Cindy DeBoer

Terminal Illness

Six Critical Life Lessons Learned from a Hacker

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I was furiously typing away – hoping to complete another chapter of my book in the two hours I’d managed to wrangle free. Suddenly, a warning popped up on my screen, “CAUTION! You have a virus attacking your computer! Stop immediately and call Apple: 555-5555” (the title of this blog should let you know why I’m not sharing the actual number…)

I’ve heard of these scams. I wasn’t born yesterday or over fifty years ago (okay – a tiny white lie with that one…). But I did know enough to be skeptical. I tried to exit out of the pop-up. No luck – it wouldn’t close. I tried to close all my windows and the Apple wheel of death appeared refusing to budge. So I decided to just shut my computer down (my go-to solution for techy issues). But the computer had totally froze and when I hit the off key it started screaming at me – an unearthly, loud and high-pitched alarm. I frantically tried to stop it by pushing every key on the keypad. Nothing. Totally frozen keyboard and a shrieking computer that hurt my ears.

It felt like satan himself was communicating to me from my computer. (Hmmm…. Now there’s a thought!)

I asked my daughter to quickly access her own device and ask Google if this was a legitimate warning and if I should call the “Rescue” number flashing across my screen. Google isn’t so smart after all: the first thing to appear in her search was an affirmative – Yes, indeed, sometimes Apple will alert you to viruses that are attacking in real time.
So I hurriedly called the number and talked to Rashid. (I know, I know. I know what you’re thinking… the fact that Rashid could barely speak English should have, possibly, been my first clue….) But at first, Rashid was super sweet and helpful. He calmly walked me through the steps necessary to stop the screaming alarm. Then he explained a few more steps that would allow him to interface with my computer, which, he said, was necessary to diagnose the problem. I watched, helplessly, as he navigated the cursor on my screen and moved quickly in and out of windows and in and out of my settings. Then he confirmed my computer had, indeed, been attacked by a wicked virus. The very worst, he said. He pulled up graphs on my screen depicting the damage and just how much of my data had been infiltrated. He said to remove all the infectious material would take about 24 hours and all I had to do was pay $79 and he would fix the whole darn thing.

What a doll, that Rachid.

I may look old and stupid, but I tell you what, once in a while, when the thing is wretchedly stinky, I’m able to smell a rat.

I hung up on Rachid as fast as you can say “India” and slammed my computer shut. I set it in the corner like a bad child and didn’t open it again for 24 hours. The truly honest and genius boy-child at my local computer store fixed everything the next morning in mere minutes. He felt pity for such an old, helpless lady like me to be taken so badly by a hacker that he didn’t even charge me for his services.

Once I calmed down from the debacle, I realized I was actually thankful for everything I learned from Rachid:

1.  We are not in control of squat. As I watched Rachid guiding my cursor all over the screen and clicking away to “convince” me of my desperate need of his services, I felt incredibly helpless. I didn’t know if I should trust him or not – all I knew is this: “I have no control anymore.” It reminded me of how often that is true in life. We want to believe we can control things – but when our child rebels and runs away from home, or our best friend betrays our trust, or we lose our job, or we get the “cancer” call, or we lay our parents down for their eternal rest, or we find out we have a stupid lung disease that’s robbing us of steady breathing and a long life – well, all those moments serve to remind us that we don’t control SQUAT. We are wasting our time and energy trying to control that which we were never meant to have reign over.

2.  Satan is real. A while ago a well-meaning friend told me I look for satan under every bush. She was suggesting that perhaps I give the enemy of our souls more credence than I should. I don’t know, maybe I do. Sometimes I think I just watched too many horror movies in junior high…

But what I know for sure is this: That old Liar roams to and fro looking for ways to steal our joy and wreck our faith in Christ – but the sooner we recognize his schemes the sooner we can put a stop to it! Don’t be afraid to ascribe evil to he who authors it!

3.  We never make good decisions when in the midst of a crisis. When we find ourselves in a crisis, we need to, if possible, BACK AWAY! Give the thing time to simmer down. We need to give ourselves some space to slow our breathing, gain composure, pray, and THEN process the crisis thoughtfully. Only then can we gingerly step forward into finding a solution.

