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Glioblastoma

Six Critical Life Lessons Learned from a Hacker

May 9, 2019 by Cindy DeBoer 5 Comments

I was furiously typing away – hoping to complete another chapter of my book in the two hours I’d managed to wrangle free. Suddenly, a warning popped up on my screen, “CAUTION! You have a virus attacking your computer! Stop immediately and call Apple: 555-5555” (the title of this blog should let you know why I’m not sharing the actual number…)

I’ve heard of these scams. I wasn’t born yesterday or over fifty years ago (okay – a tiny white lie with that one…). But I did know enough to be skeptical. I tried to exit out of the pop-up. No luck – it wouldn’t close. I tried to close all my windows and the Apple wheel of death appeared refusing to budge. So I decided to just shut my computer down (my go-to solution for techy issues). But the computer had totally froze and when I hit the off key it started screaming at me – an unearthly, loud and high-pitched alarm. I frantically tried to stop it by pushing every key on the keypad. Nothing. Totally frozen keyboard and a shrieking computer that hurt my ears.

It felt like satan himself was communicating to me from my computer. (Hmmm…. Now there’s a thought!)

I asked my daughter to quickly access her own device and ask Google if this was a legitimate warning and if I should call the “Rescue” number flashing across my screen. Google isn’t so smart after all: the first thing to appear in her search was an affirmative – Yes, indeed, sometimes Apple will alert you to viruses that are attacking in real time.
So I hurriedly called the number and talked to Rashid. (I know, I know. I know what you’re thinking… the fact that Rashid could barely speak English should have, possibly, been my first clue….) But at first, Rashid was super sweet and helpful. He calmly walked me through the steps necessary to stop the screaming alarm. Then he explained a few more steps that would allow him to interface with my computer, which, he said, was necessary to diagnose the problem. I watched, helplessly, as he navigated the cursor on my screen and moved quickly in and out of windows and in and out of my settings. Then he confirmed my computer had, indeed, been attacked by a wicked virus. The very worst, he said. He pulled up graphs on my screen depicting the damage and just how much of my data had been infiltrated. He said to remove all the infectious material would take about 24 hours and all I had to do was pay $79 and he would fix the whole darn thing.

What a doll, that Rachid.

I may look old and stupid, but I tell you what, once in a while, when the thing is wretchedly stinky, I’m able to smell a rat.

I hung up on Rachid as fast as you can say “India” and slammed my computer shut. I set it in the corner like a bad child and didn’t open it again for 24 hours. The truly honest and genius boy-child at my local computer store fixed everything the next morning in mere minutes. He felt pity for such an old, helpless lady like me to be taken so badly by a hacker that he didn’t even charge me for his services.

Once I calmed down from the debacle, I realized I was actually thankful for everything I learned from Rachid:

1.  We are not in control of squat. As I watched Rachid guiding my cursor all over the screen and clicking away to “convince” me of my desperate need of his services, I felt incredibly helpless. I didn’t know if I should trust him or not – all I knew is this: “I have no control anymore.” It reminded me of how often that is true in life. We want to believe we can control things – but when our child rebels and runs away from home, or our best friend betrays our trust, or we lose our job, or we get the “cancer” call, or we lay our parents down for their eternal rest, or we find out we have a stupid lung disease that’s robbing us of steady breathing and a long life – well, all those moments serve to remind us that we don’t control SQUAT. We are wasting our time and energy trying to control that which we were never meant to have reign over.

2.  Satan is real. A while ago a well-meaning friend told me I look for satan under every bush. She was suggesting that perhaps I give the enemy of our souls more credence than I should. I don’t know, maybe I do. Sometimes I think I just watched too many horror movies in junior high…

But what I know for sure is this: That old Liar roams to and fro looking for ways to steal our joy and wreck our faith in Christ – but the sooner we recognize his schemes the sooner we can put a stop to it! Don’t be afraid to ascribe evil to he who authors it!

