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Suffering

I Will Send You Flowers

February 25, 2021 by Cindy DeBoer 32 Comments

I first realized I had a problem in the middle of the night. Since Mr. Insomnia is a regular third partner in our marriage bed, it was nothing new for me to still be wide awake at 3 a.m. But as I stared blankly at the ceiling for what felt like hours, the dark thoughts blanketing me were definitely new: “Why am I even still here? I add no value to this world anymore. Why stay? My life has no purpose anymore.”

And as daylight approached and slowly lit up our room, my soul became increasingly darker.

As a psychiatric nurse, I know darn well the symptoms of clinical depression and suicidal ideation… apparently, however, only in others. I almost missed it entirely as it crept up in my own life. Although it happened insidiously – like a drippy faucet that floods an entire basement – I still got very wet before I knew I needed help.

By the grace of God, I found the strength to confide in my husband how bad things were. He knew just the people to rally around me. In very short order, I had a friend’s condo waiting for me in Florida (much of my sad state can be blamed on SAD – Seasonal Affective Disorder), a friend who dropped everything in her busy life to come join me, one of the largest bouquets of spring flowers sent to our home, and a few timely phone calls that provided just the right “pick-me-up.”

Perhaps my lung disease has heightened my isolation, the heavy impact of COVID, and the resulting depression; but I also know of many, many others who (bravely) have shared similar heavy, dark emotions. I truly believe most of us are suffering some version of sadness and loss (perhaps PTSD?) from this insufferable COVID year.

Giving testimony to the state of our collective psyches is the universal rise in psychiatric hospital admissions, suicides and suicide attempts, drug dependency and alcoholism.

Fellow humans – we’re suffering. First of all, it is critical that we admit it. We were not created to live in this type of isolation, fear, and guardedness. We are starving for human interaction and a life laced with laughter, loved ones, long dinners, and live music. And if and when we come to terms with the suffering we’ve endured, we’re going to have to reach out and get some help.

So here are my BEST words for you today: GO AFTER IT! TAKE WHAT YOU NEED!!!

If there’s anything this last month of my life has taught me is that advocating for yourself is not only good and necessary, but it is a God-breathed practice of honoring the life he gifted us. Contrary to some ridiculous lie I picked up somewhere along the Christian way, to admit you need help and then asking for it is NOT a sin.

I think that for most of my life I viewed the word “Help” like any other four-lettered offensive swear word. I don’t know if it’s my restrained Dutch background, being an Enneagram 8 or just plain the sin of pride, but I’m so averse to asking for help, that I’ve wallowed in pain/suffering for days, weeks, months and years without ever telling a soul.

I wish I was the only one wired like that – trying to handle all my suffering alone. Because it’s a miserable way to live and I wouldn’t wish it on anyone. But sadly, I know I’m not the only one.

But lately I’ve been wondering about the redemptive work of evil. Even things as evil as COVID. What if a redeemable purpose of this COVID-crap is that it FINALLY brings some of us to our knees? What if those of us more stubborn types are finally humbled to the point of asking for help? Can it be that God is using something so ugly and BAD for our physical health to actually make us more spiritually and holistically healthier???

What if NOT finding the good in all of this bad we actually miss God?

What if he’s waiting for us to find HIM in all of this?

What if we surrendered our “political” posturing or “I must be right” attitudes or “You’re all stupid” positions and instead just focused on God and how he uses suffering to mature us?

What if we asked God to USE Covid to change us and mold us into who He wants us to be?

What if we all come out of this on the other side BETTER versions of ourselves instead of WORSE?

This year – this entire COVID nightmare – is NOT the time to pretend you are okay if you’re not. This is NOT the season to portray life and joyous living to the world while you’re dying on the inside. This is NOT an okay time to act like you’ve got it all together. This is NOT the time to play the hero.

We are in troubled, difficult times. We’re tired and like never before, we NEED each other!!!

This is a season for raw honesty. This is the season to find your trusted tribe and humbly reach out to tell them exactly what you need. One way we’ll know we are better off as humanity is when we can see people working together, building one another up, and helping one another in every possible way.