4.  Real, authentic, caring help truly does exist in this world. Go seek it.

5.  Never think too highly of yourself. I was devastated thinking that while Rachid had access to my computer for those 24 hours he was probably reading and stealing all of my information on my computer. My wise, gentle hubby had to (carefully) remind me that I’m not THAT special. We don’t work for the government, we’re not made of millions, and we’re not famous – so what could a hacker really “steal” from my computer that would matter? A blog on how we renovated a crack house??? The little circular I wrote on how to deal with menopause??? The poem I wrote for my dying dad??? Did I really think some hacker from India would steal my Christian memoir book and somehow get publishers to do what I have been unable to do and publish my book under his pseudonym??? Rachid becomes Rachelle and suddenly he is the next Anne Lamott???

 I had to admit, Paul had a point…

6.  If you have nothing to hide, it doesn’t matter who looks at your stuff. Without a single incriminating photo, without essays bashing high-profile people, without massive wealth, and without anything to share except the gospel of Jesus Christ, I should have had NO FEAR of someone stealing my content. In fact, I should have HOPED they would!

My prayer for us today is to not fear the hacker – or anything or anyone set on destroying us. May we be a people unafraid or unashamed of someone looking at our computer content or our browsing history. May we recognize those who are bent on causing pain, hurt and chaos in our lives and STEP AWAY from them whenever possible. And may we not think so much of ourselves or our work that our computer carries more importance than it should.

And may we never forget that when a TRUE crisis arises (and they will, brothers and sisters, they ALWAYS do….) help is only a shout away:
“Hear my cry, O God, listen to my prayer; from the end of the earth I call to you when my heart is faint. Lead me to the rock that is higher than I, for you have been my refuge, a strong tower against the enemy.” Psalm 61:1-8
 

Is it possible that snow in April, stupid lung diseases, and other atrocities could be good for us?

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We lived in the most glorious, sunny, mountainous and palm-treed locations both times that we lived abroad. Aix-en-Provence, France and Casablanca, Morocco are two dreamy places to have once been called “home”.

While living abroad, we met people from all over the states, as well as from around the world. Then we all moved on and returned to our “homeland” which means we now have friends scattered around the globe.

Visiting some of our friends in Southern California for the first time changed everything for me and my “Best Places In the World to Live” list. To be honest, my first thought when I encountered the beauty of southern California was not that I wished to live there, but one of feeling sorry for my Californian friends.

Let me explain:
To me, the south of France and Morocco were these magical, breathtakingly beautiful holy sites where God revealed Himself to me. I cried the first time I saw the French Alps, the Mediterranean Sea, the palm-tree lined streets of Casablanca, and the Sahara Desert (to be fair, I do cry a lot…) Every time I encountered new beauty my Michigan-eyes had never known, I was left speechless, breathless, and entered a holy state of worship for a God who could (and would) create such beauty. My Michigan-eyes had beheld a LOT of glorious things in our mitten state, but just nothing like mountains, ocean, desert, palm trees, oh – and that elusive SUNSHINE!!! (Today, on April 11, it snowed in Grand Rapids, Michigan. Need I say more???)

So when on my inaugural trip to California I discovered identical beauty – mountains, ocean, desert, palm trees, sunshine (which can all be seen AT THE SAME TIME, for heavens sake!) – I realized that there was NO WAY my Californian friends could have felt the same depth, love, and appreciation that I did while we all lived in France and Morocco. There is no way that they woke up every day and said, “Lord have mercy! Another sunny day!” (as I did). There is no way they took endless pictures of palm trees (as I did). There is no way they walked the beaches every day and said, “God in heaven, help me to carry this moment with me forever – even into the polar vortex that is bound to hit in the middle of my future Michigan winters” (as I did).

I was CAPTIVATED by the weather and the landscape of those two countries – but only because I come from a backdrop of cold, snowy, and relatively flat Michigan. My California friends who also lived in France and Morocco with us must have greeted each new day with “Just another day in paradise.”

And that difference in our two experiences is such a CRUCIAL thing for us to remember when life gets hard, ugly, disappointing or blizzard-y.