3.  We never make good decisions when in the midst of a crisis. When we find ourselves in a crisis, we need to, if possible, BACK AWAY! Give the thing time to simmer down. We need to give ourselves some space to slow our breathing, gain composure, pray, and THEN process the crisis thoughtfully. Only then can we gingerly step forward into finding a solution.

4.  Real, authentic, caring help truly does exist in this world. Go seek it.

5.  Never think too highly of yourself. I was devastated thinking that while Rachid had access to my computer for those 24 hours he was probably reading and stealing all of my information on my computer. My wise, gentle hubby had to (carefully) remind me that I’m not THAT special. We don’t work for the government, we’re not made of millions, and we’re not famous – so what could a hacker really “steal” from my computer that would matter? A blog on how we renovated a crack house??? The little circular I wrote on how to deal with menopause??? The poem I wrote for my dying dad??? Did I really think some hacker from India would steal my Christian memoir book and somehow get publishers to do what I have been unable to do and publish my book under his pseudonym??? Rachid becomes Rachelle and suddenly he is the next Anne Lamott???

 I had to admit, Paul had a point…

6.  If you have nothing to hide, it doesn’t matter who looks at your stuff. Without a single incriminating photo, without essays bashing high-profile people, without massive wealth, and without anything to share except the gospel of Jesus Christ, I should have had NO FEAR of someone stealing my content. In fact, I should have HOPED they would!

My prayer for us today is to not fear the hacker – or anything or anyone set on destroying us. May we be a people unafraid or unashamed of someone looking at our computer content or our browsing history. May we recognize those who are bent on causing pain, hurt and chaos in our lives and STEP AWAY from them whenever possible. And may we not think so much of ourselves or our work that our computer carries more importance than it should.

And may we never forget that when a TRUE crisis arises (and they will, brothers and sisters, they ALWAYS do….) help is only a shout away:
“Hear my cry, O God, listen to my prayer; from the end of the earth I call to you when my heart is faint. Lead me to the rock that is higher than I, for you have been my refuge, a strong tower against the enemy.” Psalm 61:1-8
 

Filed Under: Glioblastoma, Joy in the Journey, Lymphangioleiomyomatosis, Suffering, Terminal Illness, Uncategorized Tagged With: CANCER, DYING, JESUS, JOY, LAM, Suffering, TERMINAL ILLNESS

On Dying Slowly

April 25, 2019 by Cindy DeBoer 12 Comments

One of the lowest, crappiest things well-intentioned people say to you when they find out you have a terminal illness is this: “Well, you know, we’re all dying really.”

Of course we are. Nobody believes these bodies will last forever. But sometimes it just stinks to be me because someone gave me a TIME LINE. I feel like I have an expiration date written on my forehead of which healthy people know nothing about. When we’re healthy (I still remember those days fondly) we don’t really think about dying. In fact, we live as if we’re immortal. While disease free, I’m not sure it’s even possible to wrap our minds around the fact that someday IT will happen to ME…

At least I didn’t. I was living like I’d live forever. Eating shit. Wasting time. Worrying about stupid stuff. Having petty fights. Chasing things. Praying only when life got hard.
These were all things I was going to work on, “Someday”.

“Someday” came crashing down hard on me when “Someone” gave me that lifetime-timeline with an “approximate” end-date. Of course, no one knows EXACTLY when that end-date will be. But, more than likely, my life will be truncated dramatically by this stupid disease.
 
HOWEVER….
 
(In any story worth telling, there should always be a big HOWEVER, right?)

HOWEVER…. With only a few years since my diagnosis and the subsequent slowing down of my life, I’ve learned about a million new things that I wouldn’t have known otherwise.
 

1) Dying slowly provides opportunities to do some life editing.

When people die suddenly (at least those who are past their prime) we humans like to console one another and say stupid stuff like: “Well, at least he didn’t have to suffer”, or “What a wonderful way to go –one moment on earth, the next moment with Jesus.”
I get why they say that stuff. Truth is, no one knows what to say to the dying or the grieving. We all just clamor for a few words and they always come out sounding stupid.