There have been so many times in my life when confronted the ugliest, rawest, most painful realities of this world (sex-trafficking, racism, child-slavery, refugee crisis, abortion, etc.) I often conclude with this statement, “Well, I do not know exactly what I can do about it, but one thing I know for sure, doing nothing is NOT an option.”

I don’t know what would have happened if my tribe had not come around me in my darkest days. I’m so thankful they didn’t choose to do nothing. I do not know exactly what I CAN do about the broad suffering around the world in response to COVID, but, as always, doing nothing is NOT an option for me. So, if you’re reading this blog, you are my friend and I want to help you. If you are having a hard time of it right now, shoot me an email (via my website) and I PROMISE YOU, I will send you a bouquet of flowers.

I am NOT joking. Sometimes I try to be funny and people don’t get me because I’m really not all that funny. This is NOT one of those times.

I’m totally serious. If you’re struggling today, e-mail me asap and I will send you flowers.

Filed Under: COVID-19, Depression, Suffering, Suicide Tagged With: COVID, Depression

How to Launch Into Winter with COVID All Around Us

October 15, 2020 by Cindy DeBoer 10 Comments

My stupid COVID dog (not that she has it, but we bought her because of it) woke me up way too early one morning. I wouldn’t mind if our Governor mandated all humans shall not stir before 8:00 a.m.

Vie (my COVID dog’s name – which is French for “life”) needs a walk immediately upon waking or she’ll poop in the house. So at the crack of dawn I headed outdoors in my pajamas for a dog walk.

With sleepy-eyes and morning breath I bumped into my neighbor just two doors down. She was loading her last piece of luggage into her car before heading to the airport. She was meeting up with her parents so they could tearfully send her off to live in the Middle East. She’s young (25?), very blonde, very attractive, and traveling solo to teach at a high school in Afghanistan. Yes, you heard that right:

Af-freakin’-ghanistan.

God knew this one last impromptu meeting was needed by both of us. We had a precious exchange there on the sidewalk and I was able to send her off with a blessing. With mutual  tears, she departed. I wondered how in the world her parents were handling this. Afghanistan. Who even does that? (Okay…. So maybe I did that. But WE went as a family. I had a brave husband at my side along with two strapping, tall teenaged sons and two very confident daughters. I was not ALONE. And Morocco is no Afghanistan. Not even close. People actually take vacations to Morocco.)

Before I had much of a chance to process the bravery of this young woman, I turned the corner and ran into a homeless man. He was picking at garbage in the park across from our home and so I greeted him warmly, “Hello!”

He launched into a rambling apology, “I’m sorry. So sorry. We didn’t mean it. We’re leaving.” It was then I noticed his tent that was erected just beyond the children’s play area. A second man was exiting their “home” as we spoke.

“Sorry for what?” I asked.

Without making further eye contact, he shuffled away saying, “We slept too long. We’ll be gone soon. So sorry.”

Homelessness in Grand Rapids is a thing – as I imagine it is in every city. But I’ve heard we are known as a destination for the homeless because we have plenty of shelters and food distribution centers, clean parks, friendly police and a plethora of Christian organizations that will do anything to help. But COVID has definitely made the homeless issue worse here in GR.

One thing I know for sure: Homelessness is not of the kingdom of God. This is not the way things are supposed to be.

I quickly realized the reason my stupid COVID dog woke me up so early is because God knew I needed to run into my Afghanistan-bound neighbor and my neighbors with no home because I needed the reminder that life is rarely what we thought it’d be or even what it’s supposed to be.

Watching my neighbor leave for Afghanistan I thought, “I bet when she was born and her parents first saw her rosy little cheeks, blonde tufts of hair and blue eyes they never once thought: “I hope that someday this one will move to Afghanistan all alone – a place where young beautiful blondes really stand out and American’s are not particularly welcome.”

I bet her parents never once imagined this for her future. But…

“A man’s heart plans his way, but the Lord directs his steps and establishes them.” Proverbs 16:9

I bet when my two homeless neighbors were in high school, they never once thought to themselves, “I hope someday I will be without a home. I just know that I’ll end up jobless, with no prospects, and unable to secure safe shelter.”

 But…. “A man’s heart plans his way, but the Lord directs his steps and establishes them.”

We were invited to 3 weddings this fall where the bride and groom watched many lifelong dreams shatter as they moved up their wedding date, changed the venue, and shrunk the guest list due to COVID.