A light shines brighter against a backdrop of darkness.
Comfort is only as comfortable to the degree of discomfort it relieves.
Joy is only as joyful as the sorrow from which it rescues.
Pain relief is only helpful to the degree of suffering it relieves.
God is only as good as to the depth of which we recognize our sin and need of a Savior.

**********

When we meet people who (seem) to come from a very “charmed” life – who basically seem to escape all suffering in this life (they are smart, rich, thin, never struggled with teenage acne, their kids all make good choices, no cancer, disease, or disorders, no bad hair days, and their dog never poops on the living room rug… Kind of like the sun is always shining in their lives. You know the type…) well, it is tempting for us to wish we were them. It seems like THAT would be the life we all want and should strive (pray) for.

But I wonder…. I wonder if we’d be missing out on some very important things God wants to show us if our lives were void of the pain, the messy, the heartache (the snow?) I wonder if there are actually parts of GOD we would not know if we never knew pain, suffering, hurt and loss.

Why are we given so many different names for God if we’d never need them? If we all pursued and achieved the “charmed” life without any pain and suffering, certainly there are attributes of God we would never know.
 
How can we know God as our DELIVERER if we’re never in a horrible place from which we need delivering?
How can we know God as our COMFORTER if we’ve never been uncomfortable?
How can we know God as our HEALER and GREAT PHYSICIAN if we’ve never known illness or disease or suffered emotional/spiritual brokenness?
How can we know God as our PROVIDER if we’ve never ached for provision?
How can we know our God, the PRINCE OF PEACE if we’ve spent our whole lives avoiding conflict, running from adversity, never challenged?
How can we know our God, the SANCTUARY, if we’ve never been in a place of needing protection?
How can we know God as a REFUGE FROM THE STORM if our lives are always “sunny”?
How can we know God as the BREATH OF LIFE if we never recognize our desperate need for Him in ALL things?
How can we know God as our SHEPHERD if we never see ourselves as lowly sheep?
 
I’m not in any way suggesting we shouldn’t live in California! Nor am I saying God gives suffering – I believe HE IS PERFECT and would never author pain, loss, and suffering. But I do believe, with all my heart, that through the suffering we discover a God we hadn’t previously known – and we come to experience Him and love Him more fully, deeper and truer.

And, after all, isn’t that what He wants most from us???

The Worst Houseguest Ever (and how to get rid of her)

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We’ve had the worst houseguest all winter. In fact, I’ve never despised anyone more. It’s bad enough she showed up unannounced – but now she hangs out in the WORST possible places, and REFUSES to leave! I’ve been downright rude to her and I’m always telling everyone how much I hate her, even when she can hear me. She doesn’t care. She won’t leave and her annoying presence aggravates me more and more every day. So I started serving her all the nastiest foods: kale, green smoothies, turmeric tea, brussel sprouts. In fact, all the sprouts. She, however, laughed in my face and propped her feet up on my coffee table as if to say, “I ain’t goin’ anywhere, girlfriend. Get used to it.”


I told her in no uncertain terms that I will never get used to it! I refuse to give in to her obstinate and demoralizing ways. She will never get the best of me and I’ll kill her if I have to – but she is NOT stayin’!

So in yet another attempt to get her to leave, I signed up for a membership at Planet Fitness. This will surely piss her off, I thought. She lugged along with me to my workouts and again, very condescendingly laughed at me when I was sweating after just 15 minutes and struggling to get through a full workout.

This is the MOST unwelcome guest I’ve ever entertained. And I never even meant to host her – she just kind of appeared. Slowly… I noticed her more and more and more. She just latched on – attached to me like a barnacle, a leech, a life-sucking demon.

So now, in an effort to destroy the guest I never wanted, I go to Planet Fitness as much as possible. But the problem is, I hate Planet Fitness, too. It’s so depressing because I feel like everyone’s grandmother. It doesn’t help that I live in a college town and all the perky little college girls wear painted on leggings over their perfect tight butts and strut around with all their trendy tattoos and bras for shirts. And even though this college is my alma mater, I think they now disregard literacy as a criteria for admission. Although I am clearly perched DIRECTLY beneath the words “Judgment Free Zone” – I can still feel their glaring weasel-y eyes on me as they think “I’m never gonna let myself go like that mom. When I’m old, like her, I’ll still wear these tight-ass leggings and turn heads at the gym.”