What I do know from my own experience is that when you find out your life may be cut short by an illness, but not immediately, you are left with a lot of time to think.
Some people, upon learning their days are numbered, might run out and get busy, busy, busy – doing all the things they’ve always wanted to do and seeing all the people they’ve ever known. Not me. I’ve SLOWED way down. I’m sleeping more (a holy activity, if you ask me), I’m praying more, watching nature more, sitting quietly on my porch and just thinking more, and doing LESS of the things that people generally ascribe importance to in their lives: work, entertainment, social engagements, etc.
Some days, every breath feels so incredibly holy that I just want to sit in silence and savor it. I want to thank God for every inhale and exhale and I don’t want to miss that opportunity by being busy. Dying has put God right in my face and being busy makes me feel like a shmuck because I can so easily ignore Him.

And so I think God gave me the opportunity to die slowly in order to ditch some baggage and edit my life down to a quieter, slower, better version of myself.
 

2) Dying slowly gave me new eyes to see things I’d previously overlook.

The tree outside my office window (the reclaimed crack-room) had small buds for leaves one day, and on the VERY NEXT DAY they grew an INCH! Yes, I measured!!! An INCH, my friends, in less than 24 hours!!! Do not tell me there is no God.
Squirrels can actually mate on the run. It’s true. I watch them do it on the regular from my little crack-room-office.

Whenever Yulisa is excited or has exciting news to share with me her right eyebrow pops up just a little higher than her left one. If her emotion is better described as happiness, then her eyebrows stay even.

There is a very disheveled man who meanders through the parking ramp of my downtown market every Tuesday and begs people for money. Only on Tuesdays. And he smells like homelessness and his shoes have holes in them. The first time I stopped, looked him in the eye, and told him I’d buy him some bread and apples, he looked directly back and me and said, “Thank-you. And Thank-you for noticing me.”
 

3) Dying slowly gives you time to say all the things you’ve meant to say, or should have said, or simply haven’t said well in the past, to all the people you love the most. 

I’ve got some work to do on this yet – but I’m glad I still have more time to do it. I’ve tried to reach out to all the people I knew I had hurt or at least fell short on my end of the relationship responsibilities and I’ve asked for forgiveness. I know there’s more out there, and I hope I can talk to them all eventually.

My sister Heidi had 13 months from diagnosis ‘til heaven – and she was very sick and battling fiercely the entire time. She was robbed of the chance to leave much of a written “love letter” for her family regarding their futures. I’m still mad at God for that. So I’m trying to write down all the things I’d most likely say to my kids when I’m in my 60’s, 70’s, 80’s – just in case I don’t see those decades. I also want to address my future sons-in-law and future grandchildren in case I never get to meet them.
 
 
I think if I spent a little more time on my porch quietly thinking I could expand this list to at least 25 things – because OF COURSE there are more than THREE things that dying slowly has taught me. But they say blogs should never be more than 1000 words…. Whoever “they” are must know that you, the reader, are losing interest right about now….

I’ll just say this: Dying sucks always. Dying immediately like my cousin Zac at 23 in a tragic car accident, or my friend’s father by heart attack, or the lady down the street who’s husband passed in his sleep leaving her with 10 kids – those situations suck WAY worse than mine. I have found some solace in dying slowly and I’m trying to make the most of it. 

Do not feel sorry for me. But instead, thank God for all the ways He uses evil in this world to draw others toward HIM!!! I am.
 
 
 
 
 
 
 
 
 

Filed Under: City Life, Glioblastoma, Homelessness, Joy in the Journey, Lymphangioleiomyomatosis, Prayer, Simplifying Life, Suffering, Uncategorized Tagged With: CONTENTMENT, DYING, HEAVEN, JOY, LAM

The Best and Worst Christmases Ever

December 21, 2018 by Cindy DeBoer 20 Comments

People love to reminisce of Christmases past. But for me, reflecting on past Christmases will always present a horror: It was Christmas morning, 2016, when we received the call that my youngest sister Heidi was in the hospital. It’s serious, they said. Come right away.

