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Terminal Illness Archives - Cindy DeBoer https://cindydeboer.com/category/terminal-illness-2/ Wed, 22 Nov 2023 06:11:39 +0000 en-US hourly 1 https://wordpress.org/?v=6.5.2 https://i0.wp.com/cindydeboer.com/wp-content/uploads/2020/10/cindydeboericon.png?fit=32%2C32&ssl=1 Terminal Illness Archives - Cindy DeBoer https://cindydeboer.com/category/terminal-illness-2/ 32 32 184530663 It’s Been Ten Years… So Why Am I (still) Alive? https://cindydeboer.com/2023/11/22/its-been-ten-years-so-why-am-i-still-alive/?utm_source=rss&utm_medium=rss&utm_campaign=its-been-ten-years-so-why-am-i-still-alive https://cindydeboer.com/2023/11/22/its-been-ten-years-so-why-am-i-still-alive/#comments Wed, 22 Nov 2023 06:11:32 +0000 https://cindydeboer.com/?p=4367 On the day before Thanksgiving, 2013, in a closet-sized, moldy-smelling exam room, a University of Michigan pulmonologist confirmed my fear: the shortness of breath I’d been experiencing was due to a rare, progressive, degenerative, and often terminal lung disease, Lymphangioleiomyomatosis (LAM). Paul and I sobbed the entire drive home from Ann Arbor. Not surprisingly, a […]

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]]> https://cindydeboer.com/2023/11/22/its-been-ten-years-so-why-am-i-still-alive/feed/ 10 4367 Leaky Breasts and Other Hot Messes https://cindydeboer.com/2023/04/13/leaky-breasts-and-other-hot-messes/?utm_source=rss&utm_medium=rss&utm_campaign=leaky-breasts-and-other-hot-messes https://cindydeboer.com/2023/04/13/leaky-breasts-and-other-hot-messes/#comments Thu, 13 Apr 2023 20:56:02 +0000 https://cindydeboer.com/?p=4332 Recently, while at work at the psychiatric hospital, I caught a glimpse of myself in a patient’s bathroom mirror and noticed a large wet spot on my t-shirt just below my left breast. It was an odd location for a spill, but I chalked it up to my clumsiness and threw on a hoodie to […]

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]]> https://cindydeboer.com/2023/04/13/leaky-breasts-and-other-hot-messes/feed/ 2 4332 Same Kind of Wounds as Me https://cindydeboer.com/2022/04/07/same-kind-of-wounds-as-me/?utm_source=rss&utm_medium=rss&utm_campaign=same-kind-of-wounds-as-me https://cindydeboer.com/2022/04/07/same-kind-of-wounds-as-me/#comments Thu, 07 Apr 2022 17:07:13 +0000 https://cindydeboer.com/?p=4302 I noticed her and those tell-tale marks on her face from far across the room. At the first break of our writer’s conference, I ran over to her, breathless with anticipation. “Hey, I don’t mean to be weird or anything, but I notice that you have nasal cannula indentations on your cheeks, and I know […]

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]]> https://cindydeboer.com/2022/04/07/same-kind-of-wounds-as-me/feed/ 20 4302 Ode To A Lumpy Body https://cindydeboer.com/2022/02/18/ode-to-a-lumpy-body/?utm_source=rss&utm_medium=rss&utm_campaign=ode-to-a-lumpy-body https://cindydeboer.com/2022/02/18/ode-to-a-lumpy-body/#comments Fri, 18 Feb 2022 16:33:30 +0000 https://cindydeboer.com/?p=4290 Hairy legs and sun-burnt nose When at the beach, anything goes. Unbrushed teeth and happy-hour drinks This much I know: my breath stinks. Fish for dinner plus a fruity potion Diet be damned, I'm at the ocean. Sand in my bed, and in my salt-fried hair, Sir, what is the time? Wait. Why do I […]

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]]> https://cindydeboer.com/2022/02/18/ode-to-a-lumpy-body/feed/ 16 4290 Invisibly Dying – A Lament For Those With Chronic Illness https://cindydeboer.com/2022/01/15/invisibly-dying-a-lament-for-those-with-chronic-illness/?utm_source=rss&utm_medium=rss&utm_campaign=invisibly-dying-a-lament-for-those-with-chronic-illness https://cindydeboer.com/2022/01/15/invisibly-dying-a-lament-for-those-with-chronic-illness/#comments Sat, 15 Jan 2022 22:01:17 +0000 https://cindydeboer.com/?p=4275 Our ancient windows are no match for this stiff north wind. Our curtains tremble – just like me. Neighbors on both sides are sleeping. I know this for sure. These urban homes practically touch – holding hands across shared driveways - making daily routines no secret. But the rest of our quirky neighborhood will keep […]

