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Contentment

Invisibly Dying – A Lament For Those With Chronic Illness

January 15, 2022 by Cindy DeBoer 27 Comments

Our ancient windows are no match for this stiff north wind.
Our curtains tremble – just like me.
Neighbors on both sides are sleeping. I know this for sure.

These urban homes practically touch – holding hands across shared driveways - making daily routines no secret.
But the rest of our quirky neighborhood will keep me company until about 3:30 a.m.
At which time even the college students sleep.

.

Not me.
Sleep is totally foreign to me – like Tajikistan or Uttar Pradesh – places I can’t even imagine.
Once again, I can’t breathe.
Is it the meds? Side effects? A lack of oxygen? Anxiety? COVID?
Tajikistan feels nearer to me than sleep.

.

A serendipitous encounter at the grocery store
And an old friend says I look great – but I know she’s shocked by the bags under my eyes.
So am I. They’re alarmingly large.
Go ahead and stare at my grey eye-barnacles – perhaps I even want you to. Because I’m not okay and sometimes I wish it were more visible.

.

I’ve given in to the fact I can’t keep up with the others.
Of course, I still WANT to run, and sing, and dance, and visit all the countries.
I WANT to clean my own house and cook my own damn meals.
I WANT to go back to work so we have more money to give away.
I WANT to go on every walk my dog thinks is necessary.

.

Those of us invisibly dying wonder how to tell you.
We worry if we tell you how we’re really feeling you’ll judge us for being complain-y.
We worry if we don’t tell you how we’re really feeling you’ll assume we’re fine.
We worry you won’t believe us because our hair isn’t falling out.
We worry you’ll tell us what miracle treatment your neighbor’s cousin’s daughter sought for her own bizarre disease that is nothing like ours.
We worry you’ll weary of our weariness.

.

So those of us invisibly dying pretend we’re fine.
It just works better that way.

.

There’s a good chance my body isn’t dying as fast as my mind.
My body is made of tempered glass – thick and durable, but still, it’s glass and it has plenty of cracks.
My mind is also glass, but the thinnest, most delicate, tenuous kind that cracks with even a nasty look. It shatters easily and often.

.

I tell myself to be strong.
I pray.
I ask God to make me strong.
I ask God to stop the insanity going on in my head.
I don’t know if he’s not listening or if this is just the best he can do, but I still feel insane.

.

I worry that my faith is wavering.
I worry what Jesus thinks about wavering faith.
I worry this is depression.
I worry if I tell someone that, someone else will throw another medication at me, and dear God, for all that is sacred and good, please no more medication. PLEASE!
I worry that I’m not making the most of my limited days – HGTV, Longmire and Ted Lasso stealing days from Bible Studies, serving the poor, volunteering at school, and other wholesome things.
I worry that even if the pandemic doesn’t kill me, it’ll still have zapped all my emotional, spiritual, and intellectual energy anyway and I’ll be useless for whatever years I have left.

.

If you’re invisibly dying, people just really want you to act normal.
Because if something’s invisible, we can choose if we want to believe it or not.
Like faith.
Like time.
Like Venmo.
Like COVID.
Like Jesus.

.

I’m pretty sure I would not prefer to be visibly dying.
To those who are, my heart bleeds for you.
I don’t know which is worse - the flippant sympathy of others who can obviously see you’re dying or being treated normally when you’re not normal.

.

But my lungs have holes in them and today I hear an audible wheeze that doesn’t even make sense to the doctors. And now I’m worried that this is the sound of oxygen leaking out when it should be going to my brain because nobody with a well-oxygenated brain would write such a sad diatribe. I regret it even as I write it.

.

But I do sometimes act like a person with not enough oxygen to the brain.
I yell too easily.
And hurt people.
And forget things.
Like appointments -
And promises.
And ideas.
And that which I want to forget, I can’t.
I can’t forget the reoccurring dream where I'm not wearing a  shirt or bra in public and even though I plead with everyone in sight, no one has anything I can cover up with. 
The relevance of that dream to this post is not lost on me. 

.

I don’t care anyway. I’m invisibly dying.