But… “A man’s heart plans his way, but the Lord directs his steps and establishes them.”

Our college graduate daughter was supposed to be living abroad in France or Spain or Honduras right now developing her language skills but instead she is home here with us working as a barista.

Because a man’s heart plans his way, but the Lord directs his steps and establishes them.

Referencing changed plans and directions is not meant in any way to minimize those who have lost loved ones from COVID. Those losses are incalculable and we can’t even begin to make sense of that. But I think that, without exception, we ALL had plans, dreams, and hopes for 2020 that look nothing like the 2020 we’re living. It wasn’t supposed to be like this.

THESE WERE NOT OUR PLANS, GOD!!! DO YOU REALLY KNOW WHAT YOU’RE DOING???

Never before have we all been so at the mercy of the Lord’s plans. We can barely plan next week, let alone next month or next year.

But one beautiful takeaway of this COVID reality is to realize I am not in charge of me and you are not in charge of you. We can plan all we want and hope and dream and whine when these things may have to be changed, cancelled, or never come to fruition – but the truth is that The Lord Our God alone is sovereign and we can never take his place on that throne no matter how much we think we belong there.

We can only surrender our plans and trust Him.

That’s it.

That’s all.

Whether in Afghanistan, a COVID-unit at the hospital, the Champs-Elysees in Paris, in a tent in the park, or stuck under the same roof between the same 4 walls for an entire year, the Lord has indeed directed those steps and he alone establishes those steps that lead us into our futures.

Filed Under: City Life, Contentment, COVID-19, France, Homelessness, Joy in the Journey, Life Overseas, Michigan, Suffering Tagged With: Afghanistan, COVID-19, Homelessness, Proverbs

Every Rose Has It's Thorns (or why America is in a crap-load of trouble)

July 2, 2020 by Cindy DeBoer 12 Comments

The last movie we saw before that devilish virus shut down all the theatres was “I Still Believe.” I’m still not sure if it was KJ Apa’s impish little grin or the story line that made me so emotional and bawl like a baby. Either way – the film is incredible and if you love love stories and/or Jesus, you should go see it.

But even better than the movie itself was one of it’s theme songs. It jumped off the screen right into my head’s hard drive and I can’t get it out of my mind. Not that I want it to.

The song’s message couldn’t be more relevant to the season of life we’re in. It’s as if God actually knew what He was doing when He released this movie (and this song) to usher our world into this perilous season of pain, suffering, uncertainty and division.

Hmmmm.

The song, a remix from the now disbanded group Delirious?, is called “Find Me At The River.” Rather than quote the whole thing, I’d LOVE for you to listen to it right here. Essentially, Martin Smith, who penned the lyrics, suggests when all hell breaks loose and it feels like Jesus has left the building, we should be found at the river of life – standing in the waters – eyes wide open for Jesus to show up.

Because, Jesus ALWAYS shows up.

The following phrases from the song are so profound I MUST quote them:

“We longed to see the roses

 But never felt the thorns

And bought our pretty crowns

But never paid the price….

We didn’t count on suffering

We didn’t count on pain

But if there are blessings in the valley

Then in the river I will wait”

OH MY GOSH!!! Do you see what I see??? This is AMERICA today!!! Martin Smith is speaking to America!

I truly believe that much of the world – whose people and cities and stories go back thousands of years before ours – are sitting back and listening to our country’s whining and just shaking their heads. Places like Iraq, where the Biblical Tigris and Euphrates flow through it’s center, or Syria, where the capital Damascus is mentioned in Genesis, or Egypt, where Joseph and Mary fled to with baby Jesus – yes, places like that are like our wise old great-great-great-grandfathers looking at the “barely formed” America and thinking, “Yes, America, you immature teenager you, there IS suffering in this life. You have known great prosperity but it will not and cannot last forever. Suffering will come and it will go. Again and again and again. And when you are an old grandfather like me, you will come to understand that you can’t only have the roses and never know the thorns. You can’t have pretty crowns and never pay the price. Hang in there, America. You’ll understand someday. You’ve been on waaaaaaay too long of an enchanted journey so reality is gonna bite. But it is in that reality where you will find that which really matters. And (spoiler alert) it isn’t in having the biggest military, or being the strongest and richest country in the world, or even the most powerful and influential. No, even if you were to lose all those things and all that status, you could still be a great nation – but only if God finds you in the river waiting there for Him.”

