Notice: Function wp_enqueue_script was called incorrectly. Scripts and styles should not be registered or enqueued until the wp_enqueue_scripts, admin_enqueue_scripts, or login_enqueue_scripts hooks. This notice was triggered by the nfd_wpnavbar_setting handle. Please see Debugging in WordPress for more information. (This message was added in version 3.3.0.) in /home1/cindydeb/public_html/wp-includes/functions.php on line 6078

Warning: Cannot modify header information - headers already sent by (output started at /home1/cindydeb/public_html/wp-includes/functions.php:6078) in /home1/cindydeb/public_html/wp-includes/feed-rss2.php on line 8
Lymphangioleiomyomatosis Archives - Cindy DeBoer https://cindydeboer.com/category/lymphangioleiomyomatosis/ Wed, 22 Nov 2023 06:11:39 +0000 en-US hourly 1 https://wordpress.org/?v=6.5.2 https://i0.wp.com/cindydeboer.com/wp-content/uploads/2020/10/cindydeboericon.png?fit=32%2C32&ssl=1 Lymphangioleiomyomatosis Archives - Cindy DeBoer https://cindydeboer.com/category/lymphangioleiomyomatosis/ 32 32 184530663 It’s Been Ten Years… So Why Am I (still) Alive? https://cindydeboer.com/2023/11/22/its-been-ten-years-so-why-am-i-still-alive/?utm_source=rss&utm_medium=rss&utm_campaign=its-been-ten-years-so-why-am-i-still-alive https://cindydeboer.com/2023/11/22/its-been-ten-years-so-why-am-i-still-alive/#comments Wed, 22 Nov 2023 06:11:32 +0000 https://cindydeboer.com/?p=4367 On the day before Thanksgiving, 2013, in a closet-sized, moldy-smelling exam room, a University of Michigan pulmonologist confirmed my fear: the shortness of breath I’d been experiencing was due to a rare, progressive, degenerative, and often terminal lung disease, Lymphangioleiomyomatosis (LAM). Paul and I sobbed the entire drive home from Ann Arbor. Not surprisingly, a […]

The post It’s Been Ten Years… So Why Am I (still) Alive? appeared first on Cindy DeBoer.

]]> https://cindydeboer.com/2023/11/22/its-been-ten-years-so-why-am-i-still-alive/feed/ 10 4367 Same Kind of Wounds as Me https://cindydeboer.com/2022/04/07/same-kind-of-wounds-as-me/?utm_source=rss&utm_medium=rss&utm_campaign=same-kind-of-wounds-as-me https://cindydeboer.com/2022/04/07/same-kind-of-wounds-as-me/#comments Thu, 07 Apr 2022 17:07:13 +0000 https://cindydeboer.com/?p=4302 I noticed her and those tell-tale marks on her face from far across the room. At the first break of our writer’s conference, I ran over to her, breathless with anticipation. “Hey, I don’t mean to be weird or anything, but I notice that you have nasal cannula indentations on your cheeks, and I know […]

The post Same Kind of Wounds as Me appeared first on Cindy DeBoer.

]]> https://cindydeboer.com/2022/04/07/same-kind-of-wounds-as-me/feed/ 20 4302 Ode To A Lumpy Body https://cindydeboer.com/2022/02/18/ode-to-a-lumpy-body/?utm_source=rss&utm_medium=rss&utm_campaign=ode-to-a-lumpy-body https://cindydeboer.com/2022/02/18/ode-to-a-lumpy-body/#comments Fri, 18 Feb 2022 16:33:30 +0000 https://cindydeboer.com/?p=4290 Hairy legs and sun-burnt nose When at the beach, anything goes. Unbrushed teeth and happy-hour drinks This much I know: my breath stinks. Fish for dinner plus a fruity potion Diet be damned, I'm at the ocean. Sand in my bed, and in my salt-fried hair, Sir, what is the time? Wait. Why do I […]

The post Ode To A Lumpy Body appeared first on Cindy DeBoer.

]]> https://cindydeboer.com/2022/02/18/ode-to-a-lumpy-body/feed/ 16 4290 Invisibly Dying – A Lament For Those With Chronic Illness https://cindydeboer.com/2022/01/15/invisibly-dying-a-lament-for-those-with-chronic-illness/?utm_source=rss&utm_medium=rss&utm_campaign=invisibly-dying-a-lament-for-those-with-chronic-illness https://cindydeboer.com/2022/01/15/invisibly-dying-a-lament-for-those-with-chronic-illness/#comments Sat, 15 Jan 2022 22:01:17 +0000 https://cindydeboer.com/?p=4275 Our ancient windows are no match for this stiff north wind. Our curtains tremble – just like me. Neighbors on both sides are sleeping. I know this for sure. These urban homes practically touch – holding hands across shared driveways - making daily routines no secret. But the rest of our quirky neighborhood will keep […]

The post Invisibly Dying – A Lament For Those With Chronic Illness appeared first on Cindy DeBoer.