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]]> https://cindydeboer.com/2022/01/15/invisibly-dying-a-lament-for-those-with-chronic-illness/feed/ 27 4275 Thanksgiving Eve Sucks https://cindydeboer.com/2021/11/25/thanksgiving-eve-sucks/?utm_source=rss&utm_medium=rss&utm_campaign=thanksgiving-eve-sucks https://cindydeboer.com/2021/11/25/thanksgiving-eve-sucks/#comments Thu, 25 Nov 2021 04:34:08 +0000 https://cindydeboer.com/?p=4245 Sometimes holidays conjure up more pain and despair than joy and celebration. That’s true for me, anyway, on the day before Thanksgiving. It was 2013 and with the table set, the turkey stuffed, and pies complete, my husband and I spent the day before Thanksgiving driving to Ann Arbor to meet with a pulmonology specialist. […]

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]]> https://cindydeboer.com/2021/11/25/thanksgiving-eve-sucks/feed/ 33 4245 My Magnum Opus: The Parenting Marathon https://cindydeboer.com/2021/09/03/my-magnum-opus-the-parenting-marathon/?utm_source=rss&utm_medium=rss&utm_campaign=my-magnum-opus-the-parenting-marathon https://cindydeboer.com/2021/09/03/my-magnum-opus-the-parenting-marathon/#comments Fri, 03 Sep 2021 03:12:11 +0000 https://cindydeboer.com/?p=4195 I recently volunteered at a triathlon and discovered many interesting things about these athletic beasts. Besides being insane for paying actual money to brutalize their bodies and not knowing the difference between fun and pain, I noticed that at the finish they usually fell into one of three categories: 1) The nonchalant. “Yeah, I just […]

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]]> https://cindydeboer.com/2021/09/03/my-magnum-opus-the-parenting-marathon/feed/ 14 4195 What a Diet Coke can teach us about CNN, Newsmax and political divides https://cindydeboer.com/2021/03/11/how-a-can-of-diet-coke-can-kill-us-or-give-us-life/?utm_source=rss&utm_medium=rss&utm_campaign=how-a-can-of-diet-coke-can-kill-us-or-give-us-life https://cindydeboer.com/2021/03/11/how-a-can-of-diet-coke-can-kill-us-or-give-us-life/#comments Thu, 11 Mar 2021 19:22:06 +0000 https://cindydeboer.com/?p=4170 I confess. I have a dangerously sick addiction to Diet Coke. I know, I know, I know – it’s terrible for me and it’s going to kill me. I’m pretty sure, however, my lung-sucking lung disease is gonna get me first. But actually, I’m more afraid the way we VIEW Diet Coke could kills us […]

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]]> https://cindydeboer.com/2021/03/11/how-a-can-of-diet-coke-can-kill-us-or-give-us-life/feed/ 5 4170 When Is It Time To Let Me Die? https://cindydeboer.com/2020/05/07/when-is-it-time-to-let-me-die/?utm_source=rss&utm_medium=rss&utm_campaign=when-is-it-time-to-let-me-die https://cindydeboer.com/2020/05/07/when-is-it-time-to-let-me-die/#comments Thu, 07 May 2020 18:51:59 +0000 https://cindydeboer.com/?p=3144 My doctor is very clear, if I get CVD-19, it will not go well for me. My stupid lung-sucking disease puts me in the small minority of the population for whom the rest of you are being quarantined. Perhaps you’re experiencing some of the same vacillating opinions as me where one day (maybe even one […]

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]]> https://cindydeboer.com/2020/05/07/when-is-it-time-to-let-me-die/feed/ 26 3144 Derailed https://cindydeboer.com/2020/03/05/derailed/?utm_source=rss&utm_medium=rss&utm_campaign=derailed https://cindydeboer.com/2020/03/05/derailed/#comments Thu, 05 Mar 2020 20:14:27 +0000 https://cindydeboer.com/?p=2608 We became empty nesters last August. Because I feared boredom and purposelessness – as well as the fact my medications cost an astronomical amount and my employment offers better prescription coverage – I decided to go back to work full-time. Additionally, after shelving my career for 20 years to raise kids, I was excited to […]

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