We may think America has fallen on “hard times” and we may think that things are ramping up to some kind of cataclysmic fall, but the truth is, we don’t even have a clue what hard times are. What we’re experiencing now? It’s barely a tickle.

We once heard a princess from Burundi speak at our church. It was her first visit to America so she asked if she could begin her learning and understanding of our country by seeing America’s poor people. Her host picked her up at Chicago O’Hare and knew exactly where to take her – the housing projects of Chicago’s south side. There are not many, if any, poorer huddled masses in America. When they arrived she asked, “What are those buildings?” Her host, thinking she must be devastated by the blown out windows, the fire scorched brick, the bullet holes peppering the exterior, said, “That is where the poor people live.”

Then she asked, “What are those structures out front?” Her host, again, thought she must be so sad to see garbage strewn everywhere in the dilapidated playground surrounded by broken fencing. His eyes met hers studying the basketball court with no hoop, two garbage dumpsters tipped upside down, four black men playing cards on a cardboard box while perched on buckets, and two separate gangs of fierce-looking youth hanging out in the perimeter, so he knowingly replied, “Yes, that is supposed to be the playground for the poor people’s children.”

Next she asked, “And how about those cars?” Again, her host, assuming her pain as she gazed at the line of rusted out, old model cars with barely any hubcaps, missing tires, blown out windows, and some even burned down to a crispy shell of metal, replied, “I know. It’s so sad. Those are the cars of the poor people.”

Again, she asked, “This is where the poor people live?”

“Yes,” her host said sadly.

Slowly, the princess looked over at her host and replied in her heavy Burundian accent, “America does not have poor people.”

Do you see it??? Do you see who America is to the rest of the world??? A spoiled teenager. We long to see the roses, but we’ve never felt the thorns. We want our pretty crowns but we don’t want to pay the price.

I believe the pandemic mayhem, the racial tension and political division resulting in a time of historically high hate levels is really just the thorns. We’ve had a lot of roses, America. Despite two world wars, a brutal Civil War and, according to most accounts, over 100 smaller wars, still, America has collectively never known the hardships experienced elsewhere in the world – we just haven’t been around long enough to know the same extent of suffering. We’ve never known hunger to the same extent as the developing world. We’ve never known the depth of violence, poverty, persecution, oppression or civil unrest as much of the world experiences as “everyday life.”

No matter how we come out of this mess, if we (believers in Christ) stay in the river and keep our eyes focused on Jesus and believe that He alone is all that matters, we will indeed find blessings in the valley. It does not matter if we come out on top. In fact, it’s often best if we don’t. If we are no longer the “greatest” or “most powerful” country it’s still going to be okay. If we lose our 401k’s or our homes or our cars or our jobs or even our health, we’re still going to be okay. Because, at the end of days, those are not the things that matter.

What matters in this crisis is that we live and love like Jesus. We must come together in unity, and bear one another’s burdens and open our homes to those who have lost theirs. We must feed those who can’t afford to buy food. We must reduce our spending so we can assist those who have lost jobs. We must reach out to those who are being forgotten, trampled, hurt, and afraid. We must rise above our differences and show love to everyone – even those who see the world differently than us. Scripture’s quite clear on what it is that we are to DO, both in times of plenty and in times of great need: love the weak, the poor, the oppressed, and defend the cause of the orphan, the widow, and the alien in our midst. And right up there with loving the Lord Our God with all our heart, soul, mind and strength is loving our neighbor as ourselves. That means ALL the neighbors.

It’s okay, America, if this is a hard season. This is only the thorns – and we haven’t experienced many. And it is only in the thorns that we discover the true beauty of the roses.

Perhaps America does not yet know just how beautiful the roses are and just how rich a crown she wears. Perhaps that is why she is now suffering.

Filed Under: COVID-19, Suffering Tagged With: Burundi, COVID-19, Delirious?, I Still Believe, Jeremy Camp, KJ Apa, Mars Hill Bible Church, Poison

When Is It Time To Let Me Die?