]]> https://cindydeboer.com/2022/01/15/invisibly-dying-a-lament-for-those-with-chronic-illness/feed/ 27 4275 Thanksgiving Eve Sucks https://cindydeboer.com/2021/11/25/thanksgiving-eve-sucks/?utm_source=rss&utm_medium=rss&utm_campaign=thanksgiving-eve-sucks https://cindydeboer.com/2021/11/25/thanksgiving-eve-sucks/#comments Thu, 25 Nov 2021 04:34:08 +0000 https://cindydeboer.com/?p=4245 Sometimes holidays conjure up more pain and despair than joy and celebration. That’s true for me, anyway, on the day before Thanksgiving. It was 2013 and with the table set, the turkey stuffed, and pies complete, my husband and I spent the day before Thanksgiving driving to Ann Arbor to meet with a pulmonology specialist. […]

The post Thanksgiving Eve Sucks appeared first on Cindy DeBoer.

]]> https://cindydeboer.com/2021/11/25/thanksgiving-eve-sucks/feed/ 33 4245 When Is It Time To Let Me Die? https://cindydeboer.com/2020/05/07/when-is-it-time-to-let-me-die/?utm_source=rss&utm_medium=rss&utm_campaign=when-is-it-time-to-let-me-die https://cindydeboer.com/2020/05/07/when-is-it-time-to-let-me-die/#comments Thu, 07 May 2020 18:51:59 +0000 https://cindydeboer.com/?p=3144 My doctor is very clear, if I get CVD-19, it will not go well for me. My stupid lung-sucking disease puts me in the small minority of the population for whom the rest of you are being quarantined. Perhaps you’re experiencing some of the same vacillating opinions as me where one day (maybe even one […]

The post When Is It Time To Let Me Die? appeared first on Cindy DeBoer.

]]> https://cindydeboer.com/2020/05/07/when-is-it-time-to-let-me-die/feed/ 26 3144 I AM OUT OF CONTROL https://cindydeboer.com/2020/03/22/i-am-out-of-control/?utm_source=rss&utm_medium=rss&utm_campaign=i-am-out-of-control https://cindydeboer.com/2020/03/22/i-am-out-of-control/#comments Sun, 22 Mar 2020 20:48:59 +0000 https://cindydeboer.com/?p=2768 When we lived in Morocco, every single day felt like a monumental challenge. It certainly wasn’t because of the people (they were incredibly kind, generous and welcoming). The challenge primarily came from being so out of place – so keenly aware we were foreigners and didn’t have much sense on how to navigate an alien […]

The post I AM OUT OF CONTROL appeared first on Cindy DeBoer.

]]> https://cindydeboer.com/2020/03/22/i-am-out-of-control/feed/ 11 2768 Derailed https://cindydeboer.com/2020/03/05/derailed/?utm_source=rss&utm_medium=rss&utm_campaign=derailed https://cindydeboer.com/2020/03/05/derailed/#comments Thu, 05 Mar 2020 20:14:27 +0000 https://cindydeboer.com/?p=2608 We became empty nesters last August. Because I feared boredom and purposelessness – as well as the fact my medications cost an astronomical amount and my employment offers better prescription coverage – I decided to go back to work full-time. Additionally, after shelving my career for 20 years to raise kids, I was excited to […]

The post Derailed appeared first on Cindy DeBoer.

]]> https://cindydeboer.com/2020/03/05/derailed/feed/ 28 2608 Fat Legs (The Ripple Effect) https://cindydeboer.com/2019/10/24/fat-legs-the-ripple-effect/?utm_source=rss&utm_medium=rss&utm_campaign=fat-legs-the-ripple-effect https://cindydeboer.com/2019/10/24/fat-legs-the-ripple-effect/#comments Thu, 24 Oct 2019 15:47:08 +0000 https://cindydeboer.com/?p=1623 A sunny but cool 60 degree day finally arrived in Michigan and I couldn’t wait to slide into my favorite fall skinny jeans. After digging them out from under the shorts and tees, I slid both legs in and easily zipped them up. But they felt weird. The waist fit the same as I remembered […]

The post Fat Legs (The Ripple Effect) appeared first on Cindy DeBoer.

]]> https://cindydeboer.com/2019/10/24/fat-legs-the-ripple-effect/feed/ 5 1623 Don't Listen To Me – Go With Steve! https://cindydeboer.com/2019/09/26/dont-listen-to-me-go-with-steve/?utm_source=rss&utm_medium=rss&utm_campaign=dont-listen-to-me-go-with-steve https://cindydeboer.com/2019/09/26/dont-listen-to-me-go-with-steve/#comments Thu, 26 Sep 2019 05:36:14 +0000 https://cindydeboer.com/?p=1582 Today, I planned to share how shitty I feel. I planned to rant about my lung disease and how unfair it is that as a non-smoker I’m suffering from something totally similar to COPD. I planned to curse a lot and tell you what it’s like to have a disease no one can outwardly see. […]

The post Don't Listen To Me – Go With Steve! appeared first on Cindy DeBoer.

]]> https://cindydeboer.com/2019/09/26/dont-listen-to-me-go-with-steve/feed/ 5 1582