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Cindy DeBoer

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Archives for March 2020

I AM OUT OF CONTROL

March 22, 2020 by Cindy DeBoer 11 Comments

When we lived in Morocco, every single day felt like a monumental challenge. It certainly wasn’t because of the people (they were incredibly kind, generous and welcoming). The challenge primarily came from being so out of place – so keenly aware we were foreigners and didn’t have much sense on how to navigate an alien nation. Simple things like retrieving cash from an ATM, adding minutes to our cell phones (no iphones there), getting groceries, visiting the orthodontist, buying underwear, paying bills, etc., etc. were all accomplished so differently from what we were used to they’d suck us dry of time, energy, and brain space. The language barrier also played a part (we often complained of headaches in the evening from speaking French all day long).

For example, we had to pay our utility bills in person in the nearby village. Payments had to be in cash, in an envelope, in the exact amount. If you forgot the envelope or needed even 10 dirhams back, they’d refuse the payment. If you couldn’t say your address clearly in either Arabic or French, they couldn’t process your payment. Some days the office was closed (for no apparent reason) so it was a crap shoot if you’d be able to make your payment or not. It was an enormous headache (quite different than having your bills electronically paid each month…)

Because life was so hard in Morocco, I was immediately stripped of cockiness and confidence. I quickly learned how incredibly incapable, insufficient, and dependent I was. I had NO CONTROL.

We had only been their a few weeks when I woke up one morning paralyzed by fear. I couldn’t imagine getting out of bed and facing the day – there was just so much unfamiliarity and overwhelming newness bombarding me each day, I was beyond exhausted and discouraged. I remember thinking, “I don’t even want to swing my legs over the side of this bed because when my feet hit the ground, there’s no turning back.” So I cried out to God and said, “I can’t do this without you, God. I can’t even let my feet hit the floor until I know you’ve got me completely covered. Help me, God. Help me.”

And every morning, for four years, before arising each morning, I said that little prayer. It’s the only way I dared to start the day. I could have never survived Morocco without that prayer.

Sadly, we had only been living back in Michigan for a few weeks when I realized I had ceased that morning practice. In America, it was just so easy to accomplish everything and I could do it all on my own. In America, I’m confident, self-sufficient, capable and energized. Simply getting money from the ATM is a no-brainer and I use NO brain space whatsoever. The same is true for the doctor’s office, grocery shopping, talking to the neighbors, and parent/teacher conferences. Life’s so simple, uncomplicated and easy back in America, it’s almost as if I don’t need a God anymore.

So it’s no wonder I stopped inviting God into my day before swinging my legs over the side of the bed.

Then came COVID-19.

I have a nasty debilitating, progressive and degenerative lung disease. I am in that “high-risk” group that those in the media treat as disposable by constantly reminding the public that the old and weak are going to make up the bulk of the dead, so the rest of the population need not worry so much.

But because of my lung disease, COVID-19 has given me a new wake-up call and once again reminded me how OUT OF CONTROL I really am. My life is not my own and I am at the mercy of a virus that not even the brightest minds in this entire world can explain or predict.

Every day I wonder if this is the day.

So I’ve returned to that morning practice that I should have never stopped. Before I even swing my legs over the side of the bed, I pray: “Okay, God, this day is yours. You alone know the pathway of an unseen virus. This is all in your hands and I MUST trust your sovereignty. Whether I live or die or am asked to simply sit here for another 12 weeks, give me peace. Whatever your will, Lord, I don’t want my feet to even hit the ground until I know you have me covered.”

And then I get out of bed. My feet hit the floor and I say, “Here we go, Cindy.” It’s weird, but I truly feel like no harm can befall me. Even if the COVID-19 finds me, I know that virus can never steal my joy. Am I afraid? You bet. But I KNOW that I am covered – and that covering makes all the difference.

Tell me, my friends, how are you covering yourselves in this unprecedented crisis? I’d love to hear all your innovative ways!

Filed Under: COVID-19, Joy in the Journey, Lymphangioleiomyomatosis, Morocco, Prayer Tagged With: COVID-19, LAM, MOROCCO, PRAYER

Derailed

March 5, 2020 by Cindy DeBoer 28 Comments

We became empty nesters last August. Because I feared boredom and purposelessness – as well as the fact my medications cost an astronomical amount and my employment offers better prescription coverage – I decided to go back to work full-time. Additionally, after shelving my career for 20 years to raise kids, I was excited to get back into nursing – especially psychiatric nursing.

At least that’s what I told people.  

Another truth is this: I had a big ‘ole chip on my shoulder. I was hell-bent on proving that I physically had what it takes to work a fulltime job like any other healthy 53 year old.

And I did it. I showed myself and the world I can work full-time. But I am definitely not healthy.

I also proved I was living in denial.

The truth is I have a lung-sucking disease and working full time has nearly been the death of me. I kept the job afloat, but nothing else. For seven months I’ve basically done two things: work and sleep. With zero energy left after a day of work, and every day home spent sleeping, I soon felt the sting of deteriorating relationships. I didn’t Skype my kids as much as I/they wanted to. I didn’t spend near enough time with my mom – our last living parent – and I missed her. I had no energy for lunch dates with friends or volunteering in our neighborhood.