May 7, 2020 by Cindy DeBoer 26 Comments

My doctor is very clear, if I get CVD-19, it will not go well for me. My stupid lung-sucking disease puts me in the small minority of the population for whom the rest of you are being quarantined.

Perhaps you’re experiencing some of the same vacillating opinions as me where one day (maybe even one moment) you’d like to poke the eyeballs of someone who says, “Well, you know this isn’t even as bad as the flu” and then, on another day, you flip viewpoints when you hear of the woman down the street who, due to quarantining with her abusive boyfriend, landed in the shelter for battered women –  at which point you scream into the abyss: “This BS has to end, God! LET MY PEOPLE GO!”

We’re not only confused from the polarity of the narratives we’re given, but also because our favorite people sometimes view the exact same reality completely opposite than us. Because this pandemic has been usurped and exploited by the political extremes it is fracturing our country into two camps at a dizzying pace. Some are desperately trying to minimize this crisis so their man looks good and responsible hoping he can restore the economy in time for the next election. On the far opposite side are those who are actually wishing for a significant death toll and accompanying pandemonium to portray Trump as an incompetent madman. Either way  (and every way in between) – we must never forget that this whole mess is NOT about politics, IT IS ABOUT PEOPLE.

These are people made in God’s image.

And people matter.

All people.

Initially, when this thing first reared its ugly head and many people said (and continue to say), “This isn’t so serious. It’s only the elderly and those with underlying conditions who are at high risk,” I truly felt as if my life did NOT matter. Those comments have repeatedly made me feel dismissed, disregarded, unimportant and not worth inconveniencing the rest of the people that DO matter in America – the HEALTHY ones.

Oh, don’t mind me. Just little ‘ole me with an underlying condition over here…  I get it that you think I’m already half dead and therefore not worth your suffering. So you just go right ahead and get your haircut, purchase that lawn fertilizer and run to Costco without a mask. I see how you value things in life. The sick and the elderly apparently rank fairly low. But you know – we’re not all that different, you and me. I, too, strongly believe in fighting for the unborn, our religious liberties, and our American freedoms; but it grieves me that now that I need someone to fight for me (and by fight, I mean “stay home”), you won’t.

TIDES DO TURN

We have three California kids and Paul and I have sat and watched the Pacific ocean for countless hours – mesmerized by God in creation. Anyone who has seen the ocean knows the tide comes in, and then goes out. Surfers, boogie boarders and swimmers all know the tide sometimes pulls you north, and some days it pulls you south. One thing that will always be certain in this life: the tides are always turning.

And I’m wondering if the tide has turned for me. I don’t know if the guilt of watching an entire nation on lockdown on behalf of people like me has just become too much or if I’m just sick and tired of the fighting. It just feels like my mindset is shifting and the winds of change are blowing…

  • Is it time for us to say we did the best we could and gave social distancing a good run, but now it’s just too much and it’s time to move on regardless of the consequences?
  • Is it time for those with underlying diseases and the elderly to acquiesce and say “I give” – concluding the devastation resulting from this quarantine is worse than us losing our lives?

Which all begs the question:

WHAT IS MY LIFE WORTH?

I don’t doubt my life is worth more than your hair, your lawns, or your beers. Most of us (Christians, anyway) would, at the very least, SAY that people are more important than money or things. So when I hear everyone talking about the failing economy as the primary reason to open things up, I feel as expendable as a Jew in Auschwitz (who were, btw, blamed for any economic woes in Germany).

HOWEVER…

Because of all the cultural pressure, the noise and opinions coming from the far right, and the collective anger mounting in our country as a result of the quarantine, I’m beginning to feel my life really isn’t worth all this suffering. I’m wondering where we draw the line at what my life (and those in similar situations) is worth.

  • I’m wondering if my life really isn’t worth the collective livelihoods of thousands, maybe even millions, who are now unable to maintain food, shelter and clothing for themselves or their families.
  • I’m now wondering if my life really isn’t worth someone losing their family business they poured their entire life into for the past 32 years only to head into retirement penniless and too old for a plan B.
  • I really don’t believe my life is worth children going to bed hungry tonight.
  • I don’t believe my life is worth soaring suicide rates or increases in domestic abuse. This makes me sick to my stomach just thinking about it.
  • I’m wondering if my life isn’t worth the broken relationships, the constant fighting, or an insurmountable division in our nation.
  • I’m wondering if my life isn’t worth the words “civil war,” “holocaust,” or “tyranny,” entering our daily vernacular (which, if you haven’t noticed, they have).