That may always be our worst Christmas – discovering Heidi had glioblastoma brain cancer and was given a year or two to live. The following Christmas, Heidi made it to the party, but barely. She joined Jesus just two weeks later.

There is simply no JOY in that story. None. How do we as a family keep that memory from stealing our JOY this Christmas and every year to follow? I wasn’t so sure it was possible…

But, in spite of myself, I did some Christmas reflection – searching for Christmases past that would hopefully stir some joy-filled memories. This is what I remembered:
Our first Christmas living in France was life-altering and left a permanent imprint. Since it was our first time living abroad, I was clueless on what to bring from the states and never even considered Christmas decorations. It seemed so frivolous. But as that first Christmas rolled around, we soon realized our house looked sad. We had zero decorations and basically no budget to buy any.

We told the kids to lower their expectations for Christmas that year – things would be VERY different on the east side of the Atlantic. There wouldn’t be multiple family gatherings. There’d be no snow or skiing outings. There’d be no trips to the mall or shopping sprees. And there’d be no drives through wealthy suburbs to look at Christmas lights. In fact, because we used our life’s savings to live in France (which bottomed out quickly from the rapidly declining dollar value), we explained that funds just weren’t available for presents. We prepared them for a simpler Christmas where we’d just focus on Jesus’ birth.

The kids had become so used to things being different from “back home in Michigan” that the news didn’t create much of a stir.

But one day, it was crafty Grace who could take it no more and started making paper-chains. With zero colored paper, she just made one extremely long chain with white computer paper. On her insistence, but to my chagrin, I hung that chain across the long expanse of our family room/dining room. It looked pathetic – like a 4-year-old had made it – because one had.

Christmas was two weeks away and so far we had one lonely white paper-chain draped across the family room like a sagging clothesline. But I swallowed my Christmas pride and told Grace we needed several more paper chains to complete the look. She made eight more and once they were strung up, the whole family room/dining room had a white paper-chain canopy overhead and it looked kind of, well, wintery. It may also have looked like a third-grade classroom in a poor inner-city school district, but hey, it was something.

We couldn’t find a Christmas tree farm to save our provincial butts. So we tracked down a 4-foot potted Scotch pine at a local nursery and plopped it on a table in the corner. It would have given even Charlie Brown grief. However, I sat little Gracie down with more white computer paper strips and she made more paper-chains for the tree. We then strung popped popcorn to make more garland. The following day a family who was moving back to the states stopped over with a box of junk they couldn’t fit in their luggage. At the bottom of the box were two strings of white lights. Jesus loves me, this I know.

Next, I showed the kids how to make paper snowflakes. They plastered them all over our windows and French doors. If there had been Instagram back then my pics would have received many likes. The kids’ excitement was mounting.

Miraculously, we received two unexpected deliveries. First, a huge package in the mail containing gifts from my family in Michigan – one for each of our kids. There would be gifts on Christmas morning after all! Second, a whole suitcase of surprises arrived (carried over by a random Michigan acquaintance). It was sent with love from the Outreach Team at our church. Inside we found all sorts of Christmas wonder: gifts for each of us, Christmas cookie cutters, sprinkles and icing, Christmas movies, wrapping paper and gift bags, wooden ornaments, a rustic-looking table runner, and a wooden angel tree-topper. Adding those decorations to our white winter-wonderland made everything chic and modern-farmhouse-like. I am the OG Joanna Gaines…

On Christmas Day, we started the day with pancakes (because as long as you have flour, eggs, milk and baking soda, they taste the same on every continent), followed by a reading of the Christmas story – slowly this year – to fill the gap left from all the things that usually fill Christmas Day. Next, we opened those precious few gifts – again, much slower than Christmases past – savoring the meaning and thought behind each one.

That afternoon, we met up with another family and filled over 100 small bags with Christmas candy and a little piece of scripture that shared the good news that Jesus was born and still lives today! Our combined tribe of ten spent the whole afternoon passing out the candy bags to passers-by in the city of Aix. We laughed and sang and danced in the streets. We successfully made most of those serious French people smile! This– this act of love that we never would have had time for on a typical Michigan Christmas Day – this was truly the spreading of Christmas cheer.