Although my pulmonologist says exercise is essential for protecting the last bit of healthy lung tissue I have left, I’ve had no energy to do that either. On top of all THAT, I’m now probably damned to hell, too, because I only went to church ONCE that whole time of working so much.

And maybe, just maybe, the worst part was this:  I stopped writing.

SMELLY PEOPLE GOT ME BACK ON TRACK                                                      

I recently scooted in to my neighborhood Dollar Store that’s sandwiched between an Iraqi-owned liquor store and a Psychic Angel who takes walk-ins. I was running late (surprise!) and I sighed in frustration when I got to the counter and was fourth in line. (The Dollar Store is not typically known for it’s speedy checkout, if you didn’t know…) First in line was a toothless woman, smacking her gums, buying a full week’s worth of groceries. ARE YOU KIDDING ME??? The next lady sported a good five-day bed-head, wore pink footed pajamas underneath her coat and boots, and was purchasing four 2-liters of Mountain Dew. AT 9:30 IN THE MORNING??? The guy just ahead of me was lugging his oxygen tank, breathing like Darth Vader, and buying cough syrup, cough drops and fever medicine. LORD, PLEASE LET THIS NOT BE CORONA!!!

My three compatriots smelled like cigarettes, booze, bacon, and body odor.

I rolled my eyes and checked my watch. These neighbors of mine who shop at the Dollar Store to meet all their needs were making me (more) late. I was angry and somewhat disgusted with them. Then the old man ahead of me turned around, and with twinkling eyes and a smile said: “Good thing no one’s in a hurry.” His breath was so hideous I nearly fainted. But God used all those smells to reorient me.

A few years ago, when we moved to the city, I chose my new grocery store in an unorthodox manner. There are two lovely stores close to our home – always clean, well-stocked, nice checkout clerks. But just to the north, through the roughest part of our neighborhood, is one of Michigan’s oldest Meijer stores – but it doesn’t smell quite right. There have been murders in the parking lot. With my first visit, I immediately knew this would be my new “home” store.

Paul was inquisitive about this decision and I explained, “We came here for diversity. I don’t want to smell perfume and flowers when I go shopping, I want to smell humanity.”

Standing in line at the Dollar Store I was struck by how derailed I’ve been. THESE three in line ahead of me are my people! These are the people we moved here for! These are the smells I love because it represents REAL people with REAL needs and REAL hurts. I don’t want to live in a fake utopia. I want to live in the real world and be constantly reminded of the reality of suffering. That is why we moved to Grand Rapids – to DO LIFE with these neighbors.

More than anything, we moved to the city so we could encounter people not like us and spend time with them and learn from them. The LAST thing I wanted to be was too busy, too important, or too good to love them! The LAST thing Paul and I ever wanted to be were typical rat-race-suburbanites simply transplanted to the city and subsequently disgusted with the people around us!

I had been derailed! I forgot who I was!

REMEMBER WHO YOU ARE, AND WHOSE YOU ARE

Feeling fairly healthy these last seven years, I’d forgotten a bargain I’d made with God. When I was first diagnosed with LAM, I had told God I’d live my life solely investing in the lives of others if he’d just give me 10 more years to live. But as time progresses and it appears maybe I’ve drawn the long stick with this LAM disease and might even live considerably longer than 10 years, I forgot about living my life with total intentionality. Sure, I can make good money working, but there’s not a damn thing I want in this life that money can buy.

And then – dang – if God didn’t use ZEPHANIAH of all books to speak to me this week: “I will bring such distress on all people that they will grope about like those who are blind, because they have sinned against the Lord. Their blood will be poured out like dust and their entrails like dung. Neither their silver nor their gold will be able to save them on the day of the Lord’s wrath.”

I had made plenty of “silver and gold” during my derailment, but I’m terrified of the thought of my entrails spread out like dung because I had chosen money over matter.

THE BEAUTY OF DERAILMENT

However, the good news is this: derailment does not have to mean train wreck. It doesn’t mean all is lost. It doesn’t mean throw in the towel or burn it all down. The beauty of derailment is that, if we’re willing, it can be corrected.

God never moves, but sometimes we do. His train tracks are eternally secure, we just sometimes veer off them. But he is always patient with us and will wait as long as it takes for us to get back on track.

“Let us examine and probe our ways, and let us return to the Lord.” Lamentations 3:40

“And I am confident of this very thing, that he who begun a good work in you will be faithful to complete it until the day of Jesus Christ.” Phillipians 1:6

So I’m back to volunteering, spending time with friends and family, and taking long walks with Paul while we solve the world’s problems. And I’m back to writing again.

Here we go!

(p.s. If you want to stay informed of my book progress, please sign up with your e-mail address on my website so you can receive my newsletter updates and prayer requests)

Filed Under: City Life, Contentment, Lymphangioleiomyomatosis, Suffering, Terminal Illness

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