospital, I often ask my patients “What are you finding to be the most helpful part of your therapy here?” Hands down, the most common reply is this: “Listening to, and sharing with the other patients. They get me in a way that none of you (staff) can.”   Ah-ha!
  1. Every dog poops. Every dog owner, every day, picks up dog poop. It’s disgusting. But for me, taking a plastic Meijer bag (which, in and of itself, is abhorrent because you have to deal with all those angry stares from the granola moms at the Meijer check-out when you actually request plastic bags….) then turning it inside out to make a glove for myself, reaching down and grabbing my dog’s fresh, warm poop has to be one of the lowest points of my day. BUT, my days have descended to an abysmal low when said dog poops INSIDE our home – which, as she ages, is happening much too frequently.

Dog poop on our rug is one of the milder stories I could share from our lives right now – things have been pretty bad around here lately – but this is where I thought I’d start.  I almost kicked my dog today.  Almost.  I DIDN’T DO IT, OKAY?!?!  I’m just so sick of crap on our rug!!!  My life is light years away from glamorous, and right on the very edge of repugnant.  Is it just me? I’d be lying if my newsfeed reflected something different.

  1. Vulnerability precedes intimacy. I know I already used this one for #10. I’m just checking to see if you’re still reading (REAL bloggers say you should never write more than 1500 words. I’m already at 1600… but hang with me – the last 2 reasons are the best.)
  1. Some of my lowest, most lonely moments in life came right after getting my diagnosis of Lymphanegieoleomyomatosis (LAM). It’s so rare – only a small handful of us women in Michigan have it, and a not much bigger handful in the whole USA. There was no one living near me that I could talk to. And then…. then, I met my Facebook LAM family! Over 2000 women from all over the world connect via this forum. And I suddenly knew that I could deal with this sucky, lung-sucking, sucker of an illness – because ALL of them were dealing with it, too. Those women from all over the world have given me strength.

It sucks to have to talk about your illness on social media. But now even my sister’s family is deriving comfort, prayers and community by sharing her journey of brain cancer on social media. Posting about your “crap” really does help – in some cathartic, Jesus-y, miraculous way.

  1. The old proverb, “Misery loves company,” is incorrect. It should be, “Misery NEEDS company.” We were not made to do this life alone. It’s often the isolation and accompanying sadness that brings some people to take their lives. We NEED to help each other feel less alone. We NEED to share our sufferings. We NEED to become vulnerable with one another. And then maybe, just maybe, people will see they are not as alone as they thought. And maybe, just maybe, we will put the “social” back into our media. And maybe, just maybe, someone will decide to keep pressing on in life instead of the alternative.

Filed Under: Lymphangioleiomyomatosis, Parenting, Suffering, Suicide, Uncategorized

Screaming into Nothingness (when God disappears)

February 17, 2017 by Cindy DeBoer 20 Comments

Christmas moimages-2rning. As our girls tore into their stockings hung by the chimney with care, the phone rang. The phone call that changed everything. From now on, life will be defined as either “before” the call, or “after” the call.

My 45 yr. old sister had been rushed to the hospital after waking up with right-sided paralysis, vomiting and headache.

We’re a tight family. Without a second thought, we trashed our Christmas plans and bolted up to the hospital as well. And by “we” I mean, everybody – Grandmas, aunties, uncles, brothers, sisters, kids, and cousins. Someone pointed out how we must have looked like the Bravermans in the final episode of Parenthood.

Together, we exited this comfortable and familiar world called “normalcy” and were forced to enter a foreign galaxy called: “Neurology ICU”. Here, no English is spoken. Here, the air is thin and breathing is difficult. Here, minutes are hours and waiting becomes your livelihood. Here, appetite’s no longer exist. Here, sleep is stolen in 10 minute increments – in chairs – next to strangers who smell as if they haven’t showered in days. Here, you don’t remember if you’ve combed your hair or changed your underwear or brushed your teeth – but also, you don’t care. Here, you cry a lot.

ICU. IV. CT scan. MRI. Decadron. Dilaudid. Emesis. Norco. Emesis. Toradol. Emesis. Hemmorhage left parietal lobe. MRI. CT scan. PET scan. ICU. Tumor in eloquent area of brain. Differential diagnosis: Glioma. MRI. Surgery. MRI. ICU. EEG. Seizure? EEG. MRI. Diagnosis: High-grade Glioblastoma.

Welcome to our newest Galaxy: Brain Cancer.

And the common denominator of all those gathered in this galaxy? We are lost. None of us know our way around here. None of us know what to say, what to do. None of us know what we want, what we need. None of us know what questions to ask. None of us want to go home, none of us want to stay. None of us can eat.

None of us can pray.