My mom says paranoia runs in our family – but I think she just tells me that to get in my head and watch me self-destruct so she can tell the rest of the family and all her condominium friends what a nut-job I am when they admit me to the psychiatric hospital where I work…

And on this one particular day, with my stupid guest latched heavily to me, my soul was especially downcast. I was feeling so burdened with my health issues, a body that felt like it was failing me, and just overall feeling “less than”. What I really wanted to do was stay in bed til Memorial Day, but somehow I’d found a modicum of strength to drag my sorry ass to Planet Fitness.

I found my favorite treadmill right underneath the sign “Judgment Free Zone” just in case any college Barbie dolls forgot the rules. I walked/ran for as long as my compromised lungs would let me.

I wanted to cry. My lungs said, “Stop! We’re hurting!” My unwanted guest said, “I told you I’d never leave! You are stuck with me forever strapped to you!” My feet said, “Will you ever break down and buy some orthopedic tennis shoes???” My head said, “Face it, Cindy, you are old, fat, and irrelevant.”

My heart said, “I’m broken. Let’s get out of here.”

So I bolted for the door.

And then….
HOLY OF HOLIES….

A beautiful college-aged brunette who was working the Planet Fitness desk – her Chemistry book open on her lap – looked up at me, smiled, and said, “I like your hair.”
I looked over my shoulder convinced she must be addressing someone else. There was no one else there.

I pointed to myself as if to say, “Who me??? This old lady here with enough extra weight I’ve even personified it as an unwanted guest??? This embarrassment to the Planet Fitness establishment who couldn’t even exercise a full hour? You mean me???”
She said, “Yeah. It’s cool. I like the color and the cut.”

Flabbergasted. I’m pretty sure I forgot to say, “Thank-you.” or even a meager, “And I like your tight leggings”.

As soon as I was in my car I sheepishly checked my hair, “You know, your hair really ain’t too bad. It’s not grey yet. And with just a little highlighting help in the winter, the color’s not disgusting. Maybe you’re not a total loser…”

And I literally felt my head lift a little. I felt the unwanted guest shrivel up a bit as I decided to face her head on, admit she was all my fault, and commit to eliminating her entirely. I felt the sun peak through the clouds. I felt like God himself was saying to me, “I love you. I don’t care about a few extra pounds. I don’t care about what others say or think about you. You are special to me and I’m especially fond of you.”

And that, my friends, is the power of ONE COMPLIMENT. My whole view of the world shifted in that moment with one simple remark. And I stepped out of Planet Fitness that day having learned some priceless things:

  • We absolutely CAN change the world one smile, one kind word at a time.
  • WE get to choose the narrative of our lives. There’s much we can’t edit (disease, death, loss, trauma, broken relationships, etc.) but we CAN choose the direction of the story based on our response to those things.
  • Don’t underestimate the power of our words – both for the good and the bad. Use them wisely!
  • Listen to God. His words are always best.
  • Go to the gym. It doesn’t totally suck.
  • Don’t eat the tootsie rolls on the way out of Planet Fitness! Can you say, “Saboteur”???

Go get ‘em friends! Show those unwanted guests the door! Anything in your life that you didn’t want and didn’t ask to take up residence – maybe it’s jealousy or anger or fear or drinking or extra weight or working too much – whatever it is, tell it to take a hike and  get back the life you know is yours!

(And if you’ve ever worked at Planet Fitness and you tell me that employees are instructed to compliment patrons who look like they’re on the verge of tears, I DO NOT WANT TO HEAR IT AND I WILL UNFRIEND YOU FASTER THAN YOU CAN SAY “LEGGINGS”!)

The Best and Worst Christmases Ever

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People love to reminisce of Christmases past. But for me, reflecting on past Christmases will always present a horror: It was Christmas morning, 2016, when we received the call that my youngest sister Heidi was in the hospital. It’s serious, they said. Come right away.

That may always be our worst Christmas – discovering Heidi had glioblastoma brain cancer and was given a year or two to live. The following Christmas, Heidi made it to the party, but barely. She joined Jesus just two weeks later.