I have not seen actual numbers or even predictions of how many people would actually LOSE their lives should the quarantine linger on vs. how many of us will LOSE our lives if the corona boogey man be set loose to come and get us. These numbers are probably impossible to know definitively and impossible to compare. I mean, is it even possible to measure pain and suffering? And then, at what point does intensive and widespread pain and suffering equal the cost of a life? This is my conundrum. Is it unfair of me to suggest my right to a life safe from a deadly virus and with a healthcare system able to accomodate me is worth MORE than the price you are all paying to achieve it?

I have seen some terrible things in this life and I truly believe there are things of this earth worse than death. I’m concerned that as a result of this national shutdown and rapidly declining economy, many people are being forced to face some of those things. Dying while still living is worse than death. That’s been my experience, anyway.

I am 53 years old and maybe that’s why I even dare contemplate if my life has less value than others. Our kids have grown – two are happily married and the other two are soaring. So, even if I were to be robbed of 30 years, I’ve still lived fairly long and I’ve lived well. I certainly can’t speak for anyone younger than me. No one should die with children still at home. The truth is, I don’t want anyone to die. I don’t believe in euthanasia, abortion, genocide, or capital punishment and I didn’t think my abhorrence for gun violence could get any worse until I heard how Ahmoud Arbury was shot in cold blood this week.

I truly do believe Every. Life. Matters.

But…. What if …. What if we are FORCED into a corner and were FORCED to decide whose life matters MOST? Are we there and is it time to have this conversation?

IF SO, WHAT’S NEXT?

If this is a war of sorts, then there WILL be casualties. People will die either as a result of the battle with coronavirus or people will die (or, more likely, their dreams, ambitions, and futures will die) as a result of a too-long quarantine. Either way, both are casualties.

I realize simply opening up America is not an automatic death sentence for me. I realize I can CHOOSE to stay quarantined (and I will) and I can CHOOSE to stay away from people who might be potential spreaders (which is everyone, but still I’ll do it) and I can CHOOSE to live isolated like this for a year or two if necessary. I’m not opposed to quarantining the sick and elderly instead of the healthy. But do not tell me this is like “leprosy” or “TB” – because I do NOT actually HAVE the coronavirus and I basically live as a healthy person, yet I’ll still have to quarantine indefinitely so YOU can get your life back and I can hopefully save mine.

I’m just truly wondering if the time has come for me to “head to the front lines” in this battle against coronavirus in the sense that if America opens back up, my vulnerability and risk of infection and death suddenly skyrockets.

I’m seriously just wondering, is it time to let me die?

Filed Under: COVID-19, Lymphangioleiomyomatosis, Suffering, Suicide, Terminal Illness Tagged With: coronavirus, COVID-19, LAM, quarantine

Derailed

March 5, 2020 by Cindy DeBoer 28 Comments

We became empty nesters last August. Because I feared boredom and purposelessness – as well as the fact my medications cost an astronomical amount and my employment offers better prescription coverage – I decided to go back to work full-time. Additionally, after shelving my career for 20 years to raise kids, I was excited to get back into nursing – especially psychiatric nursing.

At least that’s what I told people.  

Another truth is this: I had a big ‘ole chip on my shoulder. I was hell-bent on proving that I physically had what it takes to work a fulltime job like any other healthy 53 year old.

And I did it. I showed myself and the world I can work full-time. But I am definitely not healthy.

I also proved I was living in denial.

The truth is I have a lung-sucking disease and working full time has nearly been the death of me. I kept the job afloat, but nothing else. For seven months I’ve basically done two things: work and sleep. With zero energy left after a day of work, and every day home spent sleeping, I soon felt the sting of deteriorating relationships. I didn’t Skype my kids as much as I/they wanted to. I didn’t spend near enough time with my mom – our last living parent – and I missed her. I had no energy for lunch dates with friends or volunteering in our neighborhood.