None of us feel God anymore. We are told He inhabits this galaxy, too – but it doesn’t seem possible. There is so much pain and suffering and heartache and anguish here – this feels more like hell. God cannot inhabit hell, can He?

We wail and cry and mourn in this galaxy. It’s the only thing that comes naturally. And our cries turn into screams. And we scream into what feels like nothingness…

And yet…..

And yet….. our phones were lighting up from all the saints – the incarnate Jesus people – saying they were praying and giving us scripture to hold onto.  All the things we could not do.

Screaming into nothingness was all we knew to do. But the Jesus-people took it from there:

  • If you’ve ever hit “like” on the Facebook post for the hospitalized person simply to show you’re out there and you care – it mattered.
  • If you’ve ever typed the simple word, “praying” on a carepages post – it mattered.
  • If you’ve ever dropped off bar-b-que on the porch of someone going through a crisis because you know they’ll eventually need it – it mattered.
  • If you’ve ever just showed up in the ICU waiting room with a basket-full of munchies and a tray full of subs – it mattered.
  • If you’ve ever awaken in the middle of the night and thought of someone in a crisis and then prayed for them – it mattered.
  • If you’ve ever felt God supernaturally gave you scripture to be shared with someone in crisis – it mattered.
  • If you’ve ever just hugged someone – really hard and really long – because the deep pain of the situation left you with nothing to say – it mattered.
  • If you’ve ever brought food to the home of someone in crisis even though they said they didn’t need any more – it mattered.
  • If you ever sent a “thinking of you” card – even a lame, dusty, covered-with-pink-grandma-style-peonies, cheap one that you resurrected from the bottom of your “card drawer” – it mattered.

When lost in the galaxy of brain cancer – or lung cancer, or breast cancer, or any cancer for that matter; or divorce, or reactive-attachment disorder, or death, or job loss, or the rejection of adult children, or alzheimers, or heart failure, or marriage infidelity, or financial ruin, or ALS, or any other crisis that launches you from earth – you cannot find your own way back. You truly are lost. And you cannot pray.

And the thing is, you’d stay lost in that galaxy forever – screaming into nothingness forever – if it weren’t for the Jesus-people who stepped up and prayed. In a crisis, the Jesus-people aren’t praying with you, they are praying for you.

I wonder.

I wonder if the Holy Spirit speaks through the prayers, the actions, the cards, the hugs and the bar-b-que, of the Jesus-people and if that’s what this scripture means:

“In the same way, the Spirit helps us in our weakness. For we do not know how we ought to pray, but the Spirit himself intercedes for us with groans too deep for words.” Romans 8:26

Filed Under: CANCER, Glioblastoma, Prayer, Uncategorized

Will Muslims, Mexicans, and My daughter be forced to wear visible ID badges?

January 27, 2017 by Cindy DeBoer 4 Comments

I recently met an Armenian woman. She wore the traditional hijab and jellaba – the head covering and long flowing coat typical for Middle Eastern women and often associated with Islam.   Her skin was dark tan and her deep brown eyes were lined with kohl. She looked strikingly similar to every other Muslim woman I had met while living in Morocco. But instead of following the teachings of Muhammad, she worshipped Jesus.
images-1Selma is a Christian – yet dressed in the traditional Armenian attire encouraged by her Armenian Apostolic church . She educated me on the plight of Armenian Christians from Turkey.  Selma’s great-grandparents fled the country in the early 1900’s escaping a violent genocide under Ottoman rule, making Selma a fourth generation American.

She shared how she is still persecuted here in America. She has been scorned, mocked, spit upon, and even been rejected service in restaurants and stores – and it is NOT because she’s Armenian, it’s because she LOOKS like a Muslim. And today, she wakes up in a country with a president who considers Muslims one of our biggest “problems”, who’s refusing to accept Muslim refugees, and whose inflammatory speech does more to fuel fear toward Muslims than anything else.

She’s a legal American citizen, with a prestigious career. She pays her taxes, lives peaceably in her neighborhood, and practices the same religion that the majority of people in America say they do: Christianity. And yet, because she looks like the people group that American’s are growing to fear the most: Muslims, she is treated harshly – even discriminated against.

She said, “I know it’s just because no one can tell from the outside who I really am.”

**********

At the inner-city junior high where I volunteer, we watched a film on the life of Corrie tenBoom. Corrie, and her entire Dutch family, were sent to Nazi concentration camps for hiding Jews in their attic during World War II. After viewing the film, I debriefed with three 8th grade girls and asked them, “Do you think something similar – the systematic persecution and extermination of a people group – could happen today?”