.

I want to be the strong Christian who writes lovely things about faith and courage and strength and the way God always swoops in and saves the day.
I want to be the one people remember as always positive and encouraging.
And now I worry that I’ve just blown that.

.

Invisible is the worst thing to be.
I’d never choose it as my super power.
I’d choose flying for sure – so I could fly off to every country in the world and meet ALL the people from all the continents and learn all their languages, eat all their foods, study all their cultural practices and religions.

.

How can I show you, oh loves, that I’m still me?
How can you know that as I invisibly slip from this failing shell, I still want to laugh?
How do I tell you I ache, without you feeling sorry for me?
How do I let you into my darkness without darkening your world?
How do I let your light in without letting my darkness seep out?
Will we ever get this right?
Will I exhaust all my relationships with my exhaustion?
Will I run out of energy to find peace and wholeness before my days run out?
Will there be an actual heaven waiting for me that will make sense of all of this?

.

Will I be visible in heaven?

.

The more I come to terms with dying invisibly
The more I’m sure I see my invisible God.
What I used to only see dimly – as if looking through a thick glass*
Is now starting to take shape – the slightest imagery of something I've always known but just couldn't see - now new and afresh. Real.
And I don’t hate it.

.

Maybe today I seem visibly shaken.
Tomorrow, most likely, I’ll seem to have it all together again.
And that’s just how it goes when you’re invisibly dying.
*1 Corinthians 13:12

Filed Under: Contentment, COVID-19, Depression, Lymphangioleiomyomatosis, Prayer, Suffering, Terminal Illness, Trusting God Tagged With: Chronic Illness, COVID19, LAM

Thanksgiving Eve Sucks

November 25, 2021 by Cindy DeBoer 33 Comments

Sometimes holidays conjure up more pain and despair than joy and celebration. That’s true for me, anyway, on the day before Thanksgiving. It was 2013 and with the table set, the turkey stuffed, and pies complete, my husband and I spent the day before Thanksgiving driving to Ann Arbor to meet with a pulmonology specialist. She confirmed what we had already feared: I have Lymphangioleiomyomatosis (LAM) – a very rare, progressive, degenerative, and debilitating lung disease.

I despise the day before Thanksgiving.

And, in true fashion, this year hasn’t let me down. Although our refrigerator is packed with a 16 lb. turkey, every vegetable known to man, multiple pies, and drinks of every color, I cancelled the festivities for tomorrow because I (of all people who should know better) have had a significant exposure to COVID. While for the last two years I’ve done everything in my power to stay COVID free (which my doctor warned me would “not go well” for me), that little corona boogie man found me anyway.

I want to moan, whine, and throw apples at squirrels. I’d like to take about 10 Melatonin, crawl in bed and wake up on New Year’s Day. I feel like eating all the pies and using the gravy as a chaser. I don’t feel like being thankful for anything or anyone. And I sit here quarantined for 10 days just wondering if every little sniffle is the onset of the illness that will take me out, the very LAST last thing I feel like doing is creating a “Thankful” list.

Which is exactly why I must.

Before Ann Voskamp bestowed on us the beautiful posture of thanksgiving, our very own Jesus Christ had made it quite clear this wasn’t to be an optional thing (Psalm 100: 4,5; Ephesians 5: 18-20; Colossians 2: 6,7; I Thessalonians 5: 16-18  – just to name a few). To be honest, I don’t always like to do all the things Jesus told us to do and sometimes I get grumpy about it. But in this moment, in this debacle, in this wretched season of COVID, I don’t know what else to do or where else I’d go. I will choose thankfulness simply because He told us to be thankful not FOR all things, but IN all things. I will be thankful because he is God and I am not.