There is simply no JOY in that story. None. How do we as a family keep that memory from stealing our JOY this Christmas and every year to follow? I wasn’t so sure it was possible…

But, in spite of myself, I did some Christmas reflection – searching for Christmases past that would hopefully stir some joy-filled memories. This is what I remembered:
Our first Christmas living in France was life-altering and left a permanent imprint. Since it was our first time living abroad, I was clueless on what to bring from the states and never even considered Christmas decorations. It seemed so frivolous. But as that first Christmas rolled around, we soon realized our house looked sad. We had zero decorations and basically no budget to buy any.

We told the kids to lower their expectations for Christmas that year – things would be VERY different on the east side of the Atlantic. There wouldn’t be multiple family gatherings. There’d be no snow or skiing outings. There’d be no trips to the mall or shopping sprees. And there’d be no drives through wealthy suburbs to look at Christmas lights. In fact, because we used our life’s savings to live in France (which bottomed out quickly from the rapidly declining dollar value), we explained that funds just weren’t available for presents. We prepared them for a simpler Christmas where we’d just focus on Jesus’ birth.

The kids had become so used to things being different from “back home in Michigan” that the news didn’t create much of a stir.

But one day, it was crafty Grace who could take it no more and started making paper-chains. With zero colored paper, she just made one extremely long chain with white computer paper. On her insistence, but to my chagrin, I hung that chain across the long expanse of our family room/dining room. It looked pathetic – like a 4-year-old had made it – because one had.

Christmas was two weeks away and so far we had one lonely white paper-chain draped across the family room like a sagging clothesline. But I swallowed my Christmas pride and told Grace we needed several more paper chains to complete the look. She made eight more and once they were strung up, the whole family room/dining room had a white paper-chain canopy overhead and it looked kind of, well, wintery. It may also have looked like a third-grade classroom in a poor inner-city school district, but hey, it was something.

We couldn’t find a Christmas tree farm to save our provincial butts. So we tracked down a 4-foot potted Scotch pine at a local nursery and plopped it on a table in the corner. It would have given even Charlie Brown grief. However, I sat little Gracie down with more white computer paper strips and she made more paper-chains for the tree. We then strung popped popcorn to make more garland. The following day a family who was moving back to the states stopped over with a box of junk they couldn’t fit in their luggage. At the bottom of the box were two strings of white lights. Jesus loves me, this I know.

Next, I showed the kids how to make paper snowflakes. They plastered them all over our windows and French doors. If there had been Instagram back then my pics would have received many likes. The kids’ excitement was mounting.

Miraculously, we received two unexpected deliveries. First, a huge package in the mail containing gifts from my family in Michigan – one for each of our kids. There would be gifts on Christmas morning after all! Second, a whole suitcase of surprises arrived (carried over by a random Michigan acquaintance). It was sent with love from the Outreach Team at our church. Inside we found all sorts of Christmas wonder: gifts for each of us, Christmas cookie cutters, sprinkles and icing, Christmas movies, wrapping paper and gift bags, wooden ornaments, a rustic-looking table runner, and a wooden angel tree-topper. Adding those decorations to our white winter-wonderland made everything chic and modern-farmhouse-like. I am the OG Joanna Gaines…

On Christmas Day, we started the day with pancakes (because as long as you have flour, eggs, milk and baking soda, they taste the same on every continent), followed by a reading of the Christmas story – slowly this year – to fill the gap left from all the things that usually fill Christmas Day. Next, we opened those precious few gifts – again, much slower than Christmases past – savoring the meaning and thought behind each one.

That afternoon, we met up with another family and filled over 100 small bags with Christmas candy and a little piece of scripture that shared the good news that Jesus was born and still lives today! Our combined tribe of ten spent the whole afternoon passing out the candy bags to passers-by in the city of Aix. We laughed and sang and danced in the streets. We successfully made most of those serious French people smile! This– this act of love that we never would have had time for on a typical Michigan Christmas Day – this was truly the spreading of Christmas cheer.