A Mexican girl in my group immediately replied, “Absolutely. My parents [who speak very little English] are so afraid of being deported to Mexico. We are not illegals. But how will they know? Since we are Mexicans and immigrants from Mexico are being blamed for many of the problems in this country, it only makes sense that we’ll get blamed, too.  My parents say they already get a lot of dirty looks from white people. They think that someday we’ll have to wear an ‘M’ on our clothes. You know, to like mark us as legal – so people won’t be angry with us and try to deport us.”

I told her I didn’t think she had to worry. After all, her family IS legal.

She said, “Yeah, but how will ‘they’ know that?   No one can tell from the outside who I really am.”

**********

I shared those concerns from my Mexican-American student at the dinner table that evening. And my Guatemalan-born daughter asked, “What about me? Do you think I’ll have to wear an ID-badge of some sort?”

I told her no way. She was adopted at birth. She’s an American citizen. She is American in every way.

But she replied, “Yeah, but how will ‘they’ know? No one can tell from the outside who I really am.”

I couldn’t answer her. She’s Guatemalan – but could easily be Mexican. She’s adopted – but unless she’s walking beside her all-white family, you’d never know it simply from appearances. I can protect her from being deported, certainly, because she IS legal. But the fear in her eyes betrayed her. She’s awakening to the fact that the “they” she actually needs to fear isn’t the government – it’s those who are looking for a people-group to blame, someone to take umbrage with. And I can’t protect her from that. She looks just like the people that “they” say are the problem.
slovak-jews-with-star-of-david

The Third Reich of 1930’s Germany forced Jews to wear the star of David badge to not just humiliate them, but to keep close watch over them and to facilitate in their deportation. It was an effective way to distinguish between people groups when judging by appearances didn’t work.

As the political, ethical, religious and racial divide in this country continually grows; and as more and more people feel their freedoms, their money, and their security are actually threatened by a few distinct people groups; and being that my daughter looks JUST LIKE one of those people groups – I’ve really had to wonder: Is she safe here? Do I need to have my daughter wear an external ID to show the public she is “good”? Maybe a letter on her clothing – something like an “L” for legal, or “A” for adopted, or “S” for safe? How else will people know? How else do I help her feel safe?

Then it hit me:  The only other reasonable solution is to mark ALL THE OTHERS – those from the people groups that we, as a country, have deemed “the problem”.
The absurdity of that thought – and its frightening similarities to 1930’s Germany – is not lost on me.

**********

She’s an Armenian Christian – but she looks like other Muslims and she has received death threats.

She’s a legal third-generation Mexican-American – but she and her family could easily be taken for illegal Mexicans. The condemning glares already judge them.

She’s my adopted daughter from Guatemala – but she could be any illegal’s child. And she’s afraid she’ll be treated differently now.

**********

It’s not the government that these women need to fear. Whether we agree or not with the sweeping statements that have been made regarding entire people groups identified as “a problem” – the truth is, if so desired, the government CAN and WILL deport certain people and also create ways to keep other people out.

I’m mortified that my country is doing these things. But that’s not the REAL problem here. The problem is our ATTITUDE to those who are different from us. The problem is that we, the American public, are traveling a dangerous path towards ethnic cleansing. It begins with finger-pointing – “THOSE people over there – THEY are the problem!”

The finger-pointing inevitably turns into actions, “We must build a WALL!” or “We must ban all Muslims from entering!” or “We must make a public list of all crimes done by foreigners!” But those actions will lead us to a false sense of security and so whenever something goes bad in the land, we will only be left to find more people to blame. We’re adopting an “Us” vs. “Them” paradigm and creating a growing chasm between the two.

And all that propaganda leads to fear.   As our president continues to stir the pot of blaming and shaming, he incites more fear. And hate inevitably follows fear. It’s eerie how quickly and easily we resort to hating that which we fear.

*********

My daughter and my Mexican student and my Armenian friend do not need to fear their government, or their comb-over president, or being deported. What they legitimately need to fear – and it’s already proving to be true – is simply the hate from other Americans.

We have become our own worst enemy.

“If a kingdom is divided against itself, it cannot stand.” Mark 3:25.

Filed Under: Adoption, Armenians, Guatemala, Immigration, Muslims, Uncategorized Tagged With: Donald Trump, Immigration, MUSLIMS

Teens: Want a tattoo for Christmas? How to get Mom to say "Yes":

December 1, 2016 by Cindy DeBoer 2 Comments

When our daughter Grace turned 16, she wanted a tattoo. She wanted one bad.

I had always believed tattoos were a terrible idea. First, the Bible says so (aka – a Christian’s favorite way to shut down a conversation…) And also, I felt God created us the way we are – with clear skin and no ink because He liked us that way and didn’t feel His handiwork needed to be improved upon.