I am thankful that:

  • I’m still alive. Cliché, I know. But when I was diagnosed 8 years ago today, all the literature said that women with LAM would live, on average, 10 years. Since that time, a chemo-like medication has been approved to treat LAM and while it’s not a cure, it does slow down the progression. Additionally, most recent research reveals that while some women do succumb to LAM after just a few years, others can live as many as 20 to 25 years with the disease. Still, every year, on this day, I am reminded that I am one of the fortunate ones. I am still alive.
  • Mom jeans came back in style this year. I mean, seriously, who wouldn’t prefer “A” over “B”???   
“A”

“B”
  • My grocery store is diverse. There’s a new grocery store in our neighborhood that has found the magical blend where all people from both ends of the socioeconomic spectrum feel “at home” and catered to. I often shop alongside destitute and homeless people because the store offers the cheapest bread, eggs, and staples anywhere around. The atmosphere is welcoming and quaint, not stuffy like high-end grocery stores can be. Plus, it is within walking distance from most of the poorest sections in town. But at the SAME TIME, whenever I’m there, I will also see high-ranking business folks who work just up the street. These people, who likely have 7-figure incomes, come to this store for the local flare and pricier items: the fresh homemade Italian bread, the sushi prepared on site, the signature blend coffees, and the huge selection of organic produce. I truly believe all of us feel known and accepted there. For the first time in my life, I love to get groceries. It’s a grocery-store miracle.
  • I live in a neighborhood where I encounter the homeless every day. That may seem like a weird thing to be thankful for – because DANG how I wish homelessness wasn’t even a thing!  But Jesus did say: “The poor you will always have with you.” (Matthew 26:11), and while I’d like to argue that point with him (“But WHY, Jesus??? Why can’t we fix poverty and eliminate homelessness and hunger??? Wouldn’t that be better???), what I have come to believe is that the poor are maybe in our lives because WE need THEM. I think maybe the plan behind the homeless in our face every day is so that the comfortable ones (me) get uncomfortable. And if that IS God’s plan, I think it is a good one.
  • I don’t own a gun. Several weeks back, on an extremely hot and muggy evening, I left our upstairs bedroom to go sleep on the couch on the main floor. The air-conditioning just doesn’t reach the second floor in our century old home, and no one wants to see a cranky menopausal woman after a long, sweaty night without sleep. Instead, I fell fast asleep on the couch. Somewhere around 3:00 in the morning, I awoke to the sound of someone fidgeting with our door locks. We don’t live in the best neighborhood. I’d been warned that nighttime burglars in our neighborhood often look for purses set out on kitchen tables that they can just grab and go. In a milli-second I glanced at our dining table and saw my purse sitting out in the open. The burglar would have to walk right past me to get it. In the second milli-second I scanned my reach for something to use as a weapon. My choices were a book, a remote control, and an empty Diet Coke. This was not looking good. With my third milli-second I said a prayer: “Lord, see you soon!” because I was certain I was going to die. The door burst open, my heart stopped beating even before I saw the burglar. A short black shadow entered the room and I steeled myself for the bullet. The person was so short, in fact, I thought, “My God! Is this a child about to murder me?” – but my eyes wouldn’t focus in the dark. In a very NEXT milli-second I remembered my youngest daughter was short. Very short. She had moved out several months prior, but still had a key. She had fumbled at the door because it was so dark out and she was hysterical. About a half hour earlier she had learned that a dear friend of hers had been killed in a tragic car accident only an hour after he had left her apartment. She was one of the last people to see him alive. She fell apart with the news and needed support, so she drove directly to her mom. If I had had a gun, I totally would have taken it with me to sleep on the couch – that’s logical in our neighborhood. If I had had a gun, I have no doubt in my mind I would have killed my daughter.
  • We’ve had sunny days in November!!!
  • Some friends don’t give up on the chronically ill. I’ve not been a good friend to my friends, I know that full well. I don’t have the energy to go out for coffee/lunch like I once did, or hang out at the beach together, and I’m certainly not baking anyone cinnamon rolls anymore. I sometimes even look at my phone, consider a text or call, but don’t – because the phone looks like it weighs about 300 pounds. Somehow, some way, a few of my friends have stuck with me in all of this. I’ve heard it said that those who suffer from chronic illness are the loneliest people anywhere. I believe it. But God has given me the gift of a few good friends and they have made all the difference.
  • God made Olipop. If you’ve never heard of this heavenly healthy beverage, let it suffice to say that the Diet Coke in my fridge is afraid. Very afraid.
  • Some people never give up on a neighborhood. Our lovely, fragile, diverse, and economically challenged neighborhood is breaking, bursting and, as always, crying out for help. Paul and I were utterly blown away when we moved to the city by the amount of people relentlessly doing the hard, thankless, and tiring work of community care through neighborhood ministries. These brave and devoted few are bringing the shalom of Jesus to a worn-out world and we are so privileged to journey with them.
  • I’ve been given a baby to love. I’m so thankful that a neighborhood couple who needed a little help with childcare thought of me. It’s no secret that COVID has forced me to quit my job as an RN, has kept Paul and I from many of the things we enjoy, and has even wreaked havoc on my mental stability. I didn’t even realize how much a baby brings HOPE and JOY and LIFE into a bleak existence, but it’s true: a baby changes everything! (Even my shitty attitude)
She loves me.
Really she does…