Although my pulmonologist says exercise is essential for protecting the last bit of healthy lung tissue I have left, I’ve had no energy to do that either. On top of all THAT, I’m now probably damned to hell, too, because I only went to church ONCE that whole time of working so much.

And maybe, just maybe, the worst part was this:  I stopped writing.

SMELLY PEOPLE GOT ME BACK ON TRACK                                                      

I recently scooted in to my neighborhood Dollar Store that’s sandwiched between an Iraqi-owned liquor store and a Psychic Angel who takes walk-ins. I was running late (surprise!) and I sighed in frustration when I got to the counter and was fourth in line. (The Dollar Store is not typically known for it’s speedy checkout, if you didn’t know…) First in line was a toothless woman, smacking her gums, buying a full week’s worth of groceries. ARE YOU KIDDING ME??? The next lady sported a good five-day bed-head, wore pink footed pajamas underneath her coat and boots, and was purchasing four 2-liters of Mountain Dew. AT 9:30 IN THE MORNING??? The guy just ahead of me was lugging his oxygen tank, breathing like Darth Vader, and buying cough syrup, cough drops and fever medicine. LORD, PLEASE LET THIS NOT BE CORONA!!!

My three compatriots smelled like cigarettes, booze, bacon, and body odor.

I rolled my eyes and checked my watch. These neighbors of mine who shop at the Dollar Store to meet all their needs were making me (more) late. I was angry and somewhat disgusted with them. Then the old man ahead of me turned around, and with twinkling eyes and a smile said: “Good thing no one’s in a hurry.” His breath was so hideous I nearly fainted. But God used all those smells to reorient me.

A few years ago, when we moved to the city, I chose my new grocery store in an unorthodox manner. There are two lovely stores close to our home – always clean, well-stocked, nice checkout clerks. But just to the north, through the roughest part of our neighborhood, is one of Michigan’s oldest Meijer stores – but it doesn’t smell quite right. There have been murders in the parking lot. With my first visit, I immediately knew this would be my new “home” store.

Paul was inquisitive about this decision and I explained, “We came here for diversity. I don’t want to smell perfume and flowers when I go shopping, I want to smell humanity.”

Standing in line at the Dollar Store I was struck by how derailed I’ve been. THESE three in line ahead of me are my people! These are the people we moved here for! These are the smells I love because it represents REAL people with REAL needs and REAL hurts. I don’t want to live in a fake utopia. I want to live in the real world and be constantly reminded of the reality of suffering. That is why we moved to Grand Rapids – to DO LIFE with these neighbors.

More than anything, we moved to the city so we could encounter people not like us and spend time with them and learn from them. The LAST thing I wanted to be was too busy, too important, or too good to love them! The LAST thing Paul and I ever wanted to be were typical rat-race-suburbanites simply transplanted to the city and subsequently disgusted with the people around us!

I had been derailed! I forgot who I was!

REMEMBER WHO YOU ARE, AND WHOSE YOU ARE

Feeling fairly healthy these last seven years, I’d forgotten a bargain I’d made with God. When I was first diagnosed with LAM, I had told God I’d live my life solely investing in the lives of others if he’d just give me 10 more years to live. But as time progresses and it appears maybe I’ve drawn the long stick with this LAM disease and might even live considerably longer than 10 years, I forgot about living my life with total intentionality. Sure, I can make good money working, but there’s not a damn thing I want in this life that money can buy.

And then – dang – if God didn’t use ZEPHANIAH of all books to speak to me this week: “I will bring such distress on all people that they will grope about like those who are blind, because they have sinned against the Lord. Their blood will be poured out like dust and their entrails like dung. Neither their silver nor their gold will be able to save them on the day of the Lord’s wrath.”

I had made plenty of “silver and gold” during my derailment, but I’m terrified of the thought of my entrails spread out like dung because I had chosen money over matter.

THE BEAUTY OF DERAILMENT

However, the good news is this: derailment does not have to mean train wreck. It doesn’t mean all is lost. It doesn’t mean throw in the towel or burn it all down. The beauty of derailment is that, if we’re willing, it can be corrected.

God never moves, but sometimes we do. His train tracks are eternally secure, we just sometimes veer off them. But he is always patient with us and will wait as long as it takes for us to get back on track.