However, those arguments don’t work. The Bible does mention tattoos (Leviticus 19:28), but if Christians today accept that passage as timeless law, so too, would we have to observe the following:  No eating shellfish or pork – locusts, crickets and grasshoppers, however, are encouraged.  No wearing any type of blended fabric and bathing after sex would be mandatory.  Men would also have untrimmed beards and be allowed many wives.  And women – oh my – we’d be killing turtle doves and pigeons left and right as we lived up to the host of rules regarding childbearing and menstruation!   No – I most definitely do NOT want to keep Levitical Laws!

We cannot pick and choose which old testament laws we’ll follow – either they are contextual and not explicitly meant for us today, or, we must agree to them all. Additionally, if God didn’t want us to improve upon His creation, why do I not object to make-up, hair-cuts, ear-piercing, and working out?

My arguments against tattoos were weak at best. But I still thought tattoos were stupid.

Then Grace asked for one. And she presented me with a well-thought out proposal that was difficult to refute. She reminded me of the following story that happened to some dear friends of ours:

Our friends had raised their children in a solid Christian home and taught them all the tenets of the faith. After highschool, however, their oldest son rejected Christianity. He chose to live life on the edges – doing all the things Christians consider “big sins”. When numerous problems began mounting in his life, his father tried to reason with him: “You know, son, I think if you returned to your faith you would find life easier. I think you’re making life harder than it has to be and coming back to Jesus would help.”

His son’s response was legendary. He whipped back with this retort: “Are you KIDDING ME?? No way, dad! Right now, I’m choosing the easy way! I’m choosing to live my life MY WAY!  If I were a Christian, THAT’S when my life would get difficult – because I would follow Christ with ALL of me. I could never be like all the Christians I know – who pick and choose the parts of Christianity they want to follow. No way. I’d be ALL-IN. I’d be BALLS-TO-THE-WALL, dad. I think life should be hard for a true Christian – not easy. For me, there’s no compelling argument to follow Jesus because I just don’t see anybody living ALL-IN.”

When the father shared that story with us, he said, “He had me. He’s right, you know. Not many Christians really do live ‘all-in’ and ‘balls-to-the-wall’. It really isn’t a compelling movement to follow when most people only follow it half-heartedly.”

So….. Grace reiterated this story and then lays this on me: “I want ‘ALL-IN’ tattooed on my wrist. I want to be constantly reminded to live for Christ – all of me – not just part of me.” She had given it serious thought, and wanted “ALL-IN” written in Arabic because it would remind her of when we lived in Morocco and she felt the most “all-in”.  She wanted it on her wrist because that is where the nails were driven that held Jesus to the cross.  She wanted the lettering facing HER, because this was HER reminder:  to live so ALL-IN that her Christian faith would compel others to follow Christ, too.

At least she wasn’t asking for a “BALLS-TO-THE-WALL” tattoo…

She started asking for the tattoo when she was sixteen. And Paul and I both said no. No way. We refused to let our lovely olive-skinned, underage teen daughter get inked. We have two surf-loving, guitar/drum playing, fairtrade-coffee-drinking, long-haired hippy sons in their young twenties and they’re not even inked yet.

I told her to go read Leviticus 19:28. Proof! KaPow!  (maybe she wouldn’t notice the parts about beards, wives, and menstruation…)

She told me to go read 1 Corinthians 10:31 and Romans 10:4

Touche’

I told her I’d think about it.

And her pursuit of that tattoo only built momentum over the coming year. If she ever fell short of the character we believed she had within her, she would say, “Well maybe if I had a tattoo to remind me of how to live…..”

She would often point out revered friends and/or popular role models who had tattoos and then ask, “Do you think [that particular person] lacks good judgment?”

She was good at this. Really good.

But as her 17th birthday inched closer, she hit me with the winning stroke:

“Mom, you know how the Bible says that our bodies are like temples? Well I was thinking – we find it perfectly acceptable and even good and necessary to adorn the temples, or churches, with things like stained glass windows, beautiful architecture and ornate carvings. And we believe this to be good because all of if should point others to the holiness and beauty of Christ” (I started to regret that we had taken her to numerous grand cathedrals all over Europe and Central America…) “Well, the way I see it, if we tattoo our bodies with beautiful art, or any symbol that points us or others to Christ, we are really trying to accomplish the same purpose. Only this is with our body-temples, not the building-temples. I think tattoos should have meaning. They could be art, or words, or symbols, but their meaning would be to remind ourselves or others that we serve a creative God, who delights in beauty, and is somehow glorified when we create beauty.”

She had me.

So on her seventeenth birthday, I took her to get her first tattoo. And I got my first one, too:
img_2991

Filed Under: Morocco, Parenting, Tattoos, Uncategorized

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