Please, share with me some of the things you’re most thankful for this year. I’d love to hear them and God gets the glory!!!

Filed Under: City Life, Contentment, COVID-19, Depression, Homelessness, Lymphangioleiomyomatosis, Terminal Illness, Trusting God Tagged With: CONTENTMENT, COVID-19, DYING, JESUS, JOY, LAM

Leave It Broken

March 26, 2021 by Cindy DeBoer 15 Comments

When we bought our hundred-year-old crack house we discovered that somewhere in its history a previous owner made an egregious err in personal assessment and believed themselves to be “handy.” They tackled a variety of home improvement projects such as brick laying, replacing windows, updating trim and doors, installing sinks and faucets, and building closets. However, I’m almost certain my 6-year-old nephew could have done a better job.

We’ve had snow leak in through the ill-fitting windows, faucet levers that scrape the wall, crumbling brick and leaking roofs – all due to this “handypersons” handywork. We have gaping holes in our baseboards, incomplete and mismatched trim boards in every room and doors that were hacked down at the wrong angle in an attempt to accommodate unlevel floors.

Check it out:

Clockwise from top left: 1) Insulation peeking out because “handyperson” didn’t know how to cut the brick to reach the wall 2) Drywall where handyperson measured once and cut twice 3) How our “handyperson” paneled with wainscoting 4) Hard corner to tile – so “handyperson” filled it in with caulk.

I’ve seen young children make living room pillow forts and back-yard tree houses with better craftsmanship.

Initially, we figured we’d fix everything and be DONE with renovations once and for all. But as soon as the home was functional (as in, an operational kitchen, a door to the bathroom, and a place to flop a mattress) we were so exhausted from all the fixing-upping, that we simply halted the projects. We figured we’d wait a few months, restore our energy and excitement for a “completed” home, and then finish things.

That was 6 years ago.

It hasn’t been a matter of money, nor even enough time or energy. What’s held us up is this:

It’s extremely difficult to keep fixing-up your home when some neighbors are heating their home with their stove.

It’s hard to justify spending money on crown moulding and matching doorknobs (it’s not even arguable that these things are frivolous) when you pass multiple homeless people on your way to buy the materials.

It’s gut wrenching to spend about $800 on any project on our home when we’ve learned of multiple neighbors being evicted due to inability to make rent (typically around $800 in our neighborhood.)

We’ve repeatedly had the dilemma of choosing home improvements over “life improvements” of others.

So, six years later, our home is still not done.

Just because we can afford something doesn’t make it right.

**********

More importantly, in addition to the ethical battle of money stewardship, we noticed that waking up each day in a home marked by broken things, unfinished work, imperfections, and missing pieces, has helped to remind us that we live in an imperfect world, inhabited by imperfect people with imperfect lives.

The entire WORLD is broken and unfinished and only Jesus can fix this mess. So we began asking ourselves, why should our home reflect anything different?

In our former homes – both our country estate custom-built “dream home” and our downsized 70’s ranch in the burbs – everything was pretty, polished, working and stylish. We were very much in control in those homes and felt we had essentially achieved perfection. No brokenness, no problems, no worries.