Without fail, whenever asked about their favorite Christmas while growing up, all four of our kids will say their Christmas in France. It was the simplest Christmas ever – barely any gifts and no real parties – but the kids unanimously pick it as their favorite. Isn’t that telling?

My revelation has been this: from the worst of Christmases to the best of Christmases, it isn’t about where we are, who we are with, what things look like or taste like, or whether we receive the Fit-bit we asked for. And furthermore, it’s definitely NOT about what crisis we may be in the middle of. Christmas is ALL about Christ stepping IN TO those situations and circumstances and bringing us the same reminder and promise year after year after year – He is with us.

It’s really not the circumstances around us that define whether a Christmas is defined as a “good one” or a “bad one”. Even as I continue to grieve Heidi’s passing and I reminisce over special Christmases spent abroad, all I really need to know (all any of us really need to know!) to have the most JOYous of holidays is so simple (yet so easily missed) – it is the recognition of the power of the name: Immanuel.

Immanuel – God with us. When we know that, believe that, and live in that truth, Christmas is beautiful. No matter who you are, where you are, or what you’re going through, Jesus is our Immanuel. Rejoice!!!

Then Sings My Soul

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IMG_4913 (1)
This is us – in France – because I’m determined to live “all-in” until God calls me home.

Five years ago today I found out I’m dying. People try to make me feel better by saying: “Aren’t we all?” But five years ago today, they told me I had a lung disease that would most likely take my life many years prematurely.

Since that dreadful pre-Thanksgiving day in 2013, I’ve learned a lot about LAM and so has the medical community at large. We’ve learned that early diagnosis improves prognosis and with increased awareness of this rare disease, we’re starting to diagnose sooner. Since being diagnosed, the FDA has approved a chemo-drug that slows down the progression of the disease. The drug sucks – I get all the side-affects – but I’m still thankful for it because it does seem to have slowed my case of this lung-sucking disease. Many women aren’t so fortunate – it seems younger women get a more progressive case of the disease and some have lost their lives only five years after diagnosis.

When I was first diagnosed, all the literature said 10 years was the average life expectancy with LAM. Now, with our new ass-kicking drug and earlier diagnosis, many are saying prognosis could be much longer – perhaps even 20 – 25 years! It all depends if you get the “fast track” or the “slow track”. I’ve never been very fast at anything, so I’m figuring my odds are good.

Plus, I feel great. I totally live my life with hardly any concessions. I’m more tired than I’d like to be, but that seems to be the pandemic American curse and so I’ll never know if that is LAM or life. I like naps, but who doesn’t? And my other middle-age friends (the honest ones, anyway), say they’ll steal a nap whenever they can, too! I cannot, however, climb too many stairs at a time and our four level home is soon to become an issue. I don’t know what the heck the deal is with stairs – I feel like I could climb a tree, but not stairs.

It’s weird.

Five years ago I wrote about my initial reaction to getting LAM.  At the time, I thought I’d be fortunate if I were able to live 10 years. I am more optimistic today, but still look at every new year as a total gift – one God didn’t have to grant me.

Every day, every breath – a gift.

But I’m also reminded almost every day that I am not exactly healthy. The worst – the VERY worst thing about LAM thus far has been the slow revelation that I cannot sing like I used to. Last week in church the worship leader picked out the best, most awe-inspiring worship songs ever and as I tried to belt out the alto part, I lost my breath. A lot. I was gasping for air and had to stop singing. Then came a coughing fit. This now happens every week in church.

Those that know me best know how I adore music. It’s always playing in our home, my car, my head. When we built our dream home (that we later sold – to live more simply so others could simply live) I told my husband I wanted central stereo more than I wanted central plumbing! (He graciously granted me both.) I like ALL things musical – instrumental music, piano, orchestra, opera, concerts, musicals AND all genres of singers/bands. On one playlist I have Maroon 5, Queen, the Civil Wars, Lady Antebellum and Mercy Me – no joke. Our last two music concerts were Justin Timberlake and Ben Rector. If it has a musical note attached, I’ll listen. And, despite a ridiculous high probability I’ll get the words wrong, I’ll ALWAYS sing along!!!