Without fail, whenever asked about their favorite Christmas while growing up, all four of our kids will say their Christmas in France. It was the simplest Christmas ever – barely any gifts and no real parties – but the kids unanimously pick it as their favorite. Isn’t that telling?

My revelation has been this: from the worst of Christmases to the best of Christmases, it isn’t about where we are, who we are with, what things look like or taste like, or whether we receive the Fit-bit we asked for. And furthermore, it’s definitely NOT about what crisis we may be in the middle of. Christmas is ALL about Christ stepping IN TO those situations and circumstances and bringing us the same reminder and promise year after year after year – He is with us.

It’s really not the circumstances around us that define whether a Christmas is defined as a “good one” or a “bad one”. Even as I continue to grieve Heidi’s passing and I reminisce over special Christmases spent abroad, all I really need to know (all any of us really need to know!) to have the most JOYous of holidays is so simple (yet so easily missed) – it is the recognition of the power of the name: Immanuel.

Immanuel – God with us. When we know that, believe that, and live in that truth, Christmas is beautiful. No matter who you are, where you are, or what you’re going through, Jesus is our Immanuel. Rejoice!!!

Filed Under: Glioblastoma, Joy in the Journey, Life Overseas, Michigan, Suffering, Terminal Illness, Uncategorized

A Lament for Heidi

January 8, 2018 by Cindy DeBoer 91 Comments

IMG_4338After a long 24 hour bedside vigil, I was finally able to come home, change my clothes and shower. But it’s not over. I’ll go back to her bedside shortly, and breathe in her precious smell until she smells like heaven.

I know how this goes. My youngest sister will be the fourth beloved, precious family member we will lose in just over a year.

Oh, Lord, I just don’t understand. What is going on here???

Last year, on Christmas morning no less, we first learned Heidi had a brain tumor. Later that same week we were informed it was glioblastoma – the fastest growing, most deadly and ruthless form of brain cancer with an average prognosis of 12 – 14 months Screaming into Nothingness (when God disappears). Here we are, in month 13 and she is days (maybe hours?) away from dying. Heidi is anything but average, but in death, her numbers will align fairly well with the statistics.

She will leave behind a husband, Chad, who has been her best friend since forever. They were married 23 years. Chad and Heidi have two children – Ashley, 17, a high school senior, and Nate, 14, an eighth grader. Don’t tell me they’ll be okay. They won’t – at least not yet. Their momma is about to die.

Oh, Lord, I just don’t understand.

It’s NOT okay to lose your momma when you’re a teenager. I have analyzed this situation from every angle and I can find nothing that makes sense or eases the pain. And I think I could punch someone in the face right now who tries to tell any of us how God works all things together for the good.

There is no way this can be good. No way.

Unless, perhaps…. Unless I don’t understand what “good” really is….

As a family we have all wrestled with mortality and God and His plan throughout Heidi’s illness. But one night, while in a long nighttime wrestling match with God, I suddenly wondered if His idea of good is simply not the same as ours. Maybe He doesn’t have a Webster’s. Maybe when He Google’s “good”, He doesn’t read of the things we typically think of (health, wealth, prosperity, fitting into your size 6 jeans, sipping wine along the Cour Mirabeau in Aix-en-Provence, France…)

If God is good, and I have NO DOUBT He is, then His definition of good CANNOT be the same as ours.

Because, Oh, Lord, I just don’t understand you otherwise.

It’s interesting, but in my experience, the things that we typically think of as “good” and as our “blessings” are often the things that create a separation between God and us. They are things that, often unintentionally and often subversively, lead us to believe we don’t need a God. Things like enough money (or too much), enough food (or too much), enough vacation (or too much), enough or too much of everything, as well as the absence of disease and absence of trials.