In those dwellings and environments, it was much easier to forget about the pain and suffering in the world. It was easy to pretend (albeit subconsciously) that the world wasn’t broken. It was fun to live like that – without daily reminders of a suffering world. I often justified those “perfect” dwellings by asking – What’s wrong with making our homes a haven to rest from the weary world?

It seems to me that the only reason having a (near) “perfect” dwelling could be wrong is if it causes us to forget about those who are in desperate need of God’s love and care and/or if we ever forget that WE (those who believe in Jesus) are God’s plan to meet those needs (there is no plan B).

So if you, like me, love to watch HGTV and love to design, improve, and fix-up your home, maybe we should rethink things a bit.

Maybe we don’t need to fix everything to where it all looks “perfect.”

Maybe we should stop striving so much for beauty and completion.

Maybe we should let heaven be the only perfect home and accept some brokenness and imperfections in our earthly homes.

Maybe the broken things will actually help us stay tuned-in to the brokenness of our world and remind us to ask God for our role in its healing and restoration.

Maybe we should leave some things broken.

Filed Under: City Life, Contentment, Fixer-Upper, Homelessness, Simplifying Life, Uncategorized, Voluntary Simplicity

How to Launch Into Winter with COVID All Around Us

October 15, 2020 by Cindy DeBoer 10 Comments

My stupid COVID dog (not that she has it, but we bought her because of it) woke me up way too early one morning. I wouldn’t mind if our Governor mandated all humans shall not stir before 8:00 a.m.

Vie (my COVID dog’s name – which is French for “life”) needs a walk immediately upon waking or she’ll poop in the house. So at the crack of dawn I headed outdoors in my pajamas for a dog walk.

With sleepy-eyes and morning breath I bumped into my neighbor just two doors down. She was loading her last piece of luggage into her car before heading to the airport. She was meeting up with her parents so they could tearfully send her off to live in the Middle East. She’s young (25?), very blonde, very attractive, and traveling solo to teach at a high school in Afghanistan. Yes, you heard that right:

Af-freakin’-ghanistan.

God knew this one last impromptu meeting was needed by both of us. We had a precious exchange there on the sidewalk and I was able to send her off with a blessing. With mutual  tears, she departed. I wondered how in the world her parents were handling this. Afghanistan. Who even does that? (Okay…. So maybe I did that. But WE went as a family. I had a brave husband at my side along with two strapping, tall teenaged sons and two very confident daughters. I was not ALONE. And Morocco is no Afghanistan. Not even close. People actually take vacations to Morocco.)

Before I had much of a chance to process the bravery of this young woman, I turned the corner and ran into a homeless man. He was picking at garbage in the park across from our home and so I greeted him warmly, “Hello!”

He launched into a rambling apology, “I’m sorry. So sorry. We didn’t mean it. We’re leaving.” It was then I noticed his tent that was erected just beyond the children’s play area. A second man was exiting their “home” as we spoke.

“Sorry for what?” I asked.

Without making further eye contact, he shuffled away saying, “We slept too long. We’ll be gone soon. So sorry.”

Homelessness in Grand Rapids is a thing – as I imagine it is in every city. But I’ve heard we are known as a destination for the homeless because we have plenty of shelters and food distribution centers, clean parks, friendly police and a plethora of Christian organizations that will do anything to help. But COVID has definitely made the homeless issue worse here in GR.

One thing I know for sure: Homelessness is not of the kingdom of God. This is not the way things are supposed to be.

I quickly realized the reason my stupid COVID dog woke me up so early is because God knew I needed to run into my Afghanistan-bound neighbor and my neighbors with no home because I needed the reminder that life is rarely what we thought it’d be or even what it’s supposed to be.

Watching my neighbor leave for Afghanistan I thought, “I bet when she was born and her parents first saw her rosy little cheeks, blonde tufts of hair and blue eyes they never once thought: “I hope that someday this one will move to Afghanistan all alone – a place where young beautiful blondes really stand out and American’s are not particularly welcome.”