The thing is, this past Sunday, when I lost my breath and couldn’t continue singing, we were smack-dab in the middle of How Great Thou Art – the place in the song with that bone-tingling crescendo. You know it. No one can help but belt out this line: THEN SINGS MY SOUL, MY SAVIOR GOD TO THEE…

Did you hear that? How amazing is that??? My voice need not sing, because:

THEN SINGS MY SOUL!!!

Oh the joy I felt! My soul can sing! Forever and ever amen – NO DISEASE can ever stop my soul from singing!!

At that moment, I noticed that both my husband (to my left) and my daughter (to my right) were singing at the top of their lungs: THEN SINGS MY SOUL, MY SAVIOR GOD TO THEE…. A row behind us was a rich, full baritone voice harmonizing in the bass clef. Somewhere, very close by, because all I could do was listen at this point, I heard a powerful soprano singing at the top of her lungs. She gave me chills. And the “choir” surrounding me there in church seemed to be encircling me, saying, “No worries, Cindy, we got you covered.”

They did not know it, but they were carrying me that day – they helped me feel and know the music and assured me that I always have been, and always will be able to say to my God: How Great Thou Art.

Even though, to us (our entire family), life feels like it may always be a series of loss upon loss upon loss from here on out, miraculously, there also seems to be an invisible net that keeps us from falling – splat – onto the cement bottom of life. With every loss, I truly anticipated the fall – hitting hard pavement – splayed out and bloody with zero chance of recovery.

But it never happened.

Somehow, some supernatural hand grabbed me from my belt loops and snatched me up and carried me back to the functioning world.

Many times I didn’t want to keep functioning. Sometimes I felt the darkness of depression sneaking in and it made me want to scream at people or at the very least, ignore them. Sometimes I wanted to stay in bed all day and pretend Heidi is still alive. Sometimes, still, I want to run and run and run and see if my lungs will explode. Sometimes I want to run far away and move to Aix-en-Provence, France and just pretend the problems of this world aren’t real.

But that same supernatural hand that reached down and pulled me from certain pavement splattering, draws me back with supernatural power to life.

He tells me it will all be worth it in the end – that all this pain and suffering is not wasted if I choose to grow from it. He lovingly shows me all the things that make life worth living for – even if I can’t sing anymore. He sweetly reminds me that if I’m still living, then I’m supposed to be here.

Five years later. Another pre-Thanksgiving day – another reminder that my lungs are giving out on me. But it also reminds me that my soul shall never cease the singing of His praises. No one can ever snatch that away from me.

And for that, I can truly be thankful.

THEN SINGS MY SOUL,
MY SAVIOR GOD TO THEE,
HOW GREAT THOU ART,
HOW GREAT THOU ART
 

A Lament for Heidi

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IMG_4338After a long 24 hour bedside vigil, I was finally able to come home, change my clothes and shower. But it’s not over. I’ll go back to her bedside shortly, and breathe in her precious smell until she smells like heaven.

I know how this goes. My youngest sister will be the fourth beloved, precious family member we will lose in just over a year.

Oh, Lord, I just don’t understand. What is going on here???

Last year, on Christmas morning no less, we first learned Heidi had a brain tumor. Later that same week we were informed it was glioblastoma – the fastest growing, most deadly and ruthless form of brain cancer with an average prognosis of 12 – 14 months Screaming into Nothingness (when God disappears). Here we are, in month 13 and she is days (maybe hours?) away from dying. Heidi is anything but average, but in death, her numbers will align fairly well with the statistics.

She will leave behind a husband, Chad, who has been her best friend since forever. They were married 23 years. Chad and Heidi have two children – Ashley, 17, a high school senior, and Nate, 14, an eighth grader. Don’t tell me they’ll be okay. They won’t – at least not yet. Their momma is about to die.

Oh, Lord, I just don’t understand.

It’s NOT okay to lose your momma when you’re a teenager. I have analyzed this situation from every angle and I can find nothing that makes sense or eases the pain. And I think I could punch someone in the face right now who tries to tell any of us how God works all things together for the good.

There is no way this can be good. No way.

Unless, perhaps…. Unless I don’t understand what “good” really is….