Conversely, it is the sufferings of this life that bring us to our knees and to the place where we find our desperate need of a Savior.  And I believe that more than anything God longs to draw us closer to Him. He wants nothing more for all to come to know him and accept the saving knowledge of Jesus Christ as Savior.

So what if maybe, just MAYBE…., in God’s dictionary, “health” is not the absence of disease, but, instead, one who knows he/she is nothing apart from Christ, and that we live and breathe and have our being in Him alone.  Since God IS good, and longs to give us good things, MAYBE, “health” has nothing to do with our physical bodies.

Maybe, in God’s dictionary, “wealthy” does not refer to one who has a hefty savings and retirement account, drives a fancy car, and owns all manner of material possessions. Maybe being wealthy actually means to understand that friends, family and a purpose in life are some of the richest gifts offered to us. Maybe we’re rich when we realize how little we actually need “things” and start living more simply – when we have more time for people instead of accumulating and maintaining our “things”.

Maybe wealth is the opposite of what we always thought.

Maybe, in God’s dictionary, a “blessing” isn’t a concept we can actually get our heads around. Maybe, saying we’re “blessed” when referring to health, wealth, jobs, children and good fortune causes great pain to those struggling with cancer, infertility, unemployment, a prodigal son/daughter, rape, poverty, oppression, rejection, loneliness, etc. because it implies God has withheld His blessings from those people.

ESPECIALLY – oh especially – when we Christians suggest it is the LACK of faith that produces suffering in this life are we guilty of serious theological malpractice!

Are suffering people NOT blessed???  Are we able to escape all trouble and heartache if our faith is simply strong enough??? When people suffer from the evils in this world is it a reflection of their lack of faith???

Hell no.

It just can’t be. Or God is not good. God must have a different definition of “blessed” then we do.

Otherwise, God, I just don’t understand.

So, I decided to start reading God’s dictionary. I cannot make sense of Heidi’s passing any other way. I need a God who IS GOOD. One whom I can trust even when I’m angry at Him. One who IS PRESENT everywhere. One who doesn’t pick and choose favorites and grant the rich, the beautiful, and those born into first-world countries more “blessings” than the rest.

This is what I found in God’s dictionary:
“Blessed are the poor in spirit – for theirs is the kingdom of heaven.
Blessed are those who mourn – for they shall be comforted.
Blessed are the meek – for they shall inherit the earth.
Blessed are those who hunger and thirst for righteousness – for they shall be filled.
Blessed are the merciful – for they shall be shown mercy.
Blessed are the pure in heart – for they shall see God.
Blessed are the peacemakers – for they shall be called children of God.
Blessed are those who are persecuted because of righteousness – for theirs is the kingdom of heaven.” Matthew 5: 3 – 10

So as I resume this bedside vigil there are TWO things I can know for sure: Chad and family will be comforted. And Heidi, well, she shall soon see God, for she is truly pure in heart.

This precious family does not have the “blessings” that most people think of – they are in the valley of the shadow of death and this is an impossibly sad and difficult place. But, I’ve just GOT to believe that according to God’s dictionary, they are blessed indeed.

Otherwise, Lord, I just don’t understand. You just don’t make any sense to me.

And then the Lord said to me:
“Trust in the Lord with all your heart, and lean not on your own understanding.” Proverbs 3:5

Filed Under: CANCER, Glioblastoma, Popular, Prayer, Suffering, Terminal Illness, Uncategorized Tagged With: CANCER, DYING, HEIDI, Suffering

Screaming into Nothingness (when God disappears)

February 17, 2017 by Cindy DeBoer 20 Comments

Christmas moimages-2rning. As our girls tore into their stockings hung by the chimney with care, the phone rang. The phone call that changed everything. From now on, life will be defined as either “before” the call, or “after” the call.

My 45 yr. old sister had been rushed to the hospital after waking up with right-sided paralysis, vomiting and headache.

We’re a tight family. Without a second thought, we trashed our Christmas plans and bolted up to the hospital as well. And by “we” I mean, everybody – Grandmas, aunties, uncles, brothers, sisters, kids, and cousins. Someone pointed out how we must have looked like the Bravermans in the final episode of Parenthood.