“Let us examine and probe our ways, and let us return to the Lord.” Lamentations 3:40

“And I am confident of this very thing, that he who begun a good work in you will be faithful to complete it until the day of Jesus Christ.” Phillipians 1:6

So I’m back to volunteering, spending time with friends and family, and taking long walks with Paul while we solve the world’s problems. And I’m back to writing again.

Here we go!

(p.s. If you want to stay informed of my book progress, please sign up with your e-mail address on my website so you can receive my newsletter updates and prayer requests)

Filed Under: City Life, Contentment, Lymphangioleiomyomatosis, Suffering, Terminal Illness

Don't Listen To Me – Go With Steve!

September 26, 2019 by Cindy DeBoer 5 Comments

Today, I planned to share how shitty I feel.

I planned to rant about my lung disease and how unfair it is that as a non-smoker I’m suffering from something totally similar to COPD.

I planned to curse a lot and tell you what it’s like to have a disease no one can outwardly see.

I planned to expose some vulnerability and tell you that all my days are not positive and sometimes I just want to cry and feel sorry for myself.

I planned to share what a “BAD LAM DAY” looks like (this is what my LAM sisters and I call them) – where simple things like taking a shower, walking through a parking lot, or taking a flight of stairs leaves me so exhausted I want to take a nap.

I planned to write a post that doesn’t end with smiley faces, exclamation points, and “Isn’t Jesus wonderful?” like I typically do.

I planned a bunch of things in my head for today’s post.

But then today unfolded…

I lead a group of 6th and 7th grade girls in a Discipleship Program at the Potters House School where I volunteer. Their Bible verse for today was this: “When Jesus spoke to the people he said, ‘I am the light of the world. Whoever follows me will never walk in darkness.’” John 8:12

I decided hearing the true life story of a blind man would fit with the verse perfectly, keep the girl‘s attention, and hopefully aid them in memorizing the verse.

So I asked Steve to come speak to our group.

About 30 years ago, as a married man with two children and one on the way, Steve began losing his eyesight from a devastating disease called: Retinitis Pigmentosa. He fought through diminishing eyesight for several years and managed to continue driving and keep his job. But, eventually, with three young children and the weight of providing for his family on his shoulders, he could no longer deny it – he was legally blind. Today, Steve can see absolutely nothing.

Steve shared how he initially bargained and became angry with God after his diagnosis. He shared how debilitating his anxiety became as he faced a future of KNOWN blindness. But the GLORY of his story comes as he realized he had only been looking at the negative side of being blind. Until one day when he imagined Jesus hanging on the cross (the most negative experience known to man: crucifixion) and he realized the cross makes a “PLUS” sign! The cross, by it’s very nature of construction, forms a POSITIVE symbol!!!

This realization turned Steve’s world around and he began writing all the things he was thankful for. He wrote POSITIVE statements about his situation, instead of negative. At one point he told our group, “In a way, I have found freedom in my blindness. You are all DEPENDENT on your eyesight. I am INDEPENDENT of that sense, so I am not bound by it. When I look at it that way, I experience a new kind of freedom.”

Steve may be the most POSITIVE and OPTIMISTIC person I know. And he’s totally blind.

First one, than two, than three tears were streaming down my face. Steve had touched me in the depths of my pain.

All I could see about LAM today was that it was disabling me, making me feel “less than” and “less able.” In a swift moment, Steve helped me to see that I’ve been made free from having to be as productive as most people. As healthy people so often DEPEND on their ability to accomplish much, I am INDEPENDENT of that pressure. My body tells me what I can and cannot do, and there’s not a darn thing that can be done to change it. So, in a sense, I am free from that pressure.

Oh friends! The JOY of the LORD is our STRENGTH! And He alone will give us the insight and power to take the hardest, most painful parts of our lives and turn them around into something that can be used for HIS GLORY!

God alone can show us the POSITIVE when all we can see is the NEGATIVE!

So everything I had planned for this blog was trashed.

Steve showed me a better blog.

Go with Steve!

Filed Under: Contentment, Joy in the Journey, Lymphangioleiomyomatosis, Suffering, Terminal Illness, Uncategorized Tagged With: blindness, LAM, Retinitis Pigmentosa

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