As a family we have all wrestled with mortality and God and His plan throughout Heidi’s illness. But one night, while in a long nighttime wrestling match with God, I suddenly wondered if His idea of good is simply not the same as ours. Maybe He doesn’t have a Webster’s. Maybe when He Google’s “good”, He doesn’t read of the things we typically think of (health, wealth, prosperity, fitting into your size 6 jeans, sipping wine along the Cour Mirabeau in Aix-en-Provence, France…)

If God is good, and I have NO DOUBT He is, then His definition of good CANNOT be the same as ours.

Because, Oh, Lord, I just don’t understand you otherwise.

It’s interesting, but in my experience, the things that we typically think of as “good” and as our “blessings” are often the things that create a separation between God and us. They are things that, often unintentionally and often subversively, lead us to believe we don’t need a God. Things like enough money (or too much), enough food (or too much), enough vacation (or too much), enough or too much of everything, as well as the absence of disease and absence of trials.

Conversely, it is the sufferings of this life that bring us to our knees and to the place where we find our desperate need of a Savior.  And I believe that more than anything God longs to draw us closer to Him. He wants nothing more for all to come to know him and accept the saving knowledge of Jesus Christ as Savior.

So what if maybe, just MAYBE…., in God’s dictionary, “health” is not the absence of disease, but, instead, one who knows he/she is nothing apart from Christ, and that we live and breathe and have our being in Him alone.  Since God IS good, and longs to give us good things, MAYBE, “health” has nothing to do with our physical bodies.

Maybe, in God’s dictionary, “wealthy” does not refer to one who has a hefty savings and retirement account, drives a fancy car, and owns all manner of material possessions. Maybe being wealthy actually means to understand that friends, family and a purpose in life are some of the richest gifts offered to us. Maybe we’re rich when we realize how little we actually need “things” and start living more simply – when we have more time for people instead of accumulating and maintaining our “things”.

Maybe wealth is the opposite of what we always thought.

Maybe, in God’s dictionary, a “blessing” isn’t a concept we can actually get our heads around. Maybe, saying we’re “blessed” when referring to health, wealth, jobs, children and good fortune causes great pain to those struggling with cancer, infertility, unemployment, a prodigal son/daughter, rape, poverty, oppression, rejection, loneliness, etc. because it implies God has withheld His blessings from those people.

ESPECIALLY – oh especially – when we Christians suggest it is the LACK of faith that produces suffering in this life are we guilty of serious theological malpractice!

Are suffering people NOT blessed???  Are we able to escape all trouble and heartache if our faith is simply strong enough??? When people suffer from the evils in this world is it a reflection of their lack of faith???

Hell no.

It just can’t be. Or God is not good. God must have a different definition of “blessed” then we do.

Otherwise, God, I just don’t understand.

So, I decided to start reading God’s dictionary. I cannot make sense of Heidi’s passing any other way. I need a God who IS GOOD. One whom I can trust even when I’m angry at Him. One who IS PRESENT everywhere. One who doesn’t pick and choose favorites and grant the rich, the beautiful, and those born into first-world countries more “blessings” than the rest.

This is what I found in God’s dictionary:
“Blessed are the poor in spirit – for theirs is the kingdom of heaven.
Blessed are those who mourn – for they shall be comforted.
Blessed are the meek – for they shall inherit the earth.
Blessed are those who hunger and thirst for righteousness – for they shall be filled.
Blessed are the merciful – for they shall be shown mercy.
Blessed are the pure in heart – for they shall see God.
Blessed are the peacemakers – for they shall be called children of God.
Blessed are those who are persecuted because of righteousness – for theirs is the kingdom of heaven.” Matthew 5: 3 – 10

So as I resume this bedside vigil there are TWO things I can know for sure: Chad and family will be comforted. And Heidi, well, she shall soon see God, for she is truly pure in heart.

This precious family does not have the “blessings” that most people think of – they are in the valley of the shadow of death and this is an impossibly sad and difficult place. But, I’ve just GOT to believe that according to God’s dictionary, they are blessed indeed.

Otherwise, Lord, I just don’t understand. You just don’t make any sense to me.

And then the Lord said to me:
“Trust in the Lord with all your heart, and lean not on your own understanding.” Proverbs 3:5