Together, we exited this comfortable and familiar world called “normalcy” and were forced to enter a foreign galaxy called: “Neurology ICU”. Here, no English is spoken. Here, the air is thin and breathing is difficult. Here, minutes are hours and waiting becomes your livelihood. Here, appetite’s no longer exist. Here, sleep is stolen in 10 minute increments – in chairs – next to strangers who smell as if they haven’t showered in days. Here, you don’t remember if you’ve combed your hair or changed your underwear or brushed your teeth – but also, you don’t care. Here, you cry a lot.

ICU. IV. CT scan. MRI. Decadron. Dilaudid. Emesis. Norco. Emesis. Toradol. Emesis. Hemmorhage left parietal lobe. MRI. CT scan. PET scan. ICU. Tumor in eloquent area of brain. Differential diagnosis: Glioma. MRI. Surgery. MRI. ICU. EEG. Seizure? EEG. MRI. Diagnosis: High-grade Glioblastoma.

Welcome to our newest Galaxy: Brain Cancer.

And the common denominator of all those gathered in this galaxy? We are lost. None of us know our way around here. None of us know what to say, what to do. None of us know what we want, what we need. None of us know what questions to ask. None of us want to go home, none of us want to stay. None of us can eat.

None of us can pray.

None of us feel God anymore. We are told He inhabits this galaxy, too – but it doesn’t seem possible. There is so much pain and suffering and heartache and anguish here – this feels more like hell. God cannot inhabit hell, can He?

We wail and cry and mourn in this galaxy. It’s the only thing that comes naturally. And our cries turn into screams. And we scream into what feels like nothingness…

And yet…..

And yet….. our phones were lighting up from all the saints – the incarnate Jesus people – saying they were praying and giving us scripture to hold onto.  All the things we could not do.

Screaming into nothingness was all we knew to do. But the Jesus-people took it from there:

  • If you’ve ever hit “like” on the Facebook post for the hospitalized person simply to show you’re out there and you care – it mattered.
  • If you’ve ever typed the simple word, “praying” on a carepages post – it mattered.
  • If you’ve ever dropped off bar-b-que on the porch of someone going through a crisis because you know they’ll eventually need it – it mattered.
  • If you’ve ever just showed up in the ICU waiting room with a basket-full of munchies and a tray full of subs – it mattered.
  • If you’ve ever awaken in the middle of the night and thought of someone in a crisis and then prayed for them – it mattered.
  • If you’ve ever felt God supernaturally gave you scripture to be shared with someone in crisis – it mattered.
  • If you’ve ever just hugged someone – really hard and really long – because the deep pain of the situation left you with nothing to say – it mattered.
  • If you’ve ever brought food to the home of someone in crisis even though they said they didn’t need any more – it mattered.
  • If you ever sent a “thinking of you” card – even a lame, dusty, covered-with-pink-grandma-style-peonies, cheap one that you resurrected from the bottom of your “card drawer” – it mattered.

When lost in the galaxy of brain cancer – or lung cancer, or breast cancer, or any cancer for that matter; or divorce, or reactive-attachment disorder, or death, or job loss, or the rejection of adult children, or alzheimers, or heart failure, or marriage infidelity, or financial ruin, or ALS, or any other crisis that launches you from earth – you cannot find your own way back. You truly are lost. And you cannot pray.

And the thing is, you’d stay lost in that galaxy forever – screaming into nothingness forever – if it weren’t for the Jesus-people who stepped up and prayed. In a crisis, the Jesus-people aren’t praying with you, they are praying for you.

I wonder.

I wonder if the Holy Spirit speaks through the prayers, the actions, the cards, the hugs and the bar-b-que, of the Jesus-people and if that’s what this scripture means:

“In the same way, the Spirit helps us in our weakness. For we do not know how we ought to pray, but the Spirit himself intercedes for us with groans too deep for words.” Romans 8:26

Filed Under: CANCER, Glioblastoma, Prayer, Uncategorized

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