I bet her parents never once imagined this for her future. But…

“A man’s heart plans his way, but the Lord directs his steps and establishes them.” Proverbs 16:9

I bet when my two homeless neighbors were in high school, they never once thought to themselves, “I hope someday I will be without a home. I just know that I’ll end up jobless, with no prospects, and unable to secure safe shelter.”

 But…. “A man’s heart plans his way, but the Lord directs his steps and establishes them.”

We were invited to 3 weddings this fall where the bride and groom watched many lifelong dreams shatter as they moved up their wedding date, changed the venue, and shrunk the guest list due to COVID.

But… “A man’s heart plans his way, but the Lord directs his steps and establishes them.”

Our college graduate daughter was supposed to be living abroad in France or Spain or Honduras right now developing her language skills but instead she is home here with us working as a barista.

Because a man’s heart plans his way, but the Lord directs his steps and establishes them.

Referencing changed plans and directions is not meant in any way to minimize those who have lost loved ones from COVID. Those losses are incalculable and we can’t even begin to make sense of that. But I think that, without exception, we ALL had plans, dreams, and hopes for 2020 that look nothing like the 2020 we’re living. It wasn’t supposed to be like this.

THESE WERE NOT OUR PLANS, GOD!!! DO YOU REALLY KNOW WHAT YOU’RE DOING???

Never before have we all been so at the mercy of the Lord’s plans. We can barely plan next week, let alone next month or next year.

But one beautiful takeaway of this COVID reality is to realize I am not in charge of me and you are not in charge of you. We can plan all we want and hope and dream and whine when these things may have to be changed, cancelled, or never come to fruition – but the truth is that The Lord Our God alone is sovereign and we can never take his place on that throne no matter how much we think we belong there.

We can only surrender our plans and trust Him.

That’s it.

That’s all.

Whether in Afghanistan, a COVID-unit at the hospital, the Champs-Elysees in Paris, in a tent in the park, or stuck under the same roof between the same 4 walls for an entire year, the Lord has indeed directed those steps and he alone establishes those steps that lead us into our futures.

Filed Under: City Life, Contentment, COVID-19, France, Homelessness, Joy in the Journey, Life Overseas, Michigan, Suffering Tagged With: Afghanistan, COVID-19, Homelessness, Proverbs

Derailed

March 5, 2020 by Cindy DeBoer 28 Comments

We became empty nesters last August. Because I feared boredom and purposelessness – as well as the fact my medications cost an astronomical amount and my employment offers better prescription coverage – I decided to go back to work full-time. Additionally, after shelving my career for 20 years to raise kids, I was excited to get back into nursing – especially psychiatric nursing.

At least that’s what I told people.  

Another truth is this: I had a big ‘ole chip on my shoulder. I was hell-bent on proving that I physically had what it takes to work a fulltime job like any other healthy 53 year old.

And I did it. I showed myself and the world I can work full-time. But I am definitely not healthy.

I also proved I was living in denial.

The truth is I have a lung-sucking disease and working full time has nearly been the death of me. I kept the job afloat, but nothing else. For seven months I’ve basically done two things: work and sleep. With zero energy left after a day of work, and every day home spent sleeping, I soon felt the sting of deteriorating relationships. I didn’t Skype my kids as much as I/they wanted to. I didn’t spend near enough time with my mom – our last living parent – and I missed her. I had no energy for lunch dates with friends or volunteering in our neighborhood.

Although my pulmonologist says exercise is essential for protecting the last bit of healthy lung tissue I have left, I’ve had no energy to do that either. On top of all THAT, I’m now probably damned to hell, too, because I only went to church ONCE that whole time of working so much.

And maybe, just maybe, the worst part was this:  I stopped writing.

SMELLY PEOPLE GOT ME BACK ON TRACK                                                      

I recently scooted in to my neighborhood Dollar Store that’s sandwiched between an Iraqi-owned liquor store and a Psychic Angel who takes walk-ins. I was running late (surprise!) and I sighed in frustration when I got to the counter and was fourth in line. (The Dollar Store is not typically known for it’s speedy checkout, if you didn’t know…) First in line was a toothless woman, smacking her gums, buying a full week’s worth of groceries. ARE YOU KIDDING ME??? The next lady sported a good five-day bed-head, wore pink footed pajamas underneath her coat and boots, and was purchasing four 2-liters of Mountain Dew. AT 9:30 IN THE MORNING??? The guy just ahead of me was lugging his oxygen tank, breathing like Darth Vader, and buying cough syrup, cough drops and fever medicine. LORD, PLEASE LET THIS NOT BE CORONA!!!

My three compatriots smelled like cigarettes, booze, bacon, and body odor.

I rolled my eyes and checked my watch. These neighbors of mine who shop at the Dollar Store to meet all their needs were making me (more) late. I was angry and somewhat disgusted with them. Then the old man ahead of me turned around, and with twinkling eyes and a smile said: “Good thing no one’s in a hurry.” His breath was so hideous I nearly fainted. But God used all those smells to reorient me.

A few years ago, when we moved to the city, I chose my new grocery store in an unorthodox manner. There are two lovely stores close to our home – always clean, well-stocked, nice checkout clerks. But just to the north, through the roughest part of our neighborhood, is one of Michigan’s oldest Meijer stores – but it doesn’t smell quite right. There have been murders in the parking lot. With my first visit, I immediately knew this would be my new “home” store.

Paul was inquisitive about this decision and I explained, “We came here for diversity. I don’t want to smell perfume and flowers when I go shopping, I want to smell humanity.”

Standing in line at the Dollar Store I was struck by how derailed I’ve been. THESE three in line ahead of me are my people! These are the people we moved here for! These are the smells I love because it represents REAL people with REAL needs and REAL hurts. I don’t want to live in a fake utopia. I want to live in the real world and be constantly reminded of the reality of suffering. That is why we moved to Grand Rapids – to DO LIFE with these neighbors.

More than anything, we moved to the city so we could encounter people not like us and spend time with them and learn from them. The LAST thing I wanted to be was too busy, too important, or too good to love them! The LAST thing Paul and I ever wanted to be were typical rat-race-suburbanites simply transplanted to the city and subsequently disgusted with the people around us!

I had been derailed! I forgot who I was!

REMEMBER WHO YOU ARE, AND WHOSE YOU ARE

Feeling fairly healthy these last seven years, I’d forgotten a bargain I’d made with God. When I was first diagnosed with LAM, I had told God I’d live my life solely investing in the lives of others if he’d just give me 10 more years to live. But as time progresses and it appears maybe I’ve drawn the long stick with this LAM disease and might even live considerably longer than 10 years, I forgot about living my life with total intentionality. Sure, I can make good money working, but there’s not a damn thing I want in this life that money can buy.

And then – dang – if God didn’t use ZEPHANIAH of all books to speak to me this week: “I will bring such distress on all people that they will grope about like those who are blind, because they have sinned against the Lord. Their blood will be poured out like dust and their entrails like dung. Neither their silver nor their gold will be able to save them on the day of the Lord’s wrath.”

I had made plenty of “silver and gold” during my derailment, but I’m terrified of the thought of my entrails spread out like dung because I had chosen money over matter.

THE BEAUTY OF DERAILMENT

However, the good news is this: derailment does not have to mean train wreck. It doesn’t mean all is lost. It doesn’t mean throw in the towel or burn it all down. The beauty of derailment is that, if we’re willing, it can be corrected.

God never moves, but sometimes we do. His train tracks are eternally secure, we just sometimes veer off them. But he is always patient with us and will wait as long as it takes for us to get back on track.

“Let us examine and probe our ways, and let us return to the Lord.” Lamentations 3:40

“And I am confident of this very thing, that he who begun a good work in you will be faithful to complete it until the day of Jesus Christ.” Phillipians 1:6

So I’m back to volunteering, spending time with friends and family, and taking long walks with Paul while we solve the world’s problems. And I’m back to writing again.

Here we go!

(p.s. If you want to stay informed of my book progress, please sign up with your e-mail address on my website so you can receive my newsletter updates and prayer requests)

Filed Under: City Life, Contentment, Lymphangioleiomyomatosis, Suffering, Terminal Illness

Humble Pie – What happens when our heads get too big…

October 10, 2019 by Cindy DeBoer 8 Comments

My car died a couple of months ago – on the way to work and in the middle of the highway, no less. It made me terribly late as well as the recipient of many honks and obscene gestures from all the busy and important people whose cars never break down.

But, as luck would have it, she died the day before we dropped our last child off at university. And last child has a car she won’t be using at school, so it’s not like I was carless. However…. Said car is peppered with dents, scrapes, and scars from years of inexperienced teenage drivers. Said car has a long yellow scratch where older sister nearly took out a fire hydrant. Said car has it’s bumper held on with zip-ties. Said car smells like sweaty teenagers. Said car sits so low, I have to do a power-squat to get in and out. Said car’s trunk doesn’t like to stay shut and will sometimes fly open while I’m doing 80 on the highway. Said car is covered with hip bumper stickers I don’t really understand.

You get the drift. Not exactly a car a 50-something professional likes to hop into on her way to work at the psychiatric hospital…

I’ve noticed that it’s not as if this car is simply OUR FAMILY’S dumpiest car ever – but that wherever I go – grocery store, hospital, church, restaurants – the car is always THE DUMPIEST in the entire lot! I sense extra eyes on me as I, a (hopefully and somewhat) accomplished looking middle-aged woman, climb into a beat-up, 20 yr. old coupe that screams “HIGH SCHOOL!” I keep wondering what they are thinking about me and I find myself wanting to shout to perfect strangers, “It’s not mine – it’s my teenager’s car!”

At first I found it funny and laughed it off when people looked at me slant eyed. But lately, I’ve noticed a little corner piece of my soul that’s not okay and it’s been feeling a lot like embarassment.  And that reality has been hitting me hard. Paul and I have prided ourselves in kissing materialism good-bye and it is one of the main themes of my upcoming book. Why in the world do I suddenly care about the car I’m driving?

I’m completely flummoxed by my own insecurities and ashamed that I’m dealing with something I thought I killed and buried 20 years ago.

A sermon I used to preach to the kids has been echoing in my head: You do NOT need to impress others.  You are completely who you are with or without any “embellishments.”  You are smart, beautiful, important and good – and it matters NOT what you do or don’t have.  Your true friends are those who love you for who you are deep down – not how you present yourself or how impressive you appear.  They love you just the way you are.

Ahhhhh – there, Cindy, that is the message. Who you trying to impress anyway? Who cares what other people think? The only people that matter are those that know you and love you just the way you are – no matter what kind of piece of crap car you’re driving….

So this past week I drove the crap car to work with the window down the whole way. I wanted to check my hair before getting out of the car, and when I flipped open the mirror, lo and behold, this is what I found:

Clearly, my teenage daughter had put it there for herself to serve as a powerful reminder she didn’t need to worry about appearances, but dang, I sure needed this message, too! I needed to be reminded that God loves ME more than I can fathom and that my value and worth have absolutely nothing to do with the house I live in, the clothes I wear, the college degrees I’ve earned, or the cars I drive.  God doesn’t see any of that.  He just sees me.  And He calls it beautiful.

We cannot impress our way into the kingdom – it is simply a gift. God looks at us and sees all the dents, the dings, the scratches and many hard-earned miles and doesn’t care.  He sees beyond all that and says, “You are enough. Just you. I love you just the way you are.”

Now, we could just run out and buy another car and get a new shiny impressive one – but we also have THIS saying in our house: Just because you can afford something doesn’t make it right. MAYBE, just MAYBE God wanted us to drive a crap car for a while to really contemplate our inherent worth.

Because that crap car has been a beautiful reminder of God’s goodness and mercy and that I need to do NOTHING to impress Him, we are STILL driving the crap car all over town! It reminds me that God sees my soul and calls me worthy despite my sin.

Filed Under: Contentment, Joy in the Journey, Simplifying Life, Uncategorized, Voluntary Simplicity Tagged With: #humility #simplicity #teenagers #